So I guess a few days ago someone of vague, national significance with a huge Twitter following declared that the pandemic is over. Don’t get me wrong, I’m overjoyed. Good riddance. But I *do* have a few questions. 1/
1. Just a few months ago, the @CDCgov (hi team!) released a paper saying that 1 in 5 acute COVID cases end in #LongCovid. Is that done now? Are there no longer cases of Long COVID being caused by #COVID? Or are we just ignoring the problem? 2/
2. @CDCgov (we must stop meeting like this!) published a second paper that taught us that every acute #COVID reinfection increased your risk of death by 3%. Three hundred americans a day are still dying from COVID. Is this just the cost of doing business now? 3/
3. OK. So, between the #vaccines (which can cause vaccine injury in some folks) and the new variants, most infections are “mild”, right? So #COVID is only *really* a threat to the very old and very sick, right (remember we’re ignoring #LongCovid risk)? Cool. So, follow-up… 4/
4. Before declaring the pandemic to be over, surely we put a safety net in place for the very old and very sick? Like, you’re excused from things like jury duty (just to keep you alive let’s forget about your *right* to participate), medical staff will do house calls, etc? 5/
5. And we set up social support infrastructure for these “high risk” people, yeah? Because we know the science that social isolation causes health issues equivalent to smoking 17 cigarettes/day, so we wouldn’t just leave them alone while the world “gets on with it”, right? 6/
I’m just asking these questions because I work in healthcare and I haven’t heard about any of these strategies in place before the pandemic was proclaimed to be over, but I’m sure they must be in place because otherwise that statement would be reckless and deadly to millions 7/
(To the chronic illness community I apologize for the tone of this tweet I’m not trying to trivialize your plight but this was the only way I could communicate these things without having a rage attack) end
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With some new followers on board, I wanted to take the time to re-introduce myself to the #LongCovid community (and everyone else). I’m David Putrino: Director of Rehab Innovation at @MountSinaiNYC, Associate Prof at @MountSinaiRehab for @IcahnMountSinai 1/
I’m a physical therapist with a PhD in neuroscience, and my first passion was working with folks with neurological disabilities. As a kid who experienced a recovery from an acquired brain injury, this is a passion that runs very deep. 2/
Of all the hate and trolling I catch on here because of #LongCovid, I tend to be able to chuckle, shake my head and paraphrase @BreneBrown with an Aussie “accent”, you know? Something like “if you’re not here in the arena with me then maybe just shut the f*ck up”. But the one 1/
that just befuddles me the most is this group of clowns claiming that we’re selling a false narrative of #longCovid because we have something to gain from “selling” LC. Let me be clear: prior to the pandemic, my life and career were doing just great. In fact other than meeting 2/
It has been a few days since the release of our latest #LongCovid paper: an incredible amount of work from @VirusesImmunity and her team, as well as so many other brilliant and hardworking colleagues. As you might imagine it has generated quite a bit of 1/ medrxiv.org/content/10.110…
helpful discourse. I wanted to take some time to respond to some of the comments. First, and most importantly, we have always framed this project as a “pilot”. This paper was never intended to be definitive: there are incomplete elements of these data, and there is 2/
much more that needs to be done, however we saw many important things that we wanted to share with the #LongCovid (and the infection-associated chronic disease) community ASAP, so we worked to get this out fast. With that in mind, let’s discuss a few things: 1. Most important: 3/
Because I haven't seen it posted here, I just wanted to share what our "enemies" (insurers, worker's comp, long-term disability auditors) are saying when people with #LongCovid are trying to access rights that they are entitled to since they were diagnosed with 🧵(1/)
a recognized disability under the ADA. First, they will attack the assumption that #COVID19 infection ever occurred. If you DON'T have a +ve PCR on record, they will go after that. If you DO have a PCR record, but no antibodies (despite the SCIENCE that 5-20% of people don't (2/)
seroconvert). So, unless you have BOTH a +ve PCR AND a +ve AB test on record, you can expect an aggressive and robust argument that you never had COVID to begin with from these scumbags. Next they will attack the validity of your symptoms: fatigue? shortness of breath (3/)
Wow. I want to thank this incredible online #LongCovid fam/community for the outpouring of support in the wake of some truly bad decision-making from the @NIH. I’ve now learned around the water-cooler that I’m in some truly phenomenal company in terms of who did not get funded
I just want everyone to know that @resiapretorius, @GeneticHeartDoc and I had a huddle post-decision and we are resolved to make this study happen by any means necessary: it is too important to let wait. A humble, heartfelt thanks to everyone suggesting crowdfunding: our
institution has strict rules
about this, but we are looking into options. In the meantime, we’re not going anywhere. We, this community, are going to solve this. With or without entities like the NIH, we will solve this because it is the *community* that knows the right
In addition to the ever-growing #LongCovid toll, here’s something that weighs on me daily since our governments collectively decided the pandemic was over and has begun a gradual retraction of protections ever since:
I work at a hospital in NYC. In order for me to get to 1/
work, I rely on public transportation. For me to take a cab to and from work would run me ~$160/day which is not feasible and so here I am, every day being forced to share a subway car with ~50% of unmasked people that want the pandemic to be done. I see all my other HCWs 2/
in scrubs and masks, trying to find space/avoid unmasked fools who somehow seem to ignore all cues for personal space and I feel as though we are all thinking the same thing - what if this is the train ride that gives me #COVID19 and I pass it onto a patient. The single, 3/