I'm begging you, please, listen to those of us who have #LongCovid from the 1st wave.
We're sharing experiences & medical traumas to try to help you understand how damaging long term affects of Covid are to help protect you from suffering the same fate. #TreatLongCovid
1/7
Sharing isn't easy.
Cognitive decline coupled w emotional impact of so much hate & denial we face takes a toll.
We keep shouting into the void hoping our voices will help others understand how absolutely necessary it is to protect yourself & others. #COVIDisAirborne
2/7
Many of us have multisystem degeneration & damage & have been disabled by Covid.
We've had to fight for our lives everyday while being dismissed by friends, family, & drs.
Our advocacy is based in our survival & much of hc now is based in what we've learned along the way.
3/7
"Doing my own research" & self advocacy within hc system has literally saved my life.
Support & research shared from others in the #LongCovid, #NEISvoid, #teamclots, #MedTwitter, #MECFS, & #EDS communities has given me tools to continue my fight & I'm forever grateful.
4/7
Some days, support from these communities are the only thing that keeps me going.
Degeneration of my mind & body is accelerating more rapidly now.
I may not have the capacity to advocate/engage many days but push thru bc I know importance of continuing to at least try.
5/7
I'm exhausted from fighting.
I have significant brain damage, debilitating pain & 4 inoperable #brainAneurysms threatening to take me at any time.
I've lost my brother & friends to covid.
I've lost everything.
It's ALOT to deal with. #longcovidbraindamage
6/7
I am begging you, please, listen to those of us who continue to share our LC journeys.
We are trying to help you understand the importance of protecting yourself & others & save you from this nightmare.
You don't want this. #LongCovid
7/7
I've received msgs suggesting alternative treatments or asking how to help.
I'm not in a space where alt treatments are safe, if you want to help pls donate to my med fund or share.
Day 823 of my #longcovid battle
a thread.
This will mostly be rambling, screaming out into the void as I've felt even more disconnected as my health continues to deteriorate.
Took cpl hrs to get this out & is all over the place but that's ok too.
1/21
"mild" case of covid February 2020 led to LC rearing it's ugly head by June 2020. In 1styear, I went from being healthy & active to suffering 100+ symptoms.
Each dr visit & scan found further degeneration & damage. I was met w dismissal & gaslighting from med community.
2/21
I found great solace & help in the LC communities on social media. It gave me strength to keep advocating for healthcare & finding ways to self manage symptoms until I could find a dr to listen.
I firmly believe I wouldn't have survived w out y'all.
3/21