Welcome and acknowledgement to country by @didarmody
I acknowledge I am tweeting from Kaurna country and pay my respects to Elders past and present #21OPCC
.@didarmody reminds us to have a look at the art submitted for the art competition #21OPCC
International panel coming up! Incl #palliativecare experts @rachelcogs, Christian Ntizimira @ntizimira, Dr Katherine Pettus @kpettus, Dr Malama Tafuna’l from University of Otago, A/Prof Ghauri Aggarwal, and A/Prof @OdetteSpruyt #21OPCC
Rachel Cogs @rachelcogs (who did a stellar job of tweeting @WePublicHealth yesterday!) will be chairing the panel @Pall_Care_Aus #21OPCC
Christian Ntizimira @ntizimira is the Exec Director of the African Center for Research on End of Life Care (ACREOL) @acreol_org. Dr Katherine Pettus @kpettus is the IAHPC Advocacy Officer for Palliative Care. #21OPCC
Dr Malama Tafuna’l, is a Pacific Research Fellow from University of Otago, NZ. Assoc Prof Ghauri Aggarwal is Concord Centre for Pal Care, Uni of Sydney. Assoc Prof Odette Spruijt @OdetteSpruyt is the founder of Australasian Palliative Link International #21OPCC
A wealth of knowledge in this panel to discuss International collaboration! #21OPCC
...Short break due to technical difficulties. #21OPCC
Rachel started off with a beautiful poem, unfortunately I didn't catch it all, but will try and get a copy if I can to share with you later @rachelcogs #21OPCC
@rachelcogs #PalliativeCare in lower-middle income countries "woefully" poor #21OPCC @rachelcogs
Curing and conquering all diseases has become #healthcare priority, with #palliativecare not receiving as much focus #21OPCC @rachelcogs
A/Prof Ghauri - Asia-Pacific region huge and diverse region. Core is building networks between countries #21OPCC
APHN facilitated a network approach and initiatives. Coordination and collaboration - at onset work with local government at highest level #21OPCC
Identify local champions, will result in identifying local needs. Advocate for #PalliativeCare to be a core business #21OPCC
"Collaboration not about reinventing but sharing resources" - A/Prof Ghauri #21OPCC
Train the trainers and empower nurses.
Countries such as Aust, NZ have advancement in areas that could be shared with LMIC #21OPCC
A/Prof @OdetteSpruyt talking about IHPC invited Western Pacific region to provide some advocacy to @WHO about pandemic response #21OPCC
Network in region to focus on advocacy and raise awareness of need to increase access to #palliativecare and improved pain medication #21OPCC
"We're all advocates at some level" - @OdetteSpruyt #21OPCC
@OdetteSpruyt Christian - in the context of Rwanda, advocacy process is slow, mostly about access in region. #COVID19 situation are trying to rethink about how advocacy can be done #21OPCC @ntizimira
What has been done - Rwanda was the only country who had #palliativecare policy 10 yrs ago. Now, 10-15 countries have #palliativecare policy #21oPCC @ntizimira
In Rwanda context, "everything is on the shoulder of the family and communities" - family meetings to decide on #palliativecare pathway may involve 20-30 people #21OPCC @ntizimira
Family members are becoming engaged in discussions #21OPCC @ntizimira
@ntizimira Dr Malama talks about #palliativecare in Samoa - one barrier to #palliativecare service incl cost #21oPCC
@ntizimira Other barriers in Samoa- Limited health literacy, people often present late in illness, palliation only thing to do. Pain relief another issue #21OPCC
@ntizimira Informal caring is the fundamental of #palliativecare in many LMIC around the world #21OPCC
One model for end-of-life care for all won't work - Rachel. One size doesn't fit all #21OPCC
Christian - collaboration exists but need to emphasise critical elements. If to create a strong situation of collaboration, need to look at traditional #palliativecare and learn from each other #21OPCC
Talks about how, in US, he was surprised to see a patient on own in big room with TV and pictures, different to scenario in Rwanda where large family surround the patient #21OPCC @ntizimira
@ntizimira Dr Malama - Western health system dominant in pacific region now. Own cultural traditional beliefs embedded in health #21OPCC
Traditional beliefs may impact how people engage with Western health systems #21OPCC
"Family and community are central to way of life" - Dr Malama, similar experiences in Rwanda
Palliation is something that is already happening and part of the Samoan and Western Pacific settings #21OPCC
A/Prof Ghauri - diff countries using expertise in local settings #21OPCC
A/Prof Ghauri - Bhutan example, doctors don't reveal prognosis, thought that the "family don't want it" #21OPCC Spiritual leader joins conversations
A/Prof Ghauri - important to understand local settings when collaborating. Different values, laws and beliefs impact way #palliativecare performed #21OPCC

