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Mary Gerdt Parler:Alvarita1 Profile picture
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Apr 9 • 8 tweets • 4 min read
@AaronBosterMD I understand your problem. I’m a totally adherent super responder to Copaxone-now generic daily Glatopa. I even had Young Whippersnapper Docs insult Dr. Hillel Panitch, my beloved First MS Doc who did CombiRx trial. traveloguefortheuniverse.blogspot.com/search?q=Panit…
While we’re talking about progression-inevitable and we want to delay as long and as much as possible… how about taking #Gadolinium off the formulary? traveloguefortheuniverse.blogspot.com/search?q=Combi…+
About your passionate video. I would start wi/your ending-admit some people prefer shots. It’s ok, one choice we can still make. Copaxone/Glatopa-my religious daily shot. Amino acids feed my mitochondria. They sting a little-leave skin divets, bee stings-I figure meds are fresh.
On CombiRx study I took both Copaxone and placebo Avonex (I didn’t know) from diagnosis 2007-2016. I worked Neuro when there were No treatments excellent high dose steroids after an exacerbation. I had 2 exacerbations in 2 years. Spine & brain lesions. traveloguefortheuniverse.blogspot.com/search?q=Place…+
NEDA since 2007. Definitely Smouldering. Still walking. For Me, Shots give me autonomy from clinic/outpatient IV appointments, extra labs, worried Re: susceptibility to infection, painful hand IV’s. Hospital germs. Now tell me why shots aren’t better than Nothing? I need Numbers.
Don’t lump side effects of interferon Avonex in with Copaxone/Glatopa. Copaxone doesn’t mess with your immune system. 2 different drugs. As a Choice, explain efficacy rates and dependency on Compliance to achieve benefits. Re: costs, outpatient services aren’t free + time/effort.
I enjoy your passion. Just don’t awful-ize shots.
They’re not awful.
I religiously take mine every morning.
My insurance pays most.
I’m 64 and semi stable. I won’t get hysterical watching You. I think you are weak on patient Self Determination. Paternalistic. Give us Numbers.fin
@threadreaderapp #unroll please #MultipleSclerosis 😎

