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Diana Zicklin Berrent Profile picture
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Mar 10 • 4 tweets • 2 min read
Thank you @katiecouric for shining a light on #LongCovid. You amplified patient voices with the respect they deserve.

Please listen to this podcast and watch the accompanying videos. And then share.

Warning: have Kleenex nearby
🙏 @limitlessliza and all the #LongCovid patients who so vulnerably shared their stories. And to @hmkyale and @VirusesImmunity for their continued dedication to understanding Long Covid so we can eventually find a cure.
If you're still suffering from the long term sequelae of COVID you are not alone.

Hang on.
And stay tuned for the second chapter which will drop tomorrow.

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More from @dianaberrent

Diana Zicklin Berrent Profile picture
Mar 11
#LongCovid is our nation's biggest mass disabling event in history

Wartime included

1 in 3 infections lead to Long COVID.

How many people do you know who's had COVID - even asymptomatic?

Now do the math

1/
Next Question with Katie Couric @iHeartRadio iheart.com/podcast/302-ka…
People are suffering.

Some are going into year three of:

- neurological impairment
- severe gi issues (feeding tube level)
- parkinsonian like tremors
- neuropathy
- COVID onset diabetes
- Heart damage
- etc etc etc etc etc etc etc etc etc

2/
Most are young and previously healthy.

They might have survived COVID but they are being ripped apart physically while being gaslit by their doctors.

And our government.

3/
Read 10 tweets
Diana Zicklin Berrent Profile picture
Feb 28
. @nypost just published the names and addresses of all the oligarchs with property in NYC

They can run but they can't hide.
nypost.com/2022/02/27/her…
Btw this is a great "local angle" story
Read 6 tweets
Diana Zicklin Berrent Profile picture
Feb 23
I just heard from two women with #LongCovid, both in their early 40's, just diagnosed with early onset Alzheimers.

They can't be the only ones.

If COVID leads to neurodegenerative disease... we are totally fcked.

Support Long COVID research NOW. Before it's too late.
m.jpost.com/health-and-wel…
medpagetoday.com/neurology/gene….
Read 6 tweets
Diana Zicklin Berrent Profile picture
Feb 20
"The fact is that they are never going to be able to accommodate the number of people who are suffering from long COVID," said @dianaberrent...
1/
'It never seemed to end': Family with long COVID-19 pleads for treatment as surge wanes timesunion.com/news/article/L… via @TimesUnion
...founder of @Survivor_Corps, an advocacy group of over 200,000 members with current, chronic or past COVID-19.
2/
“When we're talking about #LongCovid, I want you to think abt our members who are in their early 30s, who were athletes, who were marathon runners, at the height of their career, who are now in wheelchairs; they're on permanent feeding tubes, they are disabled,” Berrent said."
3/
Read 8 tweets
Diana Zicklin Berrent Profile picture
Feb 17
"Diana Berrent is a Maryland resident who founded @Survivor_Corps, which is an online network of more than 200,000 people worldwide that connects survivors with resources and each other. She said the need is urgent."
1/
 wbaltv.com/article/study-… @wbaltv11 @kateamaraWBAL #LongCovid
"We need a national, long COVID suicide hotline yesterday," Berrent said. "Mental health is a huge part of this, but I also want to be clear: There are neurological issues going on that need to be treated medically."
2/
'She said she is frightened by the long-term repercussions for pediatric COVID-19 patients."

3/
Read 4 tweets
Diana Zicklin Berrent Profile picture
Feb 8
Could antihistamines help relieve #LongCovid for some?

This is a small study but it's supported by real world evidence and needs further investigation.
1/
 gizmodo.com.au/2022/02/antihi…
"These cases were even brought to the attention of these researchers, primarily from the University of California, Irvine, through members of Survivor Corps, a long covid advocacy group hosted on Facebook."
@Survivor_Corps @UCIrvineHealth

2/
"But near as they can tell, these are the first case reports in the literature to document the potential of antihistamines for patients with long covid, also known as postacute sequelae of SARS-CoV-2, or PASC."

3/
Read 4 tweets

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