Binita Kane Profile picture
Jun 12 19 tweets 11 min read
To any new followers, you may see me tweeting about #southasianheritagemonth over the coming weeks. This is a passion project I co-founded with @jasvirsingh in 2020 🧵

TDLR: No one told me when I was growing up that my history was important. I want to change that 1/
In 2017 I took part in a BBC1 Docu called ‘My Family Partition & Me’. I was the first member of my family in 70yrs to go back to Bangladesh (then West Bengal) to the place where my father fled in terror from genocide & retrace my family’s footsteps 2/
Violence surrounded 'Partition' in 1947, the division of the Indian subcontinent by the British, changing millions of lives forever. A 5 minute clip to my Dad’s story here. As you can see if you watch this, it was a pretty emotional journey for me! 3/
bbc.co.uk/news/av/magazi…
After feeling to India, like hundreds of thousands of others, my family became penniless refugees & lived in abject poverty. My Grandfather, a once proud and successful man, starved & wasted away, broken and ill, he died on a cold stone floor, nursed by my then young Father. 4/ An artist's impression of J...
On his deathbed, he took my father’s hand; ‘Be a good doctor’ he said. Driven by those words, my father overcame many struggles but through begging, borrowing and the kindness of strangers he was able to study. Through sheer determination he made the path to becoming a doctor. 5/ Image
He came to the UK and worked tirelessly for the NHS for nearly 50yrs, earning an OBE along the way (the irony is not lost on me!). Like thousands and thousands of South Asian immigrants, he has contributed so much to this Country. 6/ Image
A huge impact for me was the amount of unspoken history I learned. As someone who was born, bred and educated in the UK, it felt like this momentous, defining period of British history had been hidden by a wall of silence for > 70 years. 7/ newyorker.com/magazine/2015/…
I also learnt about the British Nationality Act of 1948 which gave any commonwealth citizens the right to live & work in the UK and the significant waves of migration that followed, a critical step in the workforce that re-built post-war Britain 8/ Image
The reaction to the programme was huge. The British public overwhelmingly responded by asking ‘Why is this history not taught in schools?’ It is a very British story, decisions made by Britain 1947 have shaped my Dad’s life, my grandfathers untimely death & my very exisitence. 9/ Image
I was left with an overwhelming sense that there was more to do, this led to creating a campaign around commemoration and education. We now have a fantastic group of people working on this Nationally, led by @RajUnsworth. 10/ Image
Over a cuppa with co-founder @_JasvirSingh in 2018, the concept of #southasianheritagemonth was born. Our motto; ‘Celebrate,Commemorate,Educate. Our goal;to help people better understand the diversity of present-day Britain for a more cohesive society 11/ southasianheritage.org.uk
Launched in 2020 with the help of founding patron @anitarani (rather last minute and online due to the pandemic 😅), we were blown away by the support for the campaign. Building on this in 2021, our hastag made > a 1/4 of a billion impressions across the world in 4 weeks. 12/ Image
Until very recently this has been a 100% volunteer-led effort. We owe huge debt of gratitude to our volunteers, the public who have supported us and all those who came before us to enable this movement. 13/ Image
We of course wouldn't be where we are without the support of our incredible patrons; @itsanitarani @DrRanj @DrAmirKhanGP @BalvinderSopal @bobbyfriction @Bobby_Seagull @BabitaTV 14/ Image
This year we have a brilliant programme planned and are excited to be having in-person events for the first time, alongside an online calendar to support our 2022 theme ‘Journeys of Empire’. Please let us know about your events by registering here; southasianheritage.org.uk/events 15/
I am also delighted that we will be launching our Schools Toolkit this week, focussed on the 75th anniversary of Partition. Keep an eye on our website for this. A project extremely close to my heart. Thanks in particular to @rkmoyna and @willgupshup for their contributions. 16/ Image
Finally, we live in divided times, there has never been a stronger argument for engaging the public and young people in particular, in the history of Britain and South Asia, to critically challenge and inform peoples' thinking about our beautifully diverse communities. 17/ Image
For more information, visit southasianheritage.org.uk and follow @SAHM_UK. Thanks to anyone who got to the end of this epic thread and to all the beautiful humans who continue to support #southasianheritagemonth, we couldn't do it without you END/ Image
Of all the silly mistakes to make, not tagging the right @_JasvirSingh has to take the biscuit! Sorry Jas 🤦🏽‍♀️
Also the wrong @rrunsworth 🫣
I’m blaming the desktop version of Twitter….
REAL END OF THREAD

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More from @BinitaKane

Jul 23
Schools Unions have written to The Secretary of State outlining an urgent need for a summer action plan to prevent a winter of disruption due to #COVID19 in schools. Measures they are calling for are; 🧵
1/ Provide additional funding to schools to improve ventilation.

