I've recovered from two severe, years-long burnouts, and several weeks-to-months-long ones. I've also been burnout free since 2015!
Over the last few years, I've been helping others create their own versions of this journey.
Everyone is unique, and every recovery journey is unique. Nevertheless, there are some pretty consistent patterns, and my pattern-loving brain has synthesized my own take on what it takes to get out of burnout, and stay out.
What recovery is not: if doing things the way you've been doing them is leading to burn out, having more energy to do those same things even more and for longer, isn't going to give you a better life. It will lead to relapse.
The only way "recovery" will be sustainable is if you make a new life that works with your brain instead of against it. A life that works with your brain and body and medical needs and life experiences and traumas and passions and all of the parts of who you are.
I’ve grouped these into parts, not steps. These aren't sequential, and you will likely move back-and-forth between them many times before you've created your fully-recovered, new autism-positive life.
Part 1: Unlearn internalized criticism
When you're in the depths of burnout, you may not have the energy to make concrete changes to your life. You don't have to. You can start with purely mental changes.
Are there things that you say to yourself that you would never say aloud? Criticism that you level against yourself that would be considered abuse if you said them to someone else? How do those thoughts affect you?
What do you notice when you tell yourself that you're [fill in the blank]? Are you more motivated and interested in doing the thing? Or do you do it but it's forcing yourself? Or do you procrastinate, want to eat, scroll through Twitter, shut down, lash out?
Does it drain your energy or give you energy? Everything in burnout recovery comes down to energy management. Does something give you energy or cost you energy?
Finding and unlearning all the different kinds of negative self-talk that you’ve picked up over the years makes an enormous difference in energy, anxiety, stress, black-and-white thinking, motivation, ability to communicate with others, and spreads throughout every area of life.
Part 2: Reduce stressors
This is the part where you find the things that are draining your energy and change, improve, or get rid of them, as appropriate.
This can include anything from unmet sensory needs to people who are emotionally abusive, passive aggressive or pressuring you.
Find anything and everything that drains your energy. You don't necessarily need to change any of it right away, unless you want to and have the energy to do that. Simply noticing and learning more about yourself can make a big difference.
Ask questions like:
Does this give me energy or drain it?
Do I feel better after I do this or worse?
What about this situation is bothering me? Or feels restorative?
Am I more/less functional, more/less communicative, more/less able to deal with things after I do this?
Part 3: Gift yourself rest
When you don't have energy to do things, don't do things. As much as possible, when possible, to whatever extent possible, let yourself off the hook for as much as you can.
Take moments, hours, days when you can come on and do less, or even nothing. Without guilt (okay, there might be some guilt, so go back to part one and work through some more of that internalized criticism).
Part 4: Make small changes, slowly
Whenever you have a bit of energy, you can make small changes towards experimenting with options that might suit you better.
Actually making changes will take patience, creativity, and trial and error. You won't always get it right the first time, or the dozenth, and sometimes you will. Either way is completely fine.
You're forging your own way ahead. It's not a clearly marked path like the one that ableist society tried to get you to follow (but how well did that work out?). So it's not going to be clear and straightforward, yet you can figure it out. You can figure yourself out.
So, when you have a tiny little bit of energy to work with, change a tiny little bit, or figure out a little bit more about yourself, even if it is asking questions and processing your internal reactions to things.
Over time, those small changes will add up to make a significant positive impact through many areas of your life.
Even the areas where you can't make any changes will be easier to deal with bc you'll have more energy from the parts of your life where you can make improvements.
Part 5: Give yourself credit!
Remind yourself frequently that you're in this mess because our modern society is designed to be disadvantageous to our neurotype. That's not your personal failure. And just existing in this world takes so much more work for you than for others.
So your every accomplishment means far more than it does coming from others.
You’re doing amazing at tackling huge monumental tasks daily with with minimal resources. When those minimal resources aren’t enough for other's expectations, it’s not your personal failure.
Your past, too, is a series of events in which you struggled mightily and worked far harder than others, with limited tools to get the job done, and you did your absolute best at any given moment. If others didn't see it, that's their fault, not yours.
Last thoughts
Sustainable recovery means creating a new internal and external reality that is kind to your neurology, sensory needs, personal history, and identity in all its wonderful aspects.
Your new life may look completely different than the current one, or only a little different. Sometimes the internal stuff is much much bigger deal than the external stuff. Sometimes it's the external stuff that's a bigger deal and needs more change.
Your journey will be unique, but you are not alone.
It is possible you can do it yourself, but it's easier with support. That might be a friend or family member, or a few. It might be an autistic life coach or therapist. It might be random people that you find along the way.
It all starts with you wanting it badly enough to use any scrap of energy you have to find the first tiny thing that you want to make better.
If you're wondering if you are in autistic burnout, here's my thread on the common signs:
🧵 What your senses experience is real. What you feel is what you feel. If you're cold when others are hot, or overwhelmed by noise when others are not, you really are cold, or overwhelmed, etc.
Acknowledging sensory experiences is the beginning of acceptance.
Instead of responding like, "You're cold? It's not cold in here. It's hot. Stop complaining. Get over it."
Try responding like, "You're cold? That's interesting, as I'm hot. Would you like a sweater or blanket?"
Many of us autistics grew up with people around us ignoring, dismissing, or punishing our sensory experiences. As adults, even a little validation can feel like a huge relief.
Also, all comparisons (more, increased, longer, etc) are using YOUR personal best functional time in life as a baseline. This is not a comparison to others, this is a comparison to you alone.
When I notice I'm dissociating out of habit or boredom, and don't want to, I find it helps to feel sensations in my physical body as a way to stay in the present moment. Stimming or moving helps that, or deep breathing.
This sensations could be anything. Heat or cold, the movement of a finger, discomfort, the feel of clothes against my skin, the sensation of my lungs expanding. Anything, so long as I don't judge it as good or bad, just notice. It's about staying in the moment, nothing else.
A few minutes of this noticing, and I find I'm not dissociating and am more amenable to doing something useful. It still takes a bit of effort to switch tracks, but it's now possible.
One of our suggestions: use more tone tags. And in person, tell me when you are being sarcastic/joking if it looks like I don't get it.
Also, understand that I may say the wrong thing, but I'm usually not trying to be rude, so if something comes out wrong, please remember I'm not trying to be offensive.