Thread...How people in pain are being abused.
Let us count the ways.
1-Emotional Abuse:
Invalidation of person's lived experience
Distrust
Gaslighting
Ridicule
Threats
Constant monitoring of activities
Judgment/punishment #ChronicPain#WeWillNotStaySilent
2-Intellectual Abuse
Being forced to prove your abuser wrong
Mind games
Making the person in pain feel stupid
Attacking the person in pain's ideas or wishes
Manipulation of information, even in medical records
Power Imbalance
3-Financial Abuse
Forcing person to attend needless appointments
requiring co-payments, transportation costs, paying for 'alternative' modalities, Coerced into costly surgeries and 'minimally invasive' procedures, endless lifelong drug testing.
4-Pet Abuse
The fear of #Opioids has now spilled over into the lack of pain treatment for pets.
Especially if owner is a pain patient.
Due to perceived possibility an owner who receives pain medicine might be trying to 'get drugs', their pets are now denied needed pain control.
5-Psychological Abuse
Threats
Abandonment
Accusing pt that they're 'faking' 'maligering' 'drug seeking'
Ignoring messages
Practices that lead to person in pain becoming isolated
Using family to target person in pain with fear/shame
Inflicting trauma due to untreated pain
6-Physical Abuse
Not treating pain
Forced procedures to avoid RXing controlled medicine
Abandonment of people who are severely ill/injured
7-Verbal Abuse
Belittling
Being yelled at
Being insulted
Talking to the person with condescension
Speaking in anger, and with disdain
Chastising patient for their use of certain medicines
8-Spiritual Abuse
Putting down the patient's beliefs/Forcing other religious practices
Using faith or 'mind over matter' to manipulate
Shaming/accusing person in pain of not 'having faith'
Using terms like 'suffering makes us stronger' as an excuse to withhold medicines.
9-Social Abuse
Perpetuating isolation through untreated pain
Preventing the patient's ability to work due to undertreated or untreated pain
Creating stigma or false social perceptions due to patient's use of controlled medicine through ongoing PROPaganda campaigns
10-People in pain are a silenced and desperate group of people.
They are comprised of some of the most vulnerable among us-
The sick, injured, elderly, and dying.
None of this is ok. #WeWillNotStaySilent
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2-Cut down in the prime of life.
Victims of #IllicitFentanylPoisonings.
Deaths happening due to a deadly drug supply, deaths that could have largely been prevented.
These are people, people who were loved, not statistics. #SafeSupplySavesLives
1- I remember way back when advocacy for pain pts started merging with the addiction community's advocacy.
Pushed back on ADX community's mantra of opioid 'over prescribing' & stated that drugs don't cause ADX.
Maia Szalavitz chastised me, told me to basically stay in my lane.
2- In fact, many in the 'upper echelon' of advocacy still embrace the #PainParole status quo & the 'over prescribing' narrative.
Usually if one pushes back, we're blocked or put on the blacklist of CPPs, and now there's even a blacklist for 'rogue' addiction advocates. 🤔🤫
3-You see I was here advocating since the time when the first seeds were being planted on Twitter re: our E-advocacy. #ShareOurPain was a small ragtag group of CPPs who banned together for the cause. This was before there even was an 'upper echelon'.
I commented on the CDC's rewrite.
For whatever that's worth.
I'm exhausted, angry, & now grieving a loss that no parent should ever have to face.
I've had my health & ability to live stolen and lost far too many people I love and care about to this #OpioidInsanity.
Thread...👇🏼
2- My comment?
You have no intention of ending this atrocity. You have had people in the pain community chasing their tails for years while asking for our input and 'comments'. #Chronicpain
3-We've explained over and over that we are suffering and dying out here in the real world. That MDs tell us to our faces that they are AFRAID of the DEA, and that we are not worth risking their licenses over. #Chronicpain
1-Tx of pain & the role of opiate class medicines has gone from pain being inadequately treated across the board to abject insanity.
This was done in an orchestrated but convoluted way, taking pain and making it a 'bio-psycho-social' issue tied inexorably with addiction.
2-For those unfamiliar with CHOIR, it's one of Stanford's projects. It was promoted with the National Pain Strategy (when it was a thing) alongside PROPs opioid 'guideline' as a model for technology driven optimization of pain care through research and data mining.
I hear a public comment period is coming next week on CDC opioid 'guideline' revisions. This link shows who was involved in the 'opioid' revision workgroup, and what topics of concern were discussed. 😔 #GetLawEnforcementOutofHealthcare #ChronicPain cdc.gov/injury/pdfs/bs…
2-Listed in this thread the people who are influencing 'guidelines' for chronic pain treatment and pain treatment in general.
Dr. Wilson M. Compton serves as the Deputy Director of the National Institute on Drug Abuse. nida.nih.gov/about-nida/org…
3-Anne Burns, BSPharm Vice President, Professional Affairs, at the American Pharmacists Association
Responsible for the Association’s strategic initiatives focused on advancing pharmacists’ patient care services in team-based care delivery models, ahip.org/speaker/anne-l…