Rose Matthews Profile picture
Jul 15, 2022 26 tweets 6 min read Read on X
#Thread
What therapy has taught me.
After several unsuccessful attempts to resolve some painful and deep seated issues I finally found a therapist I had the right kind of understanding and rapport with to address this effectively.
They were autistic too.
We had lots in common.
1/
Pacing was important.
There were places I wasn’t ready to go at the outset.
Things evolved gradually.
Situations occurred in my life that led to us exploring specific issues.
It felt natural not forced.
Everything happened in its own good time.
Some things resolved themselves.
2/
There was a lot about being autistic that I didn’t need to explain.
This was liberating.
Implicit acceptance of what that meant was combined with active discussion about effective strategies.
Knowing that there were certain things that many of us struggle with was validating.
3/
The body of autistic experience the therapist drew on was not just from their own personal journey but from anonymised journeys of everyone else they had ever worked with.
They were connected to a huge body of knowledge, not just from theory, but from real lives. I was too.
4/
Therapy comes at quite a cost.
It wasn’t just the financial commitment (it’s rare to get this kind of therapy on the NHS), there was a time and energy commitment too.
I had to be prepared to tackle painful things, which couldn’t be avoided when I began to re-examine my life.
5/
Being able to address the most sensitive and personal aspects’ of my self safely was hugely important given my experiences of being betrayed and abused.
I often doubted that this would be possible. My defences were like a knee jerk reaction.
But very gradually I was able to.
6/
I was able to see how my natural characteristics and reactions had made me vulnerable in certain situations, and that this was not my fault.
Even more importantly, I was able to consider what actions and boundaries I might need to put in place to protect myself from harm now.
6/
The world needs to change in terms of the treatment of neurodivergent people, but while we’re waiting it’s important to protect ourselves.
Through therapy I realised I was far too accepting of the harmful behaviours of others.
I didn’t put boundaries in place quickly enough.
7/
This had a lot to do with empathy.
I recognised other people’s abusive behaviour towards me was sometimes an expression of self loathing and I didn’t want to add to this.
Instead of thinking I had run from situations prematurely, I came to realise I’d tended to stay too long.
8/
Something else that I’ve been working on is making more deliberate choices.
Almost everything we do has an opportunity cost.
How we spend our time, and the people we have around us, matter hugely, especially for me at the age of 62.
My lifespan is finite. I’m reaching the end.
9/
Sometimes we have no choice but to react to unexpected events.
Crises are a regular part of life.
But some of the tumultuousness can be avoided when we start to make proactive decisions in our own best interests.
To do this we really do need to believe that we deserve it.
10/
It also means getting comfortable with potentially painful truths.
We can’t be perfect. We’ll always make mistakes however hard we try.
Some people may not like, respect or understand us, however much we attempt to engage with them.
Regardless of this we can accept our self.
11/
Ultimately we are defined not so much by the way others see us, as by the way we see ourselves.
So much depends on this.
Placating and appeasing other people by trying to be what they want us to be is doomed to failure.
It’s an unhappy compromise where no one really benefits.
12/
There’s a real sense of liberation in beginning to sense who we are, and act on this, especially when it has been so suppressed.
For me the solidarity and community of connectedness with other autistic people, including my therapist, has been a really important part of this.
13/
I first contacted the therapist I’ve been seeing in October 2021.
This was what I said in my email:
“I just watched the YouTube interview with you posted by Ausome Ireland. I’m still processing what was discussed but I feel so heartened by it.”
14/
“I realised I was autistic two years ago when I was 58 and got my diagnosis a few weeks later. At that time I’d reached a crisis point in terms of my ability to function at work.”
15/
“Burnout as I now recognise it, the effects of which seem to have been cumulative in the course of my career.”
16/
“I have tried various types of therapy since diagnosis for anxiety which is probably largely related to previous trauma. Relate couples counselling with my husband wasn’t effective, and IAPT and CMHT sessions left me even more traumatised.”
17/
“Earlier in my career I was a mental health social worker and lecturer so it was hard to get ‘help’ which was so obviously harmful, and then risk beIng seen as ‘difficult‘ for not wanting to continue with it.”
18/
“If you have any capacity to take on private clients at any point I would be grateful if you could get in touch. I have come to terms with being autistic with the help of online communities of autistic people, and reached a much better understanding of myself.”
19/
“There is still work to do though so I can enter old age less fearfully.”
Thanks to the work I’ve done with my #ActuallyAutistic therapist I now feel that I have reached that point.
I can look forwards and backwards in my life, and at my current situation, and I am unafraid.
20/
‘Everyone should be born into this world happy
and loving everything.
But in truth it rarely works that way.
For myself, I have spent my life clamoring toward it.
Halleluiah, anyway I’m not where I started!’
#MaryOliver
21/ A photo of a seagull in fli...
‘And have you too been trudging like that, sometimes
almost forgetting how wondrous the world is
and how miraculously kind some people can be?
