With all the recent media coverage of #endometriosis (which is much appreciated) there is a lot of misinformation which has potential for harm. My inbox is filling with dispair and hopelessness. While #endometriosis is a chronic condition, there is hope. Another 🧵 Excision surgery can remove the disease and improve quality of life and in some cases fertility. There is always a chance of recurrence (not quantified in the scientific literature) but it is lower than with ablation due to the meticulous removal of *all* disease.

I've seen a few people ask why is #endometriosis on @rteliveline such a big deal?
Why has the conversation stirred up such emotion?
Why do we bother?
A wee thread 🧵 In Ireland, like the rest of the world, #endometriosis takes an average of 9 years to diagnose. Longer if you present under the age of 25 and if fertility is not an immediate concern. I've met many women who have been misdiagnosed for over 20 years.

Some resources for #Endometriosis as have been asked a few times following @rteliveline coverage.

List of resources in this thread here threadreaderapp.com/thread/1490764… Additional information on linktr.ee/Kathleen_m_king

I spoke with @andreagilligan @LunchtimeLiveNT You can hear @MarianHarkin and I follow (1pm)
#Endometriosis is a subject I am passionate about, I have lived with it for 33 years. I am still seeing the same failures as when I fought for my own diagnosis.

pd5i4.app.link/DlwOWMDKSeb?$d… It is time to change this, I have seen too many people hurt, damaged, lose their fertility, their organs, their quality of life. We need to reduce the diagnostic delay. Disruptive research and technology like @CailinAI play a role to lead people to effective surgery earlier.

#endometriosis in Ireland and reflections from those living with it worldwide.

#Endometriosis #awareness #Ireland #inmheatróis #EndoAdvocate #womenshealth