am starting to prepare the data from our #vaccineinjuries #PostVacSyndrome survey for analysis today

just having a look at the raw data output and this stands out. most participants report no health problem that affected their day-to-day living prior to the offending vaccine screenshot of a survey question: Before getting the COVID19 Screenshot of survey question asking: "After the COVID1
after the offending vax general health was reduced to being very poor

even those who had no indication something could go wrong, who led completely unrestricted lives, had their world turned upside down after vaccination
many already chronically ill folk seem to have on their mind that they might react badly (and there was a distinct lack of chronic illness patients in trials), and indeed it seems ME and long COVID patients have a high prevalence of severe reactions (maybe around 20 %).
but for many who the vaccine ruined, such side effects were completely unexpected. in other words, just like #LongCovid and post-infection syndromes (e.g. #MECFS, #LymeDisease), a severe reaction could hit any of us
important for #MedTwitter: most #VaccineInjured #PostVacSyndrome patients who had another vaccine after their offending dose got WORSE.

we should NOT be recommending further #covidvaccines in this group

@P_H_S_Official @NHSScotland @UKHSA @NHSuk @gmcuk @NICEComms screenshot of survey question reading: If you have had anoth
nearly half (43 %) of those who answered this question have been off work for 6 months or more or have had to stop working completely screenshot of survey reading: How long have you had off work
this surprises me; most #PostVacSyndrome patients who responded to our survey did not get acute flu-like symptoms screenshot of survey question: Did you experience the expect
last up before i get cracking actually sorting the data:

most reactions occurred within a week, very much in line with an acute inflammatory response screenshot of survey answer: How long after the offending CO
just wanna give a h/t to @React19org in particular who have been collecting fantastic data for a long while now

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More from @angryhacademic

Nov 27, 2024
Had an appointment with my best dr today. The only dr i fully 100 % trust. Some points for #medtwitter:

1. I trust him because he believes me, first and foremost

2. He knows i struggle being upright and with light so he turns the lights down & preps a couch for me to lie on
3. He knows i am clinically vulnerable so wears a respirator, and if med students/whoever are observing, he gets them to mask up too. Also has the window cracked for ventilation
4. Even though i see him for very specific things, he provides space for me to talk through how EVERYTHING has been since we last spoke. He writes up any symptom changes in my notes so its an accurate record. This is important as it clearly shows i am still highly symptomatic
Read 12 tweets
Nov 22, 2024
Update to the @NHSScotland #POTS pathway disaster:
In EDIT 7, I went through a bunch of emails & one showed Dr Claire Taylor was invited to help on the pathway. I wanted to know Dr Taylor's involvement so I FOI'd any emails between her & NSS/POTS groups👇🏻
dontbelievehype.co.uk/covid-%26-vacc… x.com/angryhacademic…
As you will see in the blog, Dr Taylor had no substantive involvement. Having seen the pathway, this is no surprise. She was clearly unable to attend meetings due to her clinic. But what is maybe a surprise is that Dr Taylor absolutely hammered NHS Lothian's approach to POTS
Her critique was sent at a similar time to my complaint, so maybe our collective efforts were the trigger towards the pathway being retracted.
Read 7 tweets
Nov 13, 2024
Latest paper!
Venesection for chronic illness: N-of-1 blinded randomised controlled trial


As some of you may recall, I did a n-of-1 study on therapeutic phlebotomy (venesection). The results were surprising...🧵

#postvac #longcovid #chronicillnessdoi.org/10.31219/osf.i…
Brief recap on methods:
This was a blinded randomised placebo controlled n-of-1 trial. What does that mean?

Blinded: this means I did not know if I was truly getting blood taken, or if it was sham (placebo) phlebotomy
To do this, a suitably qualified friend would take my blood as normal using either proper tubes (real), or dudded tubes (sham). I was blindfolded & wore noise cancelling headphones so didnt know what I was having done, & tubes were disposed of before I took the blindfold off
Read 20 tweets
Nov 1, 2024
A NEW SIGN FOR THE DETECTION OF MALINGERING AND FUNCTIONAL PARESIS OF THE LOWER EXTREMITIES (Hoover, 1908)


This is the paper that defined the Hoover's sign. Let's delve in...sci-hub.se/10.1001/jama.1…
It starts that this is a sign Hoover as seen in 4 (yes, FOUR) patients, but he feels justified in saying it's VERY IMPORTANT The sign I wish to describe is one which I have employed for the past two years. Although the cases observed number only four, I feel justified in attaching great importance to the sign because it is dependent on a normal function, which I find always exhibited in healthy persons and invariably present in the sound leg of patients suffering from hemiplegia or paresis of one leg due to some pathologic lesion.
He describes the response in hemiparetic patients, then notes that two cases claiming for personal injury did not respond the same

It get's worse... In two cases in which paresis of one leg was claimed by the plaintiffs in suits for personal injuries, there were wanting the characteristic physical signs to sustain the claim of paresis of the lower extremity as the result of injuries. Furthermore, in both of these cases, when the patient was asked to lift the normal leg off the couch, the leg which was alleged to be very paretic was opposed strongly against the surface when resistance was offered to lifting the normal leg. When the patient was requested to lift the paretic leg, there was an apparent attempt to respond to my demand, but t...
Read 11 tweets
Oct 7, 2024
I previously explained how antihistamines work: x.com/angryhacademic…

This post will talk through different mast cell stabilisers, which are also common medications for mast cell activation syndrome (MCAS)

Blog: lc-sc.co.uk/bodily-systems…

#longcovid #postvac #MCAS
💊 Examples: Sodium cromolyn, ketotifen, vit C, quercetin, luteolin

🧪 Main mechanism: Unlike antihistamines, which block the histamine receptor as their primary mechanism of action, mast cell stabilisers help prevent mast cells from spewing out their contents ("degranulation")
In MCAS, this degranulation is inappropriate, with mast cells reacting to benign triggers such as foods, air pressure, or scents (among many other things). Therefore, stabilising mast cells can help with some histamine issues...
Read 26 tweets
Oct 6, 2024
Mast cell activation syndrome (#MCAS) & histamine intolerance are common features for many #longcovid & #PostVac patients. 🧵on antihistamines which are commonly used in MCAS & histamine intolerance. (I will do another post on mast cell stabilisers)
lc-sc.co.uk/bodily-systems…
There are different types of antihistamines with different actions, but they all block a histamine receptor so histamine can no longer attach to the receptor & cause chaos. I.e. antihistamines do not stop histamine production, they just stop histamine from working properly
First-generation H1 antihistamines:
💊 Examples: Diphenhydramine, chlorpheniramine, brompheniramine

🧪 Main mechanism: These work by blocking the H1 receptor, which has roles in hypersensitive reactions (e.g. wheezing, itching, coughing, blood pressure dropping)...
Read 19 tweets

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