This might sound like something one shouldn't admit,
But do you ever feel bitter watching people have a temporary injury who then recover completely without pain?
I feel like it's treated like a "phase"
while my permanent, mundane foot injury is the rest of my life.
A temporary understandable injury is something that people have sympathy for, attention, care.
Permanent injuries, chronic illness, eventually people just get annoyed, why can't you do X/Y/Z, you navigate the world differently forever. You can't do the things you did before.
I only realized this when I crashed my bike and hurt my shoulder. Things that make sense people don't mind.
When you tell them your surgery to decrease/get rid of your pain with walking, they just look at you saying "there's really nothing that can do?" completely stunned.
*surgery to decrease/get rid of your pain with walking didn't work,
The worst part to me is that temporary injuries that heal are acceptable to share publicly. People care, and get congratulated that they "leveled up."
But when disabled people talk about their disabilities, even if it impacts their entire lifetime, it's seen as attention-seeking
It's only a burden to other people of there's a time limit on their help.
If there's not.. If you don't "get better"... You have to deal with everyone else's feelings about having a permanent disability too. Everyone's expectations. Everyone's fears. Everyone's frustrations.
I understand that temporary injuries can still have effects on your life. But I see people treat it as if it is some sort of test of will that they got through or being so grateful to people supporting them.
But for some of us that's our baseline forever.
When I see those posts I think "how many people would still support you if you couldn't do X/Y/Z your whole life instead of for 1-4 months?"
I see the clear internalized ableism that if it were permanent, they would feel like a burden and feel useless.
It simply reminds me that people in society, including abled people with temporary injuries that heal, still think of disabled people as lesser than. That they have higher status because they will once again be an abled person& only abled people can be valuable.
It may not be what abled people think they're saying, but that is what disabled people are seeing. That is what the impact of your words mean to us when you are "back to normal."
You get to be grateful and get back to your life like usual, like it never happened.
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Today was the first day in my life that someone, to my face, told me that I have experienced some sort of trauma.
And I've realized that maybe to most people, it probably doesn't look like trauma.
It probably looks like encouragement.
1/18
These are the phrases I have heard throughout my life (and still as an adult sometimes) which often trigger me:
You'll be fine!
You're an expert at this!
You can do this!
You deserve it!
Don't worry about it, it's not a big deal.
Don't be so negative!
You're so smart!
2/
When you get praised for being perfect, for never failing, for always being dependable,
you always wonder if once you mess up, the people in your life who cared about you and supported you will be gone. That they won't care or won't like you anymore or won't support you.
3/
This was a great segment & I really want to talk about a feeling that was described by Ani Spooner regarding hiding her strawberry birth mark growing up.
It's not something I've heard talked about much but this feeling is something I relate heavily to as an autistic person. 1/18
In this segment about facial differences, she talks about how she was taught how to hide her strawberry birth mark by age 8. It took 1.5 hours to put the makeup on herself, so that people wouldn't see it.
By age 12, she started applying this makeup every single day.
2/18
She talks about how when other people saw her, they never knew she had that strawberry birth mark. And she said the thought of taking this makeup off was terrifying, because she had no idea if people were still going to like her or want to know her.
3/18
" - the Developmental and Medical History Questionnaire which asks about education, occupation, physical and mental health, lifestyle, sleep, and gut health"
2/5
"- a questionnaire that measures autistic traits
The baseline questionnaire takes approximately takes 20 - 30 minutes, and can be saved at any point and returned to later."
3/5
One day recently, I woke up, mostly awake, and I laid in bed for 3 hours afterwards.
I wasn't even comfortable. I was on my phone on twitter. But I just didn't want to Do All The Things.
2/13
What are all the things?
Sitting up
Getting dressed
Deciding on breakfast
Getting a bowl
Putting it on a desk
Eating the food
Thinking about work
Being anxious about work
Trying to motivate myself to work
Finding a podcast or music to listen to