Putrino Lab Profile picture
Aug 18 6 tweets 5 min read
Of all the hate and trolling I catch on here because of #LongCovid, I tend to be able to chuckle, shake my head and paraphrase @BreneBrown with an Aussie “accent”, you know? Something like “if you’re not here in the arena with me then maybe just shut the f*ck up”. But the one 1/
that just befuddles me the most is this group of clowns claiming that we’re selling a false narrative of #longCovid because we have something to gain from “selling” LC. Let me be clear: prior to the pandemic, my life and career were doing just great. In fact other than meeting 2/
some total badasses like @VirusesImmunity, @doctorasadkhan, @resiapretorius, @microbeminded2, @meghanor, @ahandvanish, @ItsAngInLA, @hmkyal, @fi_lowenstein, @AlisonSbrana and way too many others to name, there has been nothing but personal and professional sacrifice to take on 3/
this work…and we do it because we know it pales in comparison to what everyone with #longCovid, #MECFS, #Lyme and other infection-associated chronic diseases face on the daily. So we do it, and we do it with purpose. In fact, to all LC minimizers and trolls, I would say that 4/
the only difference between me and you is that when someone yelled “fire”, my colleagues and I ran into the burning building. You stood outside, looked at the flames and complained about your neighbors. I will never stop choosing to run into that building for the community. 5/
And until you choose to do the same? Maybe just try shutting the f*ck up. Good morning to everyone except #longCovid minimizers! 🤌🏼 (end)

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More from @PutrinoLab

Aug 14
It has been a few days since the release of our latest #LongCovid paper: an incredible amount of work from @VirusesImmunity and her team, as well as so many other brilliant and hardworking colleagues. As you might imagine it has generated quite a bit of 1/ medrxiv.org/content/10.110…
helpful discourse. I wanted to take some time to respond to some of the comments. First, and most importantly, we have always framed this project as a “pilot”. This paper was never intended to be definitive: there are incomplete elements of these data, and there is 2/
much more that needs to be done, however we saw many important things that we wanted to share with the #LongCovid (and the infection-associated chronic disease) community ASAP, so we worked to get this out fast. With that in mind, let’s discuss a few things:
1. Most important: 3/
Read 14 tweets
Aug 1
Because I haven't seen it posted here, I just wanted to share what our "enemies" (insurers, worker's comp, long-term disability auditors) are saying when people with #LongCovid are trying to access rights that they are entitled to since they were diagnosed with 🧵(1/)
a recognized disability under the ADA. First, they will attack the assumption that #COVID19 infection ever occurred. If you DON'T have a +ve PCR on record, they will go after that. If you DO have a PCR record, but no antibodies (despite the SCIENCE that 5-20% of people don't (2/)
seroconvert). So, unless you have BOTH a +ve PCR AND a +ve AB test on record, you can expect an aggressive and robust argument that you never had COVID to begin with from these scumbags. Next they will attack the validity of your symptoms: fatigue? shortness of breath (3/)
Read 10 tweets
Jul 15
Wow. I want to thank this incredible online #LongCovid fam/community for the outpouring of support in the wake of some truly bad decision-making from the @NIH. I’ve now learned around the water-cooler that I’m in some truly phenomenal company in terms of who did not get funded
I just want everyone to know that @resiapretorius, @GeneticHeartDoc and I had a huddle post-decision and we are resolved to make this study happen by any means necessary: it is too important to let wait. A humble, heartfelt thanks to everyone suggesting crowdfunding: our
institution has strict rules
about this, but we are looking into options. In the meantime, we’re not going anywhere. We, this community, are going to solve this. With or without entities like the NIH, we will solve this because it is the *community* that knows the right
Read 6 tweets
Jun 17
In addition to the ever-growing #LongCovid toll, here’s something that weighs on me daily since our governments collectively decided the pandemic was over and has begun a gradual retraction of protections ever since:
I work at a hospital in NYC. In order for me to get to 1/
work, I rely on public transportation. For me to take a cab to and from work would run me ~$160/day which is not feasible and so here I am, every day being forced to share a subway car with ~50% of unmasked people that want the pandemic to be done. I see all my other HCWs 2/
in scrubs and masks, trying to find space/avoid unmasked fools who somehow seem to ignore all cues for personal space and I feel as though we are all thinking the same thing - what if this is the train ride that gives me #COVID19 and I pass it onto a patient. The single, 3/
Read 8 tweets
Jun 16
Wonderful to see this pre-pandemic work finally published. We were studying whether big wave surfers and regular wave surfers differed in their cognitive responses to affective (threatening) images. frontiersin.org/articles/10.33…
🧵1/
The reason we were asking this question was to really try to understand why anyone, without being asked, would just jump on a 100-ft wave and ride it...for FUN(!). We saw some things that were expected - big wave surfers activate areas of their brains associated with emotion 2/
regulation during the image presentation more readily than regular wave surfers: we've seen these sorts of things before in elite warfighters vs. regulars, and we also saw some more novel findings related to regions in the brainstem that activated differently between the two 3/
Read 5 tweets
Jun 14
Our team has been so thrilled to be given the opportunity to contribute to this wonderful #LongCovid paper led by @michelle_monje and @VirusesImmunity. Three quick, pragmatic takeaways (from our perspective) that this work highlights (👶🏻🧵) cell.com/cell/fulltext/… 1/
1. “Animal model of #LongCovid”. I really can’t say this enough - if can create an animal model of a chronic illness simply by exposing the animal to a virus, then that chronic illness has an organic (not psychogenic) cause. Conversation over for those that aim to psychologize 2/
2. CCL11 levels are associated with cognitive symptoms. The hypothesis that many individual symptoms of #LongCovid may have unique biomarker associations is worth exploring and may explain why bloodwork is all over the map in many. We need to keep looking for more associations 3/
Read 4 tweets

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