This, exactly this, is an important reason why I am so annoyed with certain autism stakeholders advocating PDA is a form of autism. Most autistic persons do NOT want autism to be divided. Perhaps, other's can empathise my annoyance on the topic?
This is also one of the reasons why I am kind of unimpressed with Chloe Farahar platforming Harry Thompson on Aucademy. She expressed similar sentiments to me at the 2019 PARC conference & has spoken against dividing autism.
Hypocrisy in that, is a bit of an issue for me.
Yet, according to Chloe, I am meant to be unprofessional one. Go figure.
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PDA is meant to have coding deficits in social identity/ pride/ shame. I am unconvinced they are actually present, & that the proposed deficits cause social interaction issues in PDA.
Newson argued demand avoidance was obsessive in nature as persons know no boundaries, i.e., motivated to express avoidance of various demands because do not know any better.
The literature tells us autism cannot be divided. Others, including @HappeLab have written about it (admittedly outside PDA literature for Happe).
@HiggsMandy@HappeLab I have written about it, inside and outside PDA literature, citing @HappeLab. I am unsure why she does not writen about it in PDA literature. Best guess, is that it undermines the case for PDA being autism?
@Neurodiversit19 I think you comment about, who would like to employ someone with a "pathological" resistance to "ordinary" demands is probably valid. While we do not have data from work (off the top of my head, we do have some data from schools).
@Neurodiversit19 Some research indicates a PDA dx does not decrease exclusion rates and seems to raise number of informal exclusions.
@Neurodiversit19 "However, children with a diagnosis of Pathological Demand Avoidance did experience more informal exclusions (sometimes called “illegal exclusions”) than those autistic children who did not display extreme demand avoidance." Truman, 2019, p9)
Sigh, I do not know where to begin with this. In my view Christie should be a controversial figure worldwide, especially in the autism community for undermining integrity of autism, disregarding autistic wishes for not dividing autism. autismlearns.co.uk/understanding-…
For spreading fallacious logic, ignoring Newson's wishes that PDA not be an ASD. Arguing to maintain the integrity of his own version of PDA. Generally, not engaging with critique. Also calling for research to support their outlook PDA is an ASD.
Ignoring how autism history tells us PDA does not have to be ASD, and that it can easily change clinical understandings and broaden.
Studies showing PDA is seen outside of autism:
Absoud 2019.
Eaton 2018.
Egan et al 2019.
Flackhill et al 2017.
Newson et al 2003.
O’Nions et al 2014a.
O’Nions et al 2014b.
O’Nions et al 2015.
O’Nions et al 2016.
Reilly et al 2014.
EDA-Q was used as part of assessment process.
Three groups: Autism, Autism + PDA, & Other (Trauma related issues).
EDA-Q detected PDA in all three groups.