Tangent at @DjzemaLouiz, one can also have different outlooks due to what they have been through, not only in cognitive ways of being.
PDA is meant to have coding deficits in social identity/ pride/ shame. I am unconvinced they are actually present, & that the proposed deficits cause social interaction issues in PDA.
Newson argued demand avoidance was obsessive in nature as persons know no boundaries, i.e., motivated to express avoidance of various demands because do not know any better.
Also had a need for control in PDA. Issue here is that everyone. most/ all persons have a need for control & benefit from being in charge. Some are suggesting there is a need for autonomy instead of a need for control.
I would point out that each person, to some extent tends to need their own autonomy, chance to be themselves for their own wellbeing; e.g., look at negative impact of masking on those who can not naturally be themselves.
This is slightly tangental @DjzemaLouiz. My issue is that if one considers what is happening with PDA; any deficits in social identity/ pride/ shame, or chaotic or confused word views are the result of RRBIs, & how they impact social interactions.
So in demand management cycle, a person is stressed & is highly aroused why displaying the avoidance features/ behaviours. So are naturally processing information less accurately & more emotively than "normal".
Demand Management Cycle is important, as the entire point of social avoidance behaviours is to force removal of demands, which are often being made by other persons; i.e., to terminate social interactions.
A similar dynamic to social interactions is also present with features from lability of mood, e.g., changing from love to hate in an instant; are also going to impact social interactions with many persons, often prematurely terminating them.
One also has to account for dissociation aspect of "comfortable & roleplay" trait, which is viewed as a coping mechanism to anxiety/ distress to demands.
Finally when added with the trauma that persons with PDA often experience (my axiology of PDA has its etiology being trauma &/ or aversive experiences), can also cause issues with pride/ shame/ identity.
It is natural for anyone who is highly distressed, expressing PDA features over an extended period of time, would have a chaotic worldview, probably with issues with social identity/ pride/ shame.
Example of PDA features, with distress. I am not entirely happy with the image, but it is useful. Image from @PDASociety What is PDA booklet.
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More from @Richard_Autism

5 Jul
This, exactly this, is an important reason why I am so annoyed with certain autism stakeholders advocating PDA is a form of autism. Most autistic persons do NOT want autism to be divided. Perhaps, other's can empathise my annoyance on the topic?
This is also one of the reasons why I am kind of unimpressed with Chloe Farahar platforming Harry Thompson on Aucademy. She expressed similar sentiments to me at the 2019 PARC conference & has spoken against dividing autism.
Hypocrisy in that, is a bit of an issue for me.
Read 4 tweets
27 Jun
@HiggsMandy Agree to differ about what exactly?

The literature tells us autism cannot be divided. Others, including @HappeLab have written about it (admittedly outside PDA literature for Happe).
@HiggsMandy @HappeLab I have written about it, inside and outside PDA literature, citing @HappeLab. I am unsure why she does not writen about it in PDA literature. Best guess, is that it undermines the case for PDA being autism?
@HiggsMandy @HappeLab Me writing about issues dividing autism inside PDA literature, citing @HappeLab
researchgate.net/publication/33…
Read 21 tweets
25 Jun
@Neurodiversit19 I think you comment about, who would like to employ someone with a "pathological" resistance to "ordinary" demands is probably valid. While we do not have data from work (off the top of my head, we do have some data from schools).
@Neurodiversit19 Some research indicates a PDA dx does not decrease exclusion rates and seems to raise number of informal exclusions.
@Neurodiversit19 "However, children with a diagnosis of Pathological Demand Avoidance did experience more informal exclusions (sometimes called “illegal exclusions”) than those autistic children who did not display extreme demand avoidance." Truman, 2019, p9)
Read 6 tweets
23 Jun
Sigh, I do not know where to begin with this. In my view Christie should be a controversial figure worldwide, especially in the autism community for undermining integrity of autism, disregarding autistic wishes for not dividing autism.
autismlearns.co.uk/understanding-…
For spreading fallacious logic, ignoring Newson's wishes that PDA not be an ASD. Arguing to maintain the integrity of his own version of PDA. Generally, not engaging with critique. Also calling for research to support their outlook PDA is an ASD.
Ignoring how autism history tells us PDA does not have to be ASD, and that it can easily change clinical understandings and broaden.
Read 5 tweets
19 Jun
Studies showing PDA is seen outside of autism:
Absoud 2019.
Eaton 2018.
Egan et al 2019.
Flackhill et al 2017.
Newson et al 2003.
O’Nions et al 2014a.
O’Nions et al 2014b.
O’Nions et al 2015.
O’Nions et al 2016.
Reilly et al 2014.
"Profile of problematic behaviours not confined to autism" (@MAbsoud 2019, 8).
pdasociety.org.uk/wp-content/upl…
EDA-Q was used as part of assessment process.
Three groups: Autism, Autism + PDA, & Other (Trauma related issues).
EDA-Q detected PDA in all three groups.
Read 55 tweets

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