Thread by @renudhinakaran

#LongCovid recovery story is long but short notes here:
#POTS confirmed with heart rate variability test & started on Ivabradine.
#MCAS treated based on clinical symptoms with Desloratadine, Famotadine, Montelukast-Cetrizine
#autoimmune assays done - #rheumatoidarthritis

Started on Methotrexate after all vaccinations. GI motility treated with Prucalopride.
Lung perfusion abnormalities but no cause detected (#microclots in blood) - treated with budesonide + tiatropium inhalers, ipratropium nebuliser & supplemental oxygen. #NEISvoid

Weekly IV infusions with Saline at home. Pulmonary rehabilitation. Eyes checked - connective tissue degeneration- tear film corrected with refresh tears & gel, special glasses & convergence exercises given.

Ultrasound therapy for costocondritis pain & isometric exercises for the neck. Relative adrenal insufficiency is on file & will be followed up. Intracranial hypertension is on file & will be followed up. Periods are sort of regular with homeopathic treatment. I have a carer.

All thanks to 14 excellent doctors @SRMC_official. #chronicillness #LongCovid

I've had a detailed ECHO to rule out heart abnormalities, a High resolution chest CT, CT Pulmonary Angiography to rule out PE, Lung Perfusion scan which detected abnormalities, Pulmonary function tests, ACTH stimulation test, fundus check, Brain & Cervical spine MRI.

Immuno assays (anti-CCP, RF, SLE), technitium bone scan which showed polyarthritis (plus anti CCP positive so RA diagnosis). Full GI work up - endoscopy, colonoscopy. ENT work up. MRI & Ultrasound for endometriosis.