Thread by @MEActNet

#MEAction launched our #StopRestPace campaign in 2020 knowing there was an urgent need to reach the people who had #LongCovid & who are showing symptoms of myalgic encephalomyelitis (ME). That need has grown increasingly urgent as the pandemic has become a mass-disabling event.

In 2020, researchers were predicting 10-12% of those who caught COVID19 would develop ME/CFS. Almost 2 years into the pandemic, we now have preliminary studies showing that nearly half of Long COVID patients are meeting the diagnostic criteria for ME/CFS.* meaction.net/long-covid-me-…

The cardinal symptom of ME is post-exertional malaise (PEM), or post-exertional symptom exacerbation. PEM is a flare of symptoms and/or the appearance of new symptoms after exertion- often delayed after the triggering event. #pwME #MECFS

It is critically important for people with ME not to push past their symptoms and overexert themselves until they crash. Pushing through their symptoms can cause permanent damage. We know the harm that has been done to the ME community. Let us use our voices to protect others.

Please continue to share our #StopRestPace videos, pacing guide, and other helpful info to encourage the Long COVID community to #StopRestPace themselves to prevent harm.

Learn more: meaction.net/long-covid-me-…

Find the pacing guide: meaction.net/resource/pacin…

#pwME #LongCovid

*Not all people with Long COVID will develop ME. Recovery, organ damage, other post-viral complex chronic diseases (autonomic disorders, mast cell activation syndrome (MCAS) & autoimmune disorders) are also possible. They might deal with more than 1 disease or complication.