Some 25 years ago, I caught a virus because I'd been sitting next to a man who, the previous day, had stepped off an aircraft from Tunisia. In French, he told his girlfriend that he'd been feeling mildly unwell during the journey. That virus ended my career as a radiographer. 😔
It wasn't the virus itself that ended my career. My body had an adverse reaction to me having that virus just as people are having adverse reactions to #COVID19. My immune system went wrong and never put itself right again.

Same can be said for some of those with #LongCOVID.
For me, I had a flair up that was later confirmed as #BehçetsDisease but was wrongly diagnosed as Chronic Fatigue Syndrome. I've noticed in the Press and media that people with #LongCOVID are being told they have Chronic Fatigue. So, I can understand what they're going through.😔
My symptoms never got properly investigated. At the time, people diagnosed with Chronic Fatigue Syndrome were not investigated for other diseases. In fact, there was clinical guidance instructing doctors not to investigate. So, it took me years to overcome that situation.
I'm hoping that the NHS will, in time, investigate those who suffer adverse reactions; those who don't recover. Going years without the right treatment was a total nightmare. Housebound, bedbound, parents as carers. There are people going through that right now. 😔 #LongCOVID
As a P.S., when I got diagnosed with #Behçets, they asked me if my GP or rheumatologist had asked for tests to identify the virus I'd caught. "No" I replied "even though I was in a cold sweat for days & it took me 2 weeks before going back to work". Their reply was silence......
An example of this. In 2007 I discovered that I had been living with an Endocrine disorder. I had a faulty pituitary gland. The Endocrinologist asked me about my medical history going right back to my childhood. He then told me that I could have had this disorder from birth. 1/2
2/2 in 1998, after my diagnosis of Chronic Fatigue Syndrome, I asked my GP to refer me to an Endocrinologist. I'd heard about Hypothyroidism being a cause of CFS. Instead of getting a full set of hormone level tests, I only got a thyroid function test. I later got an apology. 😔
The point being that there are numerous causes of Chronic Fatigue caused by endocrine disorders. All those possible causes could have been eliminated by a full sweep of hormone level tests. But, due to clinical guidelines, I never got those tests until nine years later. 😔

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Stephen 🔶 😷 #WearAMask #FBPA #FBPE #FBPEGlobal

Stephen 🔶 😷 #WearAMask #FBPA #FBPE #FBPEGlobal Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @TheStephenRalph

4 Jul
This year has been totally different for our Great Spotted Woodpeckers. Last year they had 4 young who were all eating off the ground. This year they've had 2 young who have grown up fast. These clips are from yesterday when one young Woodpecker did eat off the ground. 1/n
This thread is really about how this baby Woodpecker interacts with other birds and especially a pigeon. It sees off other birds to claim the food for itself and it sees off the pigeon. But, in clip 5, the pigeon stands ground and shocks the Woodpecker. 2/n
So, this is the pecking order in action. Once the pigeon asserts itself, the Woodpecker returns but accepts it being there.

3/n
Read 7 tweets
4 Jul
Just want to say that @BorisJohnson & @SajidJavid are playing a very dangerous game. By allowing case numbers to grow, the UK has more cases than the entire #EU27 combined. We are a petri dish for a new mutation that could out smart present vaccines & could endanger the world. 😖
And, this government is also condemning young people to catching #COVID19 and the risk of suffering #LongCOVID. People over in the US are horrified that school age children are not wearing masks and are not yet being vaccinate. Our schools are presently super-spreader sites.
As I was saying earlier... 😳

UK scientists caution that lifting of Covid rules is like building ‘variant factories’

Experts react with dismay to ‘frightening’ attitude of Sajid Javid towards removing protections

#COVID19 #CoronaVirus #PlagueIsland

theguardian.com/world/2021/jul…
Read 4 tweets
30 Apr
An emergency Otter timeline cleansing thread... 😊 #LoveOtters #LoveWildlife
1/8
🥰
2/8
🥰
3/8
Read 15 tweets
26 Jul 19
Had a phone call from my friend in Belgium who watches French news channels. One channel has a daily debate & today they discussed #Brexit with two UK journalists amongst the panel.

One thing was certain. If Johnson doesn't pay the £39 Billion there won't be any trade deal. 1/4
Also, they had a really good interview with Steve Bray @snb19692 & other #Remain campaigners. Overall that part of the programme was very optimistic.

One other thing was very clear. The brinkmanship strategy that Johnson is using will fail. The #EU27 are united. 2/4
The EU Withdrawal Agreement has been painstakingly negotiated over a 2 year period. Every possibility regarding the N.I. backstop was explored. The best solution that respected the Good Friday Agreement was the version in the agreement. 3/4
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(