You know, one of the worst things about your mental health tanking when you're in grad school is that when you kind of "zoom out" and possibly to other people,
your struggles look ridiculous and overblown. But academia constantly teaches you that you NEED it to live.
So you can't tell people easily, and if you do you can't expect sympathy because sometimes it does sound ridiculous.
And academia constantly reinforces the idea that you -need- X/Y/Z to survive, to live, to be a "productive" human being. So it's easy for your brain to believe it
And we're also taught that these artificial (and a lot of other -isms) road blocks that pop up during graduate school are part of the journey and that if you don't "overcome" them you don't deserve the education because you didn't "fight for it."
And of course these road blocks are very much not equal but we are taught that they are, that these milestones are equal, no matter what your support system, economic status, race, gender, religion, etc. is. And it's just honestly ridiculous.
I'll tell you a story -
For a class I helped with we have participation points. I was told at some point that we can take points off if they're not doing as well as we'd want them to or not 100% on task. I was told that this is okay because they're "high achievers."
Basically this meant - these students really care about their grades and want to do well, so you can take a few points off and then they will definitely work even harder to gain them back.
So if they're putting in more effort than average, make them put in even more?!
This reminded me of the time that I was getting C's in my first discussion class in graduate school. I didn't know the professor who taught it very well. There were 15 students in the class all trying to get their participation in and people would interrupt each other.
I tried to speak twice every week and even then it was a struggle to get a word in. At some point, I was so anxious about my grade that I met with the professor (had to be in person as of course this couldn't be answered through my original email question..)
At the meeting they just told me that yes, it was so more people would participate because last year not very many people did.
As if the people in this class were the same people as last year's? Nearly everyone participated every week!
Just meeting them I instantly started crying. I didn't even know I was autistic then but I knew I wouldn't be able to talk (was a shutdown), and I had to show them my question with a notebook that I wrote it in as a backup.
Academia is not fair or reasonable or kind. It is what it is. There are so many implicit social and political things that I'm sure happen right in front of me that I probably have no understanding of and never will.
It's so damn frustrating.
At the moment, I've concluded that the academic system is at its heart a political system. It's about connections, not burning bridges, knowing how to pretend to like people, knowing how to get what you want & of course - some of it is in fact research. I'm just not sure how much
I kind of wonder that if people were really honest about their opinions and what was going on, making implicit information explicit, that the entire academic system would slowly fall apart, because people would realize just how ridiculous it is in the first place.
I will say that of all of the faculty I have interacted with as a graduate student,
there was one faculty member who actually told me the implicit information explicitly and I am so, so grateful to that human being for just helping me and confirming my reality. It changed things
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So, I want to do a short thread on autistic labor.
Recently I got asked to give input for some sort of design or study from a graduate student. I was asked if I could answer a couple of questions about X and just give my personal opinion and experience.
1/12
I asked if the project had autistic input and they said yes, and that their sibling is autistic (which generally means the person running it is not autistic).
Basically, by autistic input, they meant that they were asking autistic people like me to answer questions.
2/12
I ran out of spoons to really respond to this, but I said something like "generally it's best if you can pay autistic people."
The person responded saying they don't have much money for this, they're a graduate student, and it's "only a few minutes" of my time.
Today was the first day in my life that someone, to my face, told me that I have experienced some sort of trauma.
And I've realized that maybe to most people, it probably doesn't look like trauma.
It probably looks like encouragement.
1/18
These are the phrases I have heard throughout my life (and still as an adult sometimes) which often trigger me:
You'll be fine!
You're an expert at this!
You can do this!
You deserve it!
Don't worry about it, it's not a big deal.
Don't be so negative!
You're so smart!
2/
When you get praised for being perfect, for never failing, for always being dependable,
you always wonder if once you mess up, the people in your life who cared about you and supported you will be gone. That they won't care or won't like you anymore or won't support you.
3/
This might sound like something one shouldn't admit,
But do you ever feel bitter watching people have a temporary injury who then recover completely without pain?
I feel like it's treated like a "phase"
while my permanent, mundane foot injury is the rest of my life.
A temporary understandable injury is something that people have sympathy for, attention, care.
Permanent injuries, chronic illness, eventually people just get annoyed, why can't you do X/Y/Z, you navigate the world differently forever. You can't do the things you did before.
I only realized this when I crashed my bike and hurt my shoulder. Things that make sense people don't mind.
When you tell them your surgery to decrease/get rid of your pain with walking, they just look at you saying "there's really nothing that can do?" completely stunned.
This was a great segment & I really want to talk about a feeling that was described by Ani Spooner regarding hiding her strawberry birth mark growing up.
It's not something I've heard talked about much but this feeling is something I relate heavily to as an autistic person. 1/18
In this segment about facial differences, she talks about how she was taught how to hide her strawberry birth mark by age 8. It took 1.5 hours to put the makeup on herself, so that people wouldn't see it.
By age 12, she started applying this makeup every single day.
2/18
She talks about how when other people saw her, they never knew she had that strawberry birth mark. And she said the thought of taking this makeup off was terrifying, because she had no idea if people were still going to like her or want to know her.
3/18
" - the Developmental and Medical History Questionnaire which asks about education, occupation, physical and mental health, lifestyle, sleep, and gut health"
2/5
"- a questionnaire that measures autistic traits
The baseline questionnaire takes approximately takes 20 - 30 minutes, and can be saved at any point and returned to later."
3/5