Discover and read the best of Twitter Threads about #endometriosis

Most recents (13)

So @aaron_s_fox jumped the gate on me :) w/ a thread on the #ACL #injury & #AFLW #sport #womanprobs conversation & he did a great job but I'd like my perspective to come in that special 'tone' I may be known for in presentations... My first twitter thread! Expect sarcasm and gifs
1st, I posted my perspective on #injury #women #athlete #development #biomechanics in another tweet, if you missed it, short editorial: & presentation Read those after this thread of fun, I hope the GIFs help you "hear" my tone :)
I’ve seen a bit about #ACL #injury and #menstrualcycles including news stories about organisations ready to study the menstrual cycle and #training - Let me give you some basic information to help you #factcheck before you start #cheering or #praising
Read 16 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
“Hip” is socket (acetabulum) where femur (upper leg bone) inserts into pelvis (ilium/ischium). If hip were to dislocate, person would have excruciating pain & be unable to stand/walk. Sacroiliac joint (SIJ) is 17 cm square in area; vs. ilium & sacrum/coccyx (tail bone)....
SIJ commonly subluxes in pwHSD, generating painful ligament stretch interpreted as low back/hip pain in 13-30% pwLow Back Pain. When SIJ subluxes, Ilium rotates CW or CCW around a virtual transverse axis from Right to Left & through both mid-SIJs ....
Rotation of Ilium relative to Sacrum creates an oblique relationship of contours of the two bones. In a lean person, & depending on whether there is a CW or CCW rotation, the tail bone can appear to become stationed closer to the hip region on that side....
Read 15 tweets
Hi, my name is Erica Vladimer. I'm running for Congress, and I don't have health insurance.
Today is the first day of open enrollment, so I'll be signing up for coverage, sharing some of the process as I do.
I just tried to create a new account but a notification popped up saying I already have 3(!) associated with my email address? Waiting for the username to be emailed to me....
Read 18 tweets
#NationalPeriodDay hi I have a lot to say about this so buckle up friends

1. Hey not all women get periods and not all people who experience periods are women. This is important!! If we're going to talk about menstrual/reproductive healthy we have to not be transphobic!
2. Today we need to talk about diseases related to menstruation. Endometriosis, PCOS, PMDD, and other conditions are so often ignored and those of us who suffer with them are dismissed by doctors all the time, no matter how often we try desperately to make them hear us
3. Pads & tampons should be free. Oh what? Do I have to say it again? Well I think I will!!

Pads & tampons should be free!
Pads & tampons should be free!
Pads & tampons should be free!
Pads & tampons should be free!
Pads & tampons should be free!
Pads & tampons should be free!
Read 10 tweets
۱.زخمهای سومین جراحی ایندومتریوز.
از هر ۱۰ زن یک زن مبتلا به ایندومتریوز است و از هر صد زن شاید یک نفر آنها به اندازه کافی در مورد این بیماری بداند؟ چند بار از شدت دردهای پریود نالیده‌اید و به شما گفته‌اند این دردها طبیعی‌ست؟
چند بار از حالت تهوع و پیچش شدید شکم قبل و همزمان با پریود شکایت کرده‌اید و گفته‌اند طبیعی‌ست؟ از ۱۳ سالگی به من گفتند دردهای مضمن شکمی من طبیعی‌ست و طبیعی نبودند. من سالهاست مبتلا به اندومتریوز هستم. خستگی مفرط، کم انرژی بودن، افسردگی، درد می‌توانند از علائم ایندومتریوز باشند.
پیشرفت ایندومتریوز حتی با ام. آر.آی و کلوناسکوپی قابل مشاهده نیست. مشاهده این بیماری تنها از طریق لاپاراسکوپی رباتیک امکان پذیر است.
Read 10 tweets
🌟From Lily Williams: My 14-year journey with the illness, in comic form
Endometriosis is so much more than a bad period

But the biggest question is: why aren’t women believed: both from myopic male drs. & judgemental women M.D.s, it’s pervasive throughout the medical community.
🌟From Lily Williams: My 14-year journey with the illness, in comic form

⁉️Why aren’t women believed?
🌟From Lily Williams: My 14-year journey with the illness, in comic form

⁉️Why aren’t women believed?
Read 23 tweets
I have so much to say about gender bias in healthcare #Endometriosis
DYK that if I collapsed and fainted in town that I will not get basic CPR from a bystander than if a man fainted. Okay - a study says it is because people are nervous about handling my chest area.
Also if I got into the ER in pain a man is likely to get attention faster than me while I'll be sedated and the pain not treated or addressed.
Read 28 tweets
So March is #EndometriosisAwarenessMonth and since, right now, I am in the grips of an #endometriosis flare-up I'm gonna tell you all what having this disease is really like.
First of all, to put it simply, #endometriosis is when cells that are meant to grow inside your uterus grow on other parts of your body. Any parts! The cells can grow on your bowels, your stomach, liver, intestines, even your lungs, eyes, or brain. Yeah! It's terrifying!
And because these cells are supposed to be part of your uterine lining, they're basically programmed to shed every month. So like your uterine lining sheds when an egg isn't implanted & hence you have a period. These cells shed in the same way but....not inside your uterus
Read 22 tweets
Thread. Medical Hysteria and #InternationalWomensDay

In 1882, Anna O is considered 'patient zero' for the diagnosis of "Hysteria"

#Hysteria was originally a diagnosis only given to women

Anna O fell ill in 1880 after her father died, possibly of Tuberculosis
2. Her symptoms: severe 'nervous' #cough, paralysis, numbness, vision/hearing/speech disturbances, hallucinations, #cognitive difficulties

She was diagnosed with "Hysteria" by Breuer and Freud in ~1882

3. Breuer claimed that he cured Anna O of #Hysteria using 'talking out' therapy (a very early forerunner to #psychotherapy)

His claim was false

Read 13 tweets
It’s been a few years, but every now and then I get gut punched with little things of would-be reminders. This started with a “My body does its best to survive because it loves me” post on FB.
[thread] About 5-ish years ago, I was sick and puking up random things where I normally was fine. It was RenFaire season and I put on my corset only to have a subsequent breakdown about how it no longer was comfortable, I’m getting fat, etc, etc.
Fast forward a few weeks, and I’m now working 4 10s plus my full weekend gig and my “rest day” of vacation off to rest up lands me in the ER bleeding profusely from my crotch where I nearly pass out a few times because my blood pressure tanked (53/48 suuuucks).
Read 19 tweets
Dedicated to @Terfy_Memes
Plus, a thread on how transwomen retain (at least some) male privilege 👇🏾
What is #maleprivilege? It is freedom, resources, rights, and respect granted instantly to any male person upon (or even before) birth, simply for being male. Having an advantage over another group of humans doesn’t just stop at laws.
When men don’t feel constantly threatened with violence and harassment for just existing. When medical conditions affecting males are given more funding and are more rigorously researched. When men get more pay and are promoted faster due to being seen as more competent in jobs.
Read 12 tweets
How gender identity politics is endangering #WomensRights masquerading under the guise of “progressivism”- or in other words, as I said to this @notokyriarchy fatherfucker, an #MRA’s dream come true
- (thread)
I shouldn’t have to explain the realities of sex-based oppression in 2018! #Female is a biological sex. #Gender is the roles and norms that are imposed on those with female bodies to subjugate them to males for free sexual, domestic, and reproductive labor.
No matter how many genders a given culture had or recognized, somehow, the half of the group with a cock and balls (males) knew which other half of the group to forcibly impregnate (“#NonMen”, according to some). 🤔🤔🤔
Read 22 tweets

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