The @US_FDA says you might retain a little, maybe forever.
They never get to the part that says #Gadolinium goes into veins of MRI patients without informed consent& Administering Tech & Ordering Doctor & Hospital Formulary don’t know why you’d need consent, it all comes out, No?
The #eecummings poem in my Head
#AlButNotQuiteMost Gad comes out in urine of MRI patients into the wastewater treatment plant and it flows unharmed into our waterways. Mined in China 🇨🇳 Using Slaves to mine Rare Earth Metals. Can I get Any of my Doctors Curious 🤨??
They don’t know,They don’t know.
They don’t think I could be accurately reporting my Symptoms which, conveniently for @Bayer overlap nicely with #MultipleSclerosis ,Obesity, HTN, DM, Seizures, Pain of an otherworldly nature. Nails grew straight through digit tips. Neurotic?
Oh yes, off to Psych. I know, Anxiety & Depression go w/ #ms too🤦‍♀️ How about adding Frustration of being a Lone Voice in my MS Clinic? 11 doses of Gad in 9 years. Have No idea what agent or how much. They did tell me hydration isn’t necessary (why?? All Comes out in Urine, No?
The Years were 2007-2014. Half of those MRI’s were on a CombiRx study and I don’t have reports. Why do my Distinguished University Graduated Doctors doubt my theory? rsna.org/news/2019/apri… Is it that they don’t want to because they Like the better pictures? @AuntMinnie ?
Is it mere Oblivion from TMI Too much Information!
Hey if it’s That Bad, the @US_FDA would Stop it’s Use??
Radiology Groups’ And Hospitals’ Lawyers and Liability Companies would Demand Informing Patients of Risks-Benefits. Wait, there Aren’t any, No?
I forgot 🙄 to Mention Memory Loss.
It’s a Difficult Subject for an Old Nurse who knows how to recognize it and it scares the crap out of me. I went for a mammogram last year and when Fred picked me up, I asked why we were there. I had a Mammogram! And No Recall. Oh, Blame on MS.
I’m going to include the Highly Twitter Active, Very Knowledgeable MS Doctors @GavinGiovannoni @Brandon_Beaber @drbarrysinger No answer needed, just Consideration of an Old Nurse who caught what I dreaded. #MS fin 😎 @threadreaderapp #unroll please.