And have you too decided that probably nothing important
is ever easy?
Not, say, for the first sixty years.’
#MaryOliver
22/
‘Halleluiah, I’m sixty now, and even a little more,
and some days I feel I have wings.’
‘Halleluiah!’ by Mary Oliver, from ‘Wild and Previous Life’.
I believe everyone #ActuallyAutistic who wants to, should be able to see an autistic therapist.
#Autistic
#AutisticElders
23/end
Wild and Precious Life!
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More from @NortherlyRose

Apr 3
#Thread
#Autism awareness and acceptance really matter because stigma, prejudice, and lack of trauma informed, ‘experience sensitive’ approaches perpetuate structural inequalities and injustices.
In my locality #SocialCare needs of autistic adults come under the #MH service.
1/
I saw an unqualified Assistant Psychologist in the #CMHT after my #autism diagnosis.
I wanted help with the existential crisis of late autism diagnosis but ended up being gaslighted.
I realised what was going on and discharged myself after explained what iatrogenic harm meant.
2/
A few months ago a combination of factors (none of them to do with mental health) meant that I needed social care support.
Because I am #Autistic I was told that my assessment would be carried out by the MH team.
I was so traumatised by my last contact with them I declined.
3/
Read 13 tweets
Feb 18
#Thread
Adjusting to a very late in life #autism discovery.
How my life has changed 5+ years on.
Like many #Autistic people I had experienced repeated episodes of #burnout and #trauma.
By the time I reached my late 50s I was exhausted.
I had no energy to get going again.
1/
This quiet breakdown could easily have gone unnoticed or been explained by a number of other things.
I’d always been quirky and different, a highly sensitive, deeply empathic person.
My distress could have been attributed to a personality issue, or to anxiety
and depression.
2/
Through good fortune and serendipity I found my way to a service that helped me to start making sense of my life.
The process of acceptance, adjustment, and self-advocacy has continued since then.
It’s not enough for me to adapt, other people need to make accommodations too.
3/
Read 16 tweets
Jan 2
I feel blessed to have reached the age of 64 with much of my life still intact.
When everything began to unravel in my 50s it wasn’t clear why.
My career (which had been reasonably successful, if somewhat disjointed) got derailed.
My personal life started falling apart too.
1/
Without understanding why this was happening, it would have been impossible to remedy the situation.
I’d have carried on pulling at the loose threads until there was nothing left at all.
Discovering that I was #Autistic gave me the answers I needed to start to repair my life.
2/
What needed fixing wasn’t me, it was my living and working environments, and communication between me and other people.
Although I’d realised that interpretation and translation prevented misunderstandings, I hadn’t recognised my language and culture were distinctly Autistic.
3/
Read 7 tweets
Nov 16, 2022
I’m celebrating the 4th #autieversary #autiversary of getting my v late in life #autism diagnosis today.
Here’s a thread of some of the #threads I’ve written along the way, starting with my 1st anniversary when I wrote about my beloved dogs.
#ActuallyAutistic
#AutisticTwitter
1/
Nearly two years on from my #diagnosis I wrote about how much I had discovered about #autism and myself.
2/
On the second anniversary of my #autism diagnosis I wrote a thread about #bullying (not realising that it was my #autieversary at the time). It was very appropriate though, as bullying and abuse have had a huge impact on me, especially in adulthood.
#ActuallyAutistic
3/
Read 8 tweets
Oct 29, 2022
#Thread
Rebuilding a career after a late in life autism diagnosis.
Personal reflections of a very late discovered #ActuallyAutistic person, 4 years on.
1/
Burnout was a factor in me finally finding out I was autistic.
I’d become overwhelmed and exhausted.
I’d drifted to a halt, and then couldn’t get going again.
I was overloaded by being bullied at work, being in perimenopause, unresolved trauma and my partner’s serious illness.
2/
A demanding new job immediately after my diagnosis didn’t kickstart recovery from burnout like it would have done previously.
What the psychologist had told me about taking ‘baby steps’ was true, even though I didn’t want it to be.
I finally realised I couldn’t afford not to.
3/
Read 23 tweets
Oct 14, 2022
#Thread
Why it’s sometimes difficult to know how unwell I am.
A personal autistic perspective.
I’ve been feeling rotten since Sunday, with some kind of respiratory illness.
After 3 years of respite from colds and flu it came as a bit of a shock.
I haven’t had Covid yet either.
1/
I wasn’t too worried to begin with, as my partner was ill before me.
After 2 or 3 days he started to feel better, and I assumed I’d be the same.
Unfortunately I’ve been getting steadily worse.
Less energy.
More coughing.
Less desire to eat.
More sleeplessness.
Strange pains.
2/
I’m almost always in some kind of pain so that in itself isn’t a reliable indicator of being unwell.
Nor is severe fatigue, which occurs so regularly it seems normal.
I rely on objective symptoms like fevers, rashes and swellings.
Tests are a bonus, if they are available.
3/
Read 21 tweets

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