I spoke with @andreagilligan @LunchtimeLiveNT You can hear @MarianHarkin and I follow (1pm)
#Endometriosis is a subject I am passionate about, I have lived with it for 33 years. I am still seeing the same failures as when I fought for my own diagnosis.
pd5i4.app.link/DlwOWMDKSeb?$d…
#Endometriosis is a subject I am passionate about, I have lived with it for 33 years. I am still seeing the same failures as when I fought for my own diagnosis.
pd5i4.app.link/DlwOWMDKSeb?$d…
It is time to change this, I have seen too many people hurt, damaged, lose their fertility, their organs, their quality of life. We need to reduce the diagnostic delay. Disruptive research and technology like @CailinAI play a role to lead people to effective surgery earlier.
Appropriate education of both the public (through school level programmes) and healthcare professionals (all HCPs) is required. A massive campaign worldwide.
Access to timely and effective surgery - where all disease is excised - is essential. This can help to restore quality of life, improve fertility and restore function and form. Yet, in Ireland (like almost everywhere) this is scarce. #endometriosis
Does anyone even care?
1 in 10 Women/AFAB.
155,000 estimated in Ireland
9 year average delay to diagnosis
Longer delay if you present <25 yrs old or with pain as the primary symptom (over fertility)
176 Million Worldwide
#endometriosis
1 in 10 Women/AFAB.
155,000 estimated in Ireland
9 year average delay to diagnosis
Longer delay if you present <25 yrs old or with pain as the primary symptom (over fertility)
176 Million Worldwide
#endometriosis
Links for further reading:
bloodygoodperiod.com/post/endometri…
bloodygoodperiod.com/post/a-guest-b…
vitalhealth.com/endo-blog/what…
image.ie/self/the-irish…
rte.ie/brainstorm/201…
bloodygoodperiod.com/post/endometri…
bloodygoodperiod.com/post/a-guest-b…
vitalhealth.com/endo-blog/what…
image.ie/self/the-irish…
rte.ie/brainstorm/201…
Podcasts
Prymal Health Sarah Moloney @PrymalP
open.spotify.com/episode/3b4ngM…
In Sixteen Years (Heather Guidone Episode) @in16yearsofendo
open.spotify.com/episode/0nLUaV…
Prymal Health Sarah Moloney @PrymalP
open.spotify.com/episode/3b4ngM…
In Sixteen Years (Heather Guidone Episode) @in16yearsofendo
open.spotify.com/episode/0nLUaV…
Some videos
BIAS in Healthcare Be Me
bias-womens-health.com/be-me?wix-vod-…
Delay in diagnosis (EndoCrusaders)
Interview Dr Ken Sinervo Center for Endometriosis Care
Interview Dr Andrew Cook Vital Health Institute
BIAS in Healthcare Be Me
bias-womens-health.com/be-me?wix-vod-…
Delay in diagnosis (EndoCrusaders)
Interview Dr Ken Sinervo Center for Endometriosis Care
Interview Dr Andrew Cook Vital Health Institute
endometriosis.org - Peer-reviewed accurate information. List of recognised Endometriosis Charities Worldwide
vitalhealth.com/endo-blog/what… Dr Cook on What it Really Means to have Endometriosis - Excellent to share with friends and family.
vitalhealth.com/endo-blog/what… Dr Cook on What it Really Means to have Endometriosis - Excellent to share with friends and family.
centerforendo.com/resources Center for Endometriosis Care - Commercial Entity - Accurate Information
endopaedia.info - Dr David Redwine - In-depth accurate information - Accurate Information for more in-depth reading
endopaedia.info - Dr David Redwine - In-depth accurate information - Accurate Information for more in-depth reading
endometriosisaustralia.org - Endometriosis Australia - Great blog posts Answers Common Concerns - Accurate Information
nzendo.org.nz - Endometriosis New Zealand - Great ESIG posts - Answers common concerns - Accurate Information.
nzendo.org.nz - Endometriosis New Zealand - Great ESIG posts - Answers common concerns - Accurate Information.
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