Discover and read the best of Twitter Threads about #endometriosis

Most recents (18)

#chronicillness - a thread
Imagine being 12. A preteen in between 7th and 8th grade. The lower back pain started as a dull annoyance, then a constant vice tightening on my lower half. I was written off as "growing pains." Meanwhile I'm literally crawling to the bathroom so I can
Take a 4 hour scorching hot bath. Daily. ER says constipation sends me home. 2 days later I'm back at the ER in a wheel chair. My uterus almost ruptured because I was written off as over exaggerating. I had to have emergency surgery TERRIFIED AND 12 YEARS OLD. Fast forward 19
Years later.
The list goes on.

In walks #COVID19
My immune system is already screwed so #selfisolation here I come. Nearly everyone in my close family is high risk. I put off appts
Read 5 tweets
Woah..that was freaky but familiar. Was lying down & decided to get up to take pain meds for #endometriosis and #fibroids and it felt as painful to get up as the day after surgery. In kitchen, sweating, lightheaded. Quickly squatted to avoid passing out holding onto fridge door
..which swung open..but I did not fall. Then once head feeling better, stood up long enough to take meds...then walked, wobbly and lightheaded to chair. I can't quite feel my palms but that will come back. This probably gets to be called 10/10 pain..but maybe really an 8/10
Great..and a migraine too..scotoma.. taking a migraine med and lying down. Man, when it rains it pours.

Mother Nature is such a misogynist.

SO glad I did not decide to rent a car and try to go Finger Lakes this weekend to see peak foliage.
Read 88 tweets
@FandomjunkieZee @bennessb Clinical depression, seronegative arthritis/#spondylarthropathy, food intolerances (although I needed help working out the specifics), #EDS, #POTS, #endometriosis, #ActuallyAutistic, #PyoG. Thankfully in the latter case I only had a STRONG HUNCH for days before dx was confirmed.
@FandomjunkieZee @bennessb @threadreaderapp unroll, danke schön! 😄
Read 3 tweets
I need to talk about #endometriosis care in #Alberta

If you don’t want to hear period talk, scroll.

I may mention transgender health, if you don’t like it, unfollow me.

This may or may not get political, if that bugs you... scroll.

#abpoli #AbLeg #AlbertaHealthCare
We need better gynaecological health care in Alberta. For both women AND men.

Here’s why.

I went 25 years undiagnosed and being told “it’s in my head.” In fact, I’ve been hospitalized for that, through so much psychotherapy and even been on drugs for that.
It didn’t help. I mean I learned to shut up about my symptoms. But they were still there. And I thought I was hysterical or something.

Meanwhile. It’s been affecting every facet of my life. Relationships, jobs, marriages. I’ve been homeless from this.
Read 25 tweets
9 common causes of heavy menstrual bleeding everyone should know

1. Fibroids
2. Pelvic infections
3. Drugs
4. Polyps
5. IUCDs
6. Endometriosis
7. Blood clotting problems
8. Cancers of the womb or cervix
9. Thyroid disease

A thread 🧵

{Share for awareness!}
If a woman loses more than 80ml of blood in one period, the bleeding is heavy.

Although methods of quantifying the exact amount of blood loss are not usually accurate, most women know when their period is heavy & heavy usually often come with blood clots.
Nearly 20% of women over 30 years have #fibroids.

They are of different types & may cause heavy menstrual bleeding.

Treatment depends on the many factors. So see your doctor. Source: National Health Service, Fibroids, United Kingdom,
Read 14 tweets
Oooh, lookie ... another goofy study!! :) The title of this one? "Attractiveness of women with rectovaginal endometriosis: a case-control study."…
"The study's conclusion was: 'Women with rectovaginal #endometriosis were judged to be more attractive than those in the two control groups.'" — @gabriellecj for The @guardian. #SexualHealth
The fact that this study — and the study at the center of #MedBikini — were both published in peer-reviewed journals says a lot about academia. The space has a dearth of women and BIPOC in it, and it shows. (I've already shared my views about that here:
Read 4 tweets
Yesterday did a double session with a new #womenshealth specialized #mentalhealth clinician - have possible ADHD
my usual brain hack strategies are not effective in entirely online grad school + #endometriosis + #fibroids + move to Boston in #pandemic…
Cuz, in online/Zoom group executive coaching, if a topic is brought up around how women psychologically respond to sexual assault in the workplace, & I have not slept all night & I am in 8/10 pain - I just don’t have psychological reserve for that topic
Interesting thing: tho my class is ~80% male, have felt much more comfortable being open about #womenshealth issues affecting my overall well-being or attention span among male engineers & execs

than when in all female environments of fellow physicians who expect “suck it up”
Read 14 tweets
In the midst of COVID-19, @GeorgeCondous and I entirely missed the release of our article in @ContempOBGYN last week!


This is a comprehensive review article accompanied by 17 videos!
This article should be read by anyone interested in endometriosis: sonographers, radiologists, gynecologists who want to learn how to perform ultrasound, gynecologists who want their sonogs/rads to start perform/interpreting ultrasound for endometriosis, patients, advocates, etc
I will share each video in its own tweet.

The videos depict normal and abnormal anatomy, including superficial, ovarian, deep endometriosis, rectouterune pouch obliteration, ovarian fixation.