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More from @marygerdt

Mary Gerdt Parler:Alvarita1 Profile picture
Mar 19
Good Morning & Thank You for helping me stay in touch w/Friends in #Ukraine @rafshmatko & Family where People, Peaceful People are getting slaughtered. 🇺🇦 giving Best Effort. Running out of cheeks. I had been invited to 🇺🇦 to help open a Museum Rafael is building for his Dad. 😢
The Late Great Nikolai Shmatko
King of Marble
He and I began tweeting in different languages and with a common Love of Art 🖼 traveloguefortheuniverse.blogspot.com/search?q=Shmat…
He foretold #realDonaldTrump would have 3 terms.
Nik sculpted President Trump and
First Lady Melania Trump. Beautiful work.
Remember a day when Nik would have been noticed by Media for his artwork? Instead, #MSM did not recognize his Art. 2016-already accusing Artist of being KGB??? Ukrainian Artist??! When is Art a Weapon?
Read 5 tweets
Mary Gerdt Parler:Alvarita1 Profile picture
Mar 16
“Undercounted’ is Euphemism for a number of Violations that may just continue to be ignored.
Violations: @MedicareGov NY Medicaid Fraud. Fraud of Private Insurance/VA/other insurance funded Nursing Homes/Hospitals. Violations of Infection Control Principles.
Liability Fraud-Facility Owners and their Malpractice carriers. Tell Me how a Governor can #Waive Liability?? Isn’t that a Protection Racket? How hard is it to trace/connect owners-liability insurers-Campaign Contributions to AC? Why wasn’t Javits Center or Mercy Ship used?
Death with Dignity? Seriously? All alone, stranded in a nursing home, admitted to Nursing Home from an Emergency Room. #COVID19 +. Family/Legal Representativew barred from visiting. No Choice. ?? Homecare offered? Now whole facility infected. No sweat. AC granted “immunity “.
Read 8 tweets
Mary Gerdt Parler:Alvarita1 Profile picture
Mar 14
Sometimes Positive. Feeling Unique:Disabled Nurse with 35 years in all areas of Healthcare. Neuro my favorite way before diagnosis. My Doctor a respected coworker. I endeavored to make life better for #pwMS, Care Team, Researchers, Loved ones, started blog
traveloguefortheuniverse.blogspot.com
Sometimes Bad, er, “negative”. Yin & Yang. Can’t have one w/o the other. The World goes around. Friends & Family die of diseases I hope I don’t get. #MultipleSclerosis is a “dreaded” diagnosis. Revealing responses vary from Speechless German is better: Sprachlos-Absence of Speech
Bad: no cure, too many treatments to choose from. What were You offered today?
Did You see that commercial for the once a day pill 💊 that has You going to a picnic after the 10k 🏃‍♀️?
No, Mom 🤦‍♀️
Good: In early 1980’s I worked Neuro and all we had was High Dose steroids x5 days
Read 6 tweets
Mary Gerdt Parler:Alvarita1 Profile picture
Mar 3
@rafshmatko @NBCNews is accusing #realDonaldTrump of what, exactly? Questioning the results of the 2020 Presidential Election?
My comments on the @nypost post.
@rafshmatko @NBCNews @nypost 60 legal challenges. 7 were thrown out. It’s legal to contest election results in USA 🇺🇸. Hilary Clinton said #realDonaldTrump “stole” the election… 4 years Later!
@rafshmatko @NBCNews @nypost Journalism is a serious responsibility. #MSM targets One Man,
President Donald J. Trump & One Woman,
First Lady Melania Trump @OfficeofMelania
Even as I express my opinion here, Will I be sniped or canceled by San Francisco based Twitter? Twitter canceled POTUS 45. ? Pelosi?
Read 4 tweets
Mary Gerdt Parler:Alvarita1 Profile picture
Mar 1
I hear You, Martin. When I worked ICU, I was most nervous for Carotid procedure patients. You only have 2 and boy, they are Essential! My heart dropped if they came back with a bleed or embolic stroke. Often permanent. Doctor having a bad day. Life ruined. It’s Seriously 😦 Scary
@GavinGiovannoni @Brandon_Beaber @Wagner_Nephro can We start a Body Drive? After our bodies die, can we donate them for #MultipleSclerosis research? Martin-You want #CCSVI Noticed, @sennasthunder @lambertdebb & Gad Warriors want our day in court. #Gadolinium may complicate ccsvi?
Like this study: pubmed.ncbi.nlm.nih.gov/22971467/ I wonder if they looked for Gadolinium at autopsy. Trying to hack our immune system has been effective to some extent. Some people progress quickly to total dependency. I believe it’s a Constellation of events. Each individual has a story.
Read 6 tweets
Mary Gerdt Parler:Alvarita1 Profile picture
Feb 28
I’m always listening
As long as my Google search of #MultipleSclerosisCauses yields “Possible” Causes, question every word, every Doctor.
Next tweet is more thoughts about your ideas Martin 😎🖖🏼
Of course if You Follow Me, You know I am fighting #MultipleSclerosis
#Gadolinium
War in #Ukraine
#trolls
Partisan Hate Speech/Censorship allowed by @paraga @Twitter with #Section230 Protection Racket by Lawmakers 🇺🇸
Pondering 🤔 our complex vascular system.
#pharma is a drug
Martin, started using @Apollo_Neuro and @ouraring September 2020. traveloguefortheuniverse.blogspot.com/search?q=Apollo+
My HRV never as low as Pre-Apollo. Gets me thinking about my years as an ICU Nurse. Blood Flow, Perfusion, that Pause during heartbeats that sends blood to the heart, takes toxins away.
Read 10 tweets

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