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More from @marygerdt

14 Aug
@kevincinar @Wagner_Nephro Dotarem is #Gadolinium tricked up to make Gad slide on out through your renal tubules… wait, afterthought in the @US_FDA site… it doesn’t all come out…Brain, bone, “Other Organs” gee, seems like a lot?? Heavy Toxic Metals? Image
@kevincinar @Wagner_Nephro @US_FDA My dipping into the not so mysterious business of MRI Contrast. traveloguefortheuniverse.blogspot.com/search?q=Gadol…+ Wonder what I got 11 times in 2007-2016? Never Warned it might be retained in my brain, bones and “other organs” (skin, kidneys, no doubt liver, spinal cord, fibrosis skin. Scarred places. Image
@kevincinar @Wagner_Nephro @US_FDA Beware if the Word “Appears” Appears in So Called #Science Papers.
It means what comes after “Appears” is completely meaningless. Let me explain like my monkey 🐒#MultipleSclerosis is said to “Appear” to come from EBV infection 🦠,Genetics 🧬 . DMT’s “Appear” to act to help you. Image
Read 6 tweets
12 Aug
It’s paradoxical.
I am Caucasian, College educated Nurse. I worked for State helping poor people get long care services at home. I visited poor people who read the paper my name was in as a Tax Sale and probably wondered how I could be so upbeat. Multiple Sclerosis ever present.
I was trying to hold my life together with this MS MonSter on me all the time. Money dwindling and my retirement went to pay farm taxes plus fees, penalties to people who never apologized or even admitted it was wrong. All I could do was hope Karma kicked them, hard.
I barely started wondering how the Civil War ended in 1865 and there is Still a Divide. North and South, Black and White, Left and Right. After the Civil War where My G G Grandfather died fighting Slavery at Shiloh, Slavery Endured, only with a slightly different structure…
Read 6 tweets
10 Aug
Going through notes I wrote in 2013. I started having Temporal Lobe Seizures. They are like Deja Vu on Steroids. I felt Art coming out after coaching by Psych Dr. #MultipleSclerosis had gone too far, I went out on Disability. I found the name Marvin Sackner written down. 🤔
Then the words Barorecepter and Proprioception. Must’ve been talking to my Brother, working on noninvasive testing on people.
I took it as a sign to look more into who Marvin Sackner is, was, I found out, sadly. Missed opportunity. Fragile life we live. He was a Pulmonologist 😎
I have a special place in my heart ❤️ for Compassionate Pulmonologists. Ones who Really Care. Not seeing Patients as Objects or Subjects or Sufferers to be Scolded for smoking 40 years when told patient likely to be terminally on a Ventilator. Or Research freaks. Cold as Ice. 🤦‍♀️
Read 4 tweets
10 Aug
@JaniceDean @rontkim I believe Ron is Partly correct. There’s much more to this, Many Layers, Many Off the Record Conversations. Nobody with a Spine in the Vast NY Healthcare Complex. It’s a Complicated Machine. Many moving parts. Each Gear had to Turn one way. @threadreaderapp #unroll Plz.
@JaniceDean @rontkim @threadreaderapp 2️⃣ Start in the Moment #COVID19 hit NYC. Most Populous City. Hospitals started filling up. Everybody freaking out. When will PPE run out? Staff sick-who will replace? Elective surgery canceled. Beds filling up. Somebody called the Governor. I think Hospital did initial call.
@JaniceDean @rontkim @threadreaderapp 3️⃣ Then AC decided to act at some point and exert Executive Powers (I would seriously question he had That much power). He cooked up a plan to Triage-divert less sick patients away from Hospitals to free up beds. He didn’t know he was out of his jurisdiction, Practicing Medicine.
Read 10 tweets
9 Aug
Already feeling Lopsided Left Leadership making the Ship wobble.
The Eagle 🦅 🇺🇸 Needs 2 Wings to Fly.
When One side is neglected, omitted, Cancelled,
The Bird is unable to fly.
Today, Media attempting to Link Southern States to Conservatives and #COVID19 case rates. #SSDD
Let’s start with the #Science of Masks sciencedaily.com/releases/2020/… They’re not enough.
Plus make people re-breathe their secretion that fester there. Touching nose and mouth.
First thing this morning saw a graphic showing cases of #COVID19 on Fire 🔥 in the Southern States. I believe Biased Against Southerners. It’s a Liberal Hail Mary Pass 🏈 meant to Demonize Republican Leaders. And the South. I asked Statista the Numbers.
4 highest rates Northeast!
Read 4 tweets
8 Aug
I am Sensing a Shift in the Weather.
Hopeful sufferer, waiting for visit to a new Doctor, Fresh View.
Will he take a 5mm punch biopsy of my mangled thumb and diagnose whether scars,cancer or #Gadolinium mayocliniclabs.com/test-catalog/O… ? Wish me luck. @revealpharma every victim needs bx.
@Wagner_Nephro @sennasthunder So, my latest self help experiment is still using Dr. Teal’s Epsom salt soak with activated charcoal,scrub with brush edta-common body soap and charcoal liquid. Trying Dr. Teal epsom salt and Witch Hazel-shrinking inflammation. Overall better.
Q: How can I make Sure I Never Get Another Dose of #Gadolinium ?
A: I can’t, Mary, Get over it.
Q: Can I at least Tweet 🐣 about it? Blog and whine to Doctors who go into a trance when I say I think it’s coming out in my skin?
A: Yes, but most people are intensely caught up in…
Read 4 tweets

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