This will help not only reduce spread of #COVID19 but also reduce the impact of #airpollution which is harming our kids' health in multiple ways.
2/ Provide HEPA air filtration devices to all schools for September as an immediate measure while schools improve their ventilation.

Sensible strategy as improving ventilation takes time and we need to keep children safe in the interim.
Read 11 tweets
Jul 7
My husband has tested positive for COVID this week. The mystery of the ‘gastro bug’ we’ve had has been solved…mine and J’s LFTs were neg, but husband couldn’t have got it anywhere else other than the house 1/
On Monday he wasn’t feeling great but went to the school production. He was LFT neg but wore an FFP2 mask throughout. I also emailed school in the morning to ensure the doors would be open to ventilate the hall (they were). Hopefully no-one else was put at risk 2/
Jasmin had removed her FFP2 in school for the rehearsals of the production. I’m pretty sure that’s where she picked it up. No HEPAs in the hall, lots of singing and shouting at close range. I then looked after her when she was ill and started feeling unwell 5 days later 3/
Read 9 tweets
Jul 5
From a prominent figure in paediatrics, statements like this are deeply disappointing. There are thousands of families with #longcovidkids who are struggling. Many of us understand the symptoms kids are suffering as we have taken the time to ask, and we live & breathe it daily 1/
Dr Ladhani claims survey data is ‘unscientific’, how else does one collect data on a large scale about symptoms where little other research currently exists? He is an author on the CLoCK study which based on survey data. Is that therefore unscientific? 2/
There are 12 million kids in the UK, a prevalence of long covid at 8 weeks of 1.8% as stated is still 216,000. Some may have loss of taste/smell, perhaps deemed not serious? But that’s 2/5 senses in a developing brain- awful, I know kids with serious eating issues due to this 3/
Read 10 tweets
Jun 18
In May the @RCPCHtweets published an updated summary of 'key evidence for the effect of #COVID19 in children; rcpch.ac.uk/resources/covi…

This is the entire section on #longcovidkids, note the inverted commas 'Long COVID'. Three publications cited, 2 from 2020 and 1 from 2021 (1)
The cited 2021 ISARIC cohort study shows 25% of children have persistent symptoms post-hospitalisation, with nearly 1:10 experiencing multi-system involvement. No studies in non-hospitalised children are included. Why? Let's look at how studies were selected (2)
It seems in June 2020, the selection process for articles was narrowed, with only research deemed 'relevant' or high quality by consensus being included, 'a clinical academic' was involved. So all articles published on non-hospitalised #LongCOVIDkids since then are excluded (3)
Read 8 tweets
May 17
I wanted to share a story of a patient I saw this week. Very fit man aged 52, previous marathon runner, suspected mild #COVID19 March 2020. Extensively investigated by cardiology in 2020 for symptoms of chest pain, dizziness and struggling to exercise 1/
Cardiac MR showed some fibrosis suggestive of previous myocarditis, but all other Ix were normal. By November 2021 he was back to running 15km, but very slow improvement. Dec 2021 had booster followed by COVID re-infection over a couple of weeks (again mild symptoms) 2/
After this he developed similar symptoms to 2020, dizziness on walking up stairs, chest pain (anginal sounding). We did his spirometry and gas transfer - completely normal. On the 1 minute sit-to-stand he desaturated to 92%, HR increased from 49 to 110 and he became quite SOB 3/
Read 13 tweets
May 7
After careful consideration, I have decided to go public with this 🧵My daughter Jasmin has had #LongCOVID for the past 16 months. I tried for >6 months to get her research bloods done in the UK. Hitting brick walls, in desperation took her to Germany in Feb.
#longcovidkids Image
Her fluorescent microscopy (left) showed very hyperactivated sticky platelets. Mine are on the right for comparison. She also had microclots and evidence of endothelial damage (but latter not severe). I believe she was the first UK child under 12 to have these tests done. ImageImage
The platelets and microclots show that her blood is 'hypercoaguable' - too sticky. These may be blocking up the very small blood vessels that allow oxygen into muscles and nerves, which could explain some of her symptoms. 'Fatigue' = tissue hypoxia? Autonomic dysfunction = SFN?
Read 17 tweets

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