Thread by @elisaperego78

#LongCovid is the grassroots movement who changed how covid is understood and drew new attention to the huge clinical burden of viral-onset diseases and their complex pathophysiology
Patients're expert on their condition. They should be treated as such
Grateful for this community

https://twitter.com/PhyllisWeliver/status/1460866292080996353

Those with #LongCovid and allies in the (post) infection disease community #MEcfs have produced top notch advocacy, patient led research and science communication. We have contributed, and are contributing, to change the medical landscape around covid and other chronic diseases

It is of key importance that policy makers, some in the medical establishment, and in public health, fully understand the huge disease burden of SARS-CoV-2 infection and other viral-onset diseases
It is especially imperative in the case of a disease as severe as covid
#LongCovid

We are in the largest pandemic in a century. We need a focus on biomedical research, treatment and top-notch science communication.
We need to centre the experiences and knowledge of those who have been right on SARS-CoV-2 sequelae | covid since the start: those with #LongCovid

Thanks @PhyllisWeliver for the tweet 🌷

As usual thankful and grateful for many friends and contributors to the #LongCovid community #FBLC allies in #MECFS and other chronic disease and disability spaces here and on various social and other media 🌷