"We learn so much from the country we're getting immersed in" and "we bring back strategies" to help in our own context
Rachel comments that idea of communication and mutual learning key themes from #21OPCC
A/Prof @OdetteSpruyt "we have expertise, but we're not actual experts" - love this, what a great sentiment!
We're all here to learn about other cultures #21OPCC
A/Prof @OdetteSpruyt - idea of privacy is a very western concept- in relation to story by Christian @ntizimira in Rwanda where families are a big part of #Palliativecare journey #21OPCC
"It's we who are impoverished" {in western culture}
Panel members thoughts on contribution to the Conference Statement, key recommendations for delivering #palliativeCare #21OPCC
Christian @ntizimira - connect our mind to the hearts is the best way to decolonise. Our patients don't deserve politics #21OPCC
#PalliativeCare space remains open but continues to grow - Christian #21OPCC
Top down programs in teaching #palliativecare are not appropriate. Curricula should be developed in partnership with local communities - Dr Malama #21OPCC
"We can together advocate for better #palliativecare for all" - Dr Malama #21OPCC
A/Prof Ghauri and @OdetteSpruyt provide thoughts on Australian role #21OPCC
A/Prof Ghauri - Aust Govt recognise the importance of #palliativecare and have a responsibility to look at and support Asian-Pacific region. Aust Govt should be aware and provide resources for assisting those to work in #palliativecare #AusPol #21OPCC
.@OdetteSpruyt -we, as a #palliativecare community can demonstrate to government importance of encouraging ongoing advocacy for other countries in the region. #21OPCC
Insightful discussions from the panel about international collaboration - thank you all. #21OPCC

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More from @CroakeyNews

10 Sep
To wrap up the final day of #21OPCC, here are ten key quotes that give an overview of topics discussed today.
“Cultural aspect of what death and dying mean. Other countries do that so much better than what we do in Australia.” - Prof Patsy Yates #21OPCC @pastyymates
"Aged care facilities want to provide great care - if funded appropriately, we can do that better, capacity can be built." - Peter Jenkin #21OPCC
Read 12 tweets
9 Sep
Another full day of interesting and insightful discussions about #palliativecare at #21OPCC. Following are ten key quotes for an overview of the second full day of presentations.
"When the doctor has time to sit and listen, this has a huge impact on the patient" - Dr Diana Ferreira @diana_mbhf - great insight from the patients' perspective as a cancer patient #21OPCC
"Death is not linear" - Dr Katrin Gerber @NAgeingRI #21OPCC
Read 11 tweets
9 Sep
Last plenaries for the day about to begin - I'll be tweeting from this one- What is needed for better outcomes for breakthrough cancer pain? #21OPCC
Session chaired by Prof Gregory Crawford from Uni of Adelaide, Prof Andrew Davies from Trinity College, Dublin, Emeritus Prof Maree Smith from Uni of Qld, @diana_mbhf a #palliativecare researcher & cancer patient, & Dr Jessica Lee from Concord Centre for Palliative Care #21OPCC
Prof Andrew Davies - longstanding interest in breakthrough pain, disappointing thing is we still seem to have a problem in terms of diagnosing the problem, assessing it, and providing adequate medications #21OPCC
Read 14 tweets
9 Sep
I will now be tweeting from the ''Collaboration and Integration session, chaired by Camilla Rowland #21OPCC
First presenter in this session is Judy Hollingworth talking about 'Palliative care practitioners and community advocates collaborate in a disadvantaged rural region' #21OPCC
After a lovely acknowledgement to country, Judy begins her story about collaboration and causation #21OPCC
Read 76 tweets
9 Sep
Chaired by Dr Will Cairns OAM, introduces some of the early discussions about #palliativecare - identified key issues - continuity of care, caring for new patients with new conditions, caring for #COVID19 patients and also #palliativecare colleagues #21OPCC
Communication and international collaboration vital for management of #palliativecare during pandemic #21OPCC
Vital for #palliativecare providers to document their experiences of #COVID19 #21OPCC
Read 48 tweets
8 Sep
A great day of presentations today at #21OPCC
If you missed any sessions, here are ten key quotes which give a brief overview of the day.
"Death is a social justice issue" - @NaheedD
"It's really hard to give palliative care {to people experiencing homelessness} if you're not advocating for housing" - also @NaheedD #21OPCC
"The most important thing to get right is how you finance your health system" - @yates_rob on Universal Healthcare Coverage reform #21OPCC
Read 10 tweets

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