Arianne Profile picture
Apr 6 9 tweets 8 min read
My daughter Desiree.
Forever 35
2-Cut down in the prime of life.
Victims of #IllicitFentanylPoisonings.
Deaths happening due to a deadly drug supply, deaths that could have largely been prevented.
These are people, people who were loved, not statistics.

3-And more #DrugWarCasualties, a direct result of prohibition like policies and practices and draconian legislation that has painted a target on both physicians and people in pain alike...…
4- My daughter and so many others are not coming back.
IF saving lives and preventing suicides, overdoses, needless suffering & illicit Fentanyl poisonings is the goal, then current draconian drug policies MUST CHANGE.
@LibbySchaaf @Potus @CDCDirector @AmerMedicalAssn @CND_tweets
5-Tortured for a decade.
A weaponized PDMP made MDs too afraid to help ppl in pain like me.
I became so compromised due to medical abandonment that I couldn't help my daughter when she needed me most.
Then she became another casualty.
6-I can't even believe this is happening...
More deaths that were likely preventable.
8-And the pain patient casualties... The 'other side' of the 'opioid crisis'.
We MUST get this right.
Too many are suffering and dying needlessly.
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More from @ravensspirit68

Mar 11
1- I remember way back when advocacy for pain pts started merging with the addiction community's advocacy.
Pushed back on ADX community's mantra of opioid 'over prescribing' & stated that drugs don't cause ADX.
Maia Szalavitz chastised me, told me to basically stay in my lane.
2- In fact, many in the 'upper echelon' of advocacy still embrace the #PainParole status quo & the 'over prescribing' narrative.
Usually if one pushes back, we're blocked or put on the blacklist of CPPs, and now there's even a blacklist for 'rogue' addiction advocates. 🤔🤫
3-You see I was here advocating since the time when the first seeds were being planted on Twitter re: our E-advocacy. #ShareOurPain was a small ragtag group of CPPs who banned together for the cause. This was before there even was an 'upper echelon'.
Read 8 tweets
Feb 17
I commented on the CDC's rewrite.
For whatever that's worth.
I'm exhausted, angry, & now grieving a loss that no parent should ever have to face.
I've had my health & ability to live stolen and lost far too many people I love and care about to this #OpioidInsanity.
2- My comment?
You have no intention of ending this atrocity. You have had people in the pain community chasing their tails for years while asking for our input and 'comments'.
3-We've explained over and over that we are suffering and dying out here in the real world. That MDs tell us to our faces that they are AFRAID of the DEA, and that we are not worth risking their licenses over.
Read 10 tweets
Feb 1
1-Tx of pain & the role of opiate class medicines has gone from pain being inadequately treated across the board to abject insanity.
This was done in an orchestrated but convoluted way, taking pain and making it a 'bio-psycho-social' issue tied inexorably with addiction.
2-For those unfamiliar with CHOIR, it's one of Stanford's projects. It was promoted with the National Pain Strategy (when it was a thing) alongside PROPs opioid 'guideline' as a model for technology driven optimization of pain care through research and data mining.
3-The screenshot above in tweet #2 is from this link.…
Read 15 tweets
Jan 27
I hear a public comment period is coming next week on CDC opioid 'guideline' revisions. This link shows who was involved in the 'opioid' revision workgroup, and what topics of concern were discussed. 😔
2-Listed in this thread the people who are influencing 'guidelines' for chronic pain treatment and pain treatment in general.
Dr. Wilson M. Compton serves as the Deputy Director of the National Institute on Drug Abuse.…
3-Anne Burns, BSPharm Vice President, Professional Affairs, at the American Pharmacists Association
Responsible for the Association’s strategic initiatives focused on advancing pharmacists’ patient care services in team-based care delivery models,…
Read 23 tweets
Jan 26
Petition to Congress.
Public Comments (15,444)
This comment was posted 3 years ago.
Things have only gotten worse.
#RxOpioidsSaveLives #Veterans #GetLawEnforcementOutofHealthcare Image
Petition to Congress.
Public Comments (15,444)-
This comment was posted 3 years ago.
Things have only gotten worse.
#RxOpioidsSaveLives #GetLawEnforcementOutofHealthcare Image
Petition to Congress.
Public Comments (15,444)-circa 2019.
Things have only gotten worse.
#RxOpioidsSaveLives #GetLawEnforcementOutofHealthcare Image
Read 4 tweets
Jan 26
And I want to RT this to stand on it's own merit.
Just in case it gets buried in the thread.
#ChronicPain #Addiction #DrugUseForGrownUps
#Overdose #Opioids
2-A patients need for opiate pain meds should not be determined on addiction treatment issues. Nor should it necessitate recreational drug advocacy. Those are NOT our fights.
People in pain have been deemed acceptable collateral damage in an ongoing, doomed to fail drug war.
3-And here we are. Tens of millions of people in pain told that we should be helping get access to #MAT for thoes w/addiction issues, and help legalize recreational drugs, all while we watch our frends in the pain community dying due to lack of needed legal/safe MEDICINES.
Read 4 tweets

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