Thread by @CroakeyNews

This morning’s plenary is given by Dr Hsien Seow @HSeowPhD, the recipient of the Ian Maddocks Guest Lecture, given to the best submission by an author under the age of 40 who is engaged in the study or delivery of #palliativecare #21OPCC

@meera_agar @Pall_Care_Aus chair provides history of Ian Maddocks Guest Lecture. Emritus Prof Maddocks was integral in establishing @Pall_Care_Aus #21OPCC

Dr Seow @HSeowPhD is the Canada Research Chair in #PalliativeCare #21OPCC
As part of his research, he created the Waiting Room Revolution PodCast @WaitingRoomRev

"Palliative care was a calling, it chose me, more than I chose it" - @HSeowPhD. Thinks about how his research can improve patients' outcomes #21OPCC

He knows what it's like to have an illness journey without #palliativecare as his mother had breast cancer. #21OPCC

Him and his family were not prepared for what was happening #21OPCC

As with many patients, #PalliativeCare often not delivered until the 11th hour #21OPCC

His motivation and research focuses on how #palliativecare can be delivered earlier #21OPCC

"From the top of the mountain, we can make an avalanche, but we can't move the mountain" - @HSeowPhD - we will never have enough specialists. Asks who else can be engaged #21OPCC

Early #palliativecare provides a significant opportunity for people with serious illness #21OPCC

Clinicians say - We have done the #palliativecare clinical training, but sometimes it is hard to operationalise early #palliativecare #21OPCC

He met Dr Samantha Winemaker @SammyWinemaker, who provides #palliativecare in patients' homes. Focus of education in #palliativecare focused on specialists but does not include patients or caregivers. #21OPCC

Huge opportunity to move the mountain by focusing on the base #21OPCC

Want to address questions about what people wish they knew, what to expect when you're dying #21OPCC

Enter @WaitingRoomRev PodCast #21OPCC

The seven keys they addressed in The Waiting Room Revolution. #21OPCC

The seven keys are titles of episodes in the PodCast: waitingroomrevolution.com

1) Being hopeful and being prepared can co-exist = Walk 2 Roads. #21OPCC

2) Zoom out = understand the big picture trajectory of your illness, have good illness understanding and the different phases of illness #21OPCC

3) Know your style - People's individual style (how they face challenges, how they cope with different dilemmas in life) determine their experience with their illness #palliativecare. #21OPCC

Dr Hsien moves on to a secondary story they weren't expecting #21OPCC

We live in a death-denying society. Until that is figured out, #palliativecare will never be priority #21OPCC

People don't want to prepare for their death, but they do want to know what's ahead #21OPCC

Asks "do we avoid using the term #palliativecare"? in a death-denying or death-avoiding society #21OPCC

Use of metaphors in the early conversations may help people through the journey #21OPCC

Education is clinically-focused, but so much about #palliativecare is about the art of communication and helping people understand where they are at. Difficult, but beautiful #21OPCC

Another question- when is it palliative? When should the conversation be introduced? #21OPCC

Dr Hsien @HSeowPhD says the conversation should be throughout the entire journey. Invite patients to see when they are #21OPCC

Myth that working in #palliativecare field is depressing and sad #21OPCC

To move the mountain, we have to go to the base - Upstream + public activation. Patients and Carers can be the allies that we need #21OPCC

pls unroll @threadreaderapp