🚨VICTORY in our #NHSDataGrab case! Last night the government announced a serious roll back - they’re going to do (some of) what our coalition has been asking for all along. Sometimes it takes a legal threat to get gov to do the right thing. More here 👇
Govt has announced they’ve FINALLY agreed to a proper information campaign. They’ve said they’ll make sure we ALL know what is happening to our GP data. We really, really hope it happens but we’re certainly not taking their word for it. We will be watching 👀 - so stay tuned!
This is a big win for everyone involved in the campaign to stop the NHS Data Grab, especially our partners @allthecitizens @NPCUK @openDemocracy @DAUK_GP @JustTreatment and @DavidDavisMP
But it still isn’t over. We’ve got to this point through people power and a legal threat. Now we have to keep the pressure on to make sure any system that gets built is safe, open, and doesn't leave the NHS exposed to private companies making a profit out of our data
Millions of you have already opted out (thanks to support from our friends @medConfidential) and we know for lots of you that’s over fears companies will exploit the NHS to make a profit. If govt want people to opt back in, they’re going to have to address those concerns properly
The devil is going to be in the detail. Govt still haven't been 💯 clear on how the “trusted research environment” will work. We need a list of every company getting access to the data. We need to know much more about what standards they’ll have to meet to be granted that access
Thousands of you signed our petition and donated to our crowdfunder. Thank you for being part of it. None of this is possible without a chorus of people calling for change
To be one of the first to hear about what comes next in this case, and many more like it, sign up to be part of Foxglove here: foxglove.org.uk/campaigns/join…

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More from @Foxglovelegal

21 Jul
The government’s bill on judicial review is published today. The spin says it’s only for lefty lawyers. That’s not true👇
We used it last summer with @mashedkeyboard to defend fair grades for every A level student. They chanted ‘f*ck the algorithm’ then the JR case made the government scrap it: foxglove.org.uk/2020/08/17/we-…
We used JR with @openDemocracy to blow the lid off secret contracts between the NHS and dodgy US spy tech firm Palantir: opendemocracy.net/en/ournhs/weve…
Read 8 tweets
8 Jun
🚨BREAKING🚨: @Jochurchill4 has just announced the government is CAVING on the deadline for the #NHSDataGrab.

“We will take some extra time." Implementation now 1 Sept.

People, we've managed to win more time!

WATCH: parliamentlive.tv/event/index/0a…
"We will use this time to talk to patients, doctors, health charities, doctors, and others to strengthen the plan, build a trusted research environment, and ensure that data is accessed securely." - Jo Churchill
This is an important step.

We still have questions: how will patients be notified, including people who aren't online? How will the trusted research environment work? On what terms will corporations be allowed to access people's health data?

But the first battle is WON.
Read 12 tweets
7 Jun
Listen to @cori_crider here from 35:30 asking why NHS Digital dropped out of a planned debate with us today on @bbc5live on the #NHSDataGrab: bbc.co.uk/programmes/m00…
We think it’s probably because NHS Digital actually *agrees* with us that patients need more time to learn about the data grab and to choose whether or not to opt-out, as the BBC reported here: bbc.co.uk/news/technolog…
That means it's only Matt Hancock who refuses to do the right thing: stop the plan, drop the opt-out deadline and launch a proper national debate. Sign our petition to tell him to see sense before we’re forced to take him to court: foxglove.org.uk/nhs-data
Read 4 tweets
5 Jun
☀️Morning!☀️ There’s been a TON of news in our NHS GP data grab case – here’s the latest for people catching up.

First, we teamed up with five organisations and an MP to take this scheme to court and try to win everyone more time:

Then, the @RCGP and @TheBMA_UK called for a pause to the scheme and said it risked a repeat of the care.data fiasco.

Doctors have weighed in and said this thing needs to be stopped.

Will Hancock listen?
There IS no public health without public trust – so we were also v concerned when the gov’t wouldn’t rule out dodgy US tech companies like Palantir being given contracts to manage this giant new pool of confidential patient data:

Read 6 tweets
4 Jun
BREAKING: We’ve built a huge team to take the GP data grab to court – but we need your help.

@JustTreatment, @TheDA_UK, @allthecitizens, @NPCUK, @openDemocracy, and @daviddavisMP are fighting for people’s right to a say in the use of their health record: crowdjustice.com/case/stop-the-…
Time is running out. The deadline to opt out is 23 June. Most people haven’t heard of the scheme. The gov’t hasn’t properly informed or involved patients.

If they don’t fix it, we’ve got to go for an injunction ASAP. We sent an urgent legal letter: ft.com/content/a13225…
Our coalition says the process for scraping 55m people’s confidential health records and putting in a central database has been rushed and unfair – and is unlawful.

Unless the scheme is stopped and changed, we will take the government to court.
Read 12 tweets
3 Jun
CAMPAIGN LAUNCH: #NoPalantir in our NHS!

Today, 52 organisations formed a coalition to tell @BorisJohnson, @MattHancock & the government to #DropPalantir from our NHS.

We’re asking everyone to join us in doing the same: nopalantir.org.uk

Palantir, whom you might remember from 🍉 cocktail fame, is using COVID-19 to get their hooks into our NHS. They were brought in without public consultation or open procurement, and we had to threaten a lawsuit to get information about their data deal:
Why does this matter?

Time and again Palantir’s tech has been used to harm, not heal. Founded by Trump-backing Peter Thiel, they’ve enabled some of the worst actions of the US surveillance state - from border forces to police.

A firm like that has no place in our NHS.
Read 7 tweets

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