What non-autistic people instinctively think when we used the term "autistic masking" -
A case study, shared with permission (no hate please).
1/13
So, my mom called me recently and wanted to share with me what she has learned.
Basically, she was just telling me her thought process after watching someone talk about masking as an autistic person and what it is. I've talked about it a few times to her before.
2/13
She said that "masking" is a bad name because in her mind, she would immediately think that it was about changing how you present to "manipulate" someone to get what you want.
To me, it's interesting how masking immediately is assumed to be intentional to her.
3/13
She said something like "well everyone does that, and uses some masking - not to the same extent - to manipulate someone to get what they want."
I explained that it's not intentional, it's a trauma response to how we're treated and she said oh that makes sense, and agreed.
4/13
I said that no matter what the term, allistic people would co-opt whatever term we would use (and she also agreed), and I also mentioned that many minority groups mask in certain ways (ex. code-switching).
5/13
I found her initial understanding of masking interesting - it seems like allistic people often assume our actions are intentional, even when there is so much evidence that it's not, or even when it's explained out loud to them.
6/13
Even if the word "masking" wasn't used, I think allistic people would still assume our actions are intentional.
It makes me wonder if allistic people often intentionally manipulate others? But only sometimes recognize that they do this once it's talked about?
7/13
This also helps me understand that more often than not, allistic people will probably interpret my tone of voice/body language and implicit meaning of words as intentional.
It's scary to realize just how different we are & just how often & to what level people judge us.
8/13
The worst part is that those judgements often aren't even intentional but a sort of processing that is built in unless someone points it out.
Ableism is something that few people know exists. Telling them they have bias when something is this invisible to them is hard.
9/13
It's hard just to even get neurotypical people, in particularly,
to understand that people have different brains when we have been taught that everyone operates (or should operate) the same exact way.
10/13
It reminds me of how I have to wear a "they/them" pin because the default everyone knows is "he" or "she" - because they/them isn't even an option.
It feels like being autistic around other people isn't even an option. You may as well be accidentally typing in all caps.
11/13
It's somewhat strange that autism is sort of becoming more noticed in entertainment, but the average allistic person isn't going to recognize or understand us if we don't mask.
And wearing an "autistic" pin honestly could be dangerous.
12/13
I guess my point is that neurotypical people really need to try to understand how their brain works, or we're never going to get out of this pattern. If you can't understand yourself and what assumptions you make based on expected social norms, then we can't make progress.
13/13
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Imagine that you're trapped in someone else's body witnessing their own movements & words all the time, even when you think about what you want to say, someone else's thoughts and words come out.
This is why being autistic is so isolating.
NTs see what they want to see.
1/15
It's like neurotypical people, during social interactions with autistic people, are looking at us in a fun mirror with helium voices or something.
Basically, no matter what we as autistic people do, no matter how much we try to accommodate neurotypicals,
they don't see us.
2/15
They interpret our frustration and despair as attacks or petty or aggressive or defensive.
They interpret our passion as anger or argumentativeness.
They interpret our sadness as not even real because we "function" in the things they deem important.
So, I want to do a short thread on autistic labor.
Recently I got asked to give input for some sort of design or study from a graduate student. I was asked if I could answer a couple of questions about X and just give my personal opinion and experience.
1/12
I asked if the project had autistic input and they said yes, and that their sibling is autistic (which generally means the person running it is not autistic).
Basically, by autistic input, they meant that they were asking autistic people like me to answer questions.
2/12
I ran out of spoons to really respond to this, but I said something like "generally it's best if you can pay autistic people."
The person responded saying they don't have much money for this, they're a graduate student, and it's "only a few minutes" of my time.
You know, one of the worst things about your mental health tanking when you're in grad school is that when you kind of "zoom out" and possibly to other people,
your struggles look ridiculous and overblown. But academia constantly teaches you that you NEED it to live.
So you can't tell people easily, and if you do you can't expect sympathy because sometimes it does sound ridiculous.
And academia constantly reinforces the idea that you -need- X/Y/Z to survive, to live, to be a "productive" human being. So it's easy for your brain to believe it
And we're also taught that these artificial (and a lot of other -isms) road blocks that pop up during graduate school are part of the journey and that if you don't "overcome" them you don't deserve the education because you didn't "fight for it."
Today was the first day in my life that someone, to my face, told me that I have experienced some sort of trauma.
And I've realized that maybe to most people, it probably doesn't look like trauma.
It probably looks like encouragement.
1/18
These are the phrases I have heard throughout my life (and still as an adult sometimes) which often trigger me:
You'll be fine!
You're an expert at this!
You can do this!
You deserve it!
Don't worry about it, it's not a big deal.
Don't be so negative!
You're so smart!
2/
When you get praised for being perfect, for never failing, for always being dependable,
you always wonder if once you mess up, the people in your life who cared about you and supported you will be gone. That they won't care or won't like you anymore or won't support you.
3/
This might sound like something one shouldn't admit,
But do you ever feel bitter watching people have a temporary injury who then recover completely without pain?
I feel like it's treated like a "phase"
while my permanent, mundane foot injury is the rest of my life.
A temporary understandable injury is something that people have sympathy for, attention, care.
Permanent injuries, chronic illness, eventually people just get annoyed, why can't you do X/Y/Z, you navigate the world differently forever. You can't do the things you did before.
I only realized this when I crashed my bike and hurt my shoulder. Things that make sense people don't mind.
When you tell them your surgery to decrease/get rid of your pain with walking, they just look at you saying "there's really nothing that can do?" completely stunned.