In the initial reporting, there was a large focus on death and survival. But "LongCOVID does not paint a black and white picture," says @Dr2NisreenAlwan. The grey area of chronic post-viral illness is missing from the narrative. 2/7 #LongCOVIDConference
Even now, #LongCOVID is unacknowledged by UK policy makers and is missing from health policy discussions, despite 1.3 million people suffering from the condition. (data from ONS survey) 3/7 #LongCOVIDConference
"Internationally, public health agencies need to agree how to do the reporting accurately, picking up the right research and agreeing on treatment." - @Dr2NisreenAlwan 4/7 #LongCovidConference
Stigma and stereotyping is a contributing problem – Top professional athletes have had to stop their careers despite the stereotype that those suffering from Long COVID are middle-aged women. #LongCOVID is apparent in all age groups. 5/7
Key workers have the highest prevalence, those with non lab confirmed diagnosis of #LongCOVID are likely to experience loss of income. 6/7 #LongCOVIDConference
But there is a silver lining:
Here we have an event that generates the potential to address post-viral illnesses that have historically received little attention. "A paradigm shift needs to affect all of these conditions." 7/7 #LongCovidConference#LongCOVID
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@hugh_montgomery “What's the relationship between asthma and #LongCovid? @ollieosul – “It seems ppl with asthma in the military fared similar to those w/o asthma @Breathe_to_win “we were preparing for a devastating effect on asthma patients, but that wasn’t borne out”
Q: “If you were to get #COVID, would you rest & wait or try to improve your outcome through exercise” @hugh_montgomery
A: @Breathe_to_win “Data into other infections suggests light exercise if able is beneficial. Rest for 48h and then if symptoms allow – light exercise.
Shortness of breath is one of the major symptoms. Traditional pulmonary rehabilitation is difficult to implement on scale. We require a ‘highly individualised approach to help those experiencing #LongCOVID’ says @MMcNarry#LongCOVIDConference 2/6
Respiratory muscle training helps to strengthen the breathing muscles, worked for other types of respiratory conditions. @MMcNarry carried out study, where participants used a small handheld breathing device. This tracked every breath & gave participants instant feedback 3/6
In Brazil, response to chikungunya offers a comparable: "What made chikungunya crippling to the health system is that a small % of people who get it go on to have chronic symptoms which then have a huge impact on people and livelihood." - Prof @Daltmann10 1/4 #LongCOVIDConference
Awareness and knowledge are changing through the pandemic. We’re building better evidence as time has gone.
A #LongCOVID biosignature offers a diagnostic test to help us understand what’s gone wrong and where to go next. 2/4 #LongCOVIDConference
Omicron is significantly different form previous variants – we don’t know how it’ll affect #longCOVID and what the future holds. 3/4 #LondCOVIDConference
‘Long COVID is an uncharted pathophysiology’ We’re still none the wiser in decoding the unknowns. Is long COVID a story of months, years or lifetime?
Prof Danny Altmann @Daltmann10 speaking at the #LongCOVIDConference 1/5
If 10-20% COVID19 infections lead to #LongCOVID. We already face a legacy of 20-240 million long term cases to manage globally 2/5 #LongCOVIDConference
A lot of the research effort at the beginning was purely observational and not interventional. Now we need to manage patients well and offer therapeutics. 3/5 #LongCOVIDConference
#LongCOVID can trigger high level of inflammation and consequent cause damage in the brain and other organs, or blood clotting, leading to a "perpetual and viscous cycle" of chronic symptoms. 2/5 #LongCOVIDConference
There is no single impact either. Examples of patients scans show inflammation, ischemic lesions, haemorrhagic transformation, and microhemorrhages.
“So you can see any pattern of involvement in the brain”- says Dr Paul Edison @ImperialBRC 3/5 #LongCOVIDConference