They are accompanied by captions.
Read 28 tweets
It concerns me the physicians in Canada who deal with #Endometriosis that have affiliations with pharma. Is anyone speaking out about this? Or is this just a situation where everyone turns a blind eye? Or is it the belief that somehow they...have no bias?
Do they think #Pts are ignorant to this bias? That we should all just pretend it’s not there?
Please read if you haven’t already:

“Clinical guidelines, which recommend treatments and can expand disease definitions, are often produced by professional associations and written by people with financial ties to interested companies”…
Read 8 tweets
So @aaron_s_fox jumped the gate on me :) w/ a thread on the #ACL #injury & #AFLW #sport #womanprobs conversation & he did a great job but I'd like my perspective to come in that special 'tone' I may be known for in presentations... My first twitter thread! Expect sarcasm and gifs
1st, I posted my perspective on #injury #women #athlete #development #biomechanics in another tweet, if you missed it, short editorial: & presentation Read those after this thread of fun, I hope the GIFs help you "hear" my tone :)
I’ve seen a bit about #ACL #injury and #menstrualcycles including news stories about organisations ready to study the menstrual cycle and #training - Let me give you some basic information to help you #factcheck before you start #cheering or #praising
Read 16 tweets
“Hip” is socket (acetabulum) where femur (upper leg bone) inserts into pelvis (ilium/ischium). If hip were to dislocate, person would have excruciating pain & be unable to stand/walk. Sacroiliac joint (SIJ) is 17 cm square in area; vs. ilium & sacrum/coccyx (tail bone)....
SIJ commonly subluxes in pwHSD, generating painful ligament stretch interpreted as low back/hip pain in 13-30% pwLow Back Pain. When SIJ subluxes, Ilium rotates CW or CCW around a virtual transverse axis from Right to Left & through both mid-SIJs ....
Rotation of Ilium relative to Sacrum creates an oblique relationship of contours of the two bones. In a lean person, & depending on whether there is a CW or CCW rotation, the tail bone can appear to become stationed closer to the hip region on that side....
Read 15 tweets
Hi, my name is Erica Vladimer. I'm running for Congress, and I don't have health insurance.
Today is the first day of open enrollment, so I'll be signing up for coverage, sharing some of the process as I do.
I just tried to create a new account but a notification popped up saying I already have 3(!) associated with my email address? Waiting for the username to be emailed to me....
Read 18 tweets
🌟From Lily Williams: My 14-year journey with the illness, in comic form
Endometriosis is so much more than a bad period

But the biggest question is: why aren’t women believed: both from myopic male drs. & judgemental women M.D.s, it’s pervasive throughout the medical community.
🌟From Lily Williams: My 14-year journey with the illness, in comic form

⁉️Why aren’t women believed?
🌟From Lily Williams: My 14-year journey with the illness, in comic form

⁉️Why aren’t women believed?
Read 23 tweets
I have so much to say about gender bias in healthcare #Endometriosis
DYK that if I collapsed and fainted in town that I will not get basic CPR from a bystander than if a man fainted. Okay - a study says it is because people are nervous about handling my chest area.
Also if I got into the ER in pain a man is likely to get attention faster than me while I'll be sedated and the pain not treated or addressed.
Read 28 tweets
Thread. Medical Hysteria and #InternationalWomensDay

In 1882, Anna O is considered 'patient zero' for the diagnosis of "Hysteria"

#Hysteria was originally a diagnosis only given to women

Anna O fell ill in 1880 after her father died, possibly of Tuberculosis
2. Her symptoms: severe 'nervous' #cough, paralysis, numbness, vision/hearing/speech disturbances, hallucinations, #cognitive difficulties

She was diagnosed with "Hysteria" by Breuer and Freud in ~1882

3. Breuer claimed that he cured Anna O of #Hysteria using 'talking out' therapy (a very early forerunner to #psychotherapy)

His claim was false

Read 13 tweets
It’s been a few years, but every now and then I get gut punched with little things of would-be reminders. This started with a “My body does its best to survive because it loves me” post on FB.
[thread] About 5-ish years ago, I was sick and puking up random things where I normally was fine. It was RenFaire season and I put on my corset only to have a subsequent breakdown about how it no longer was comfortable, I’m getting fat, etc, etc.
Fast forward a few weeks, and I’m now working 4 10s plus my full weekend gig and my “rest day” of vacation off to rest up lands me in the ER bleeding profusely from my crotch where I nearly pass out a few times because my blood pressure tanked (53/48 suuuucks).
Read 19 tweets
Dedicated to @Terfy_Memes
Plus, a thread on how transwomen retain (at least some) male privilege 👇🏾
What is #maleprivilege? It is freedom, resources, rights, and respect granted instantly to any male person upon (or even before) birth, simply for being male. Having an advantage over another group of humans doesn’t just stop at laws.
When men don’t feel constantly threatened with violence and harassment for just existing. When medical conditions affecting males are given more funding and are more rigorously researched. When men get more pay and are promoted faster due to being seen as more competent in jobs.
Read 12 tweets
How gender identity politics is endangering #WomensRights masquerading under the guise of “progressivism”- or in other words, as I said to this @notokyriarchy fatherfucker, an #MRA’s dream come true
- (thread)
I shouldn’t have to explain the realities of sex-based oppression in 2018! #Female is a biological sex. #Gender is the roles and norms that are imposed on those with female bodies to subjugate them to males for free sexual, domestic, and reproductive labor.
No matter how many genders a given culture had or recognized, somehow, the half of the group with a cock and balls (males) knew which other half of the group to forcibly impregnate (“#NonMen”, according to some). 🤔🤔🤔
Read 22 tweets

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