Discover and read the best of Twitter Threads about #askingautistics

Most recents (24)

#AskingAutistics #askADHD How do SSRI's affect you?

I started one two months ago or so and it has been a drastic difference. Some good, some bad. I also have both acute/"normal" and complicated PTSD and am in both bereavement and burnout though, so lots of factors.
I'll go first: The SSRI I'm on hasn't particularly impacted my mood that I've noticed, but it has effectively killed my body's drive for sleep, food, and sex. These can be categorized into "annoying", "dangerous", and "good", respectively.

🧵
#ActuallyAutistic #ADHD
I've had disordered sleep my entire life. Since the pandemic, I've taken to going to sleep after not being able to stay awake any longer and waking up whenever I wake up. Now, I need to actively choose to go to sleep which is mostly OK now that I'm aware of it.
Read 16 tweets
Could we have a big generous welcoming thread explaining #Autistic acronyms and colloquial language to help newcomers?

#AskingAutistics
#actuallyautistic
#Neuropeer
EDS

Ehler Danlos Syndrome “Like autism, Ehlers-Danlos syndromes (EDS)/hypermobility spectrum disorders (HSD) appear to be complex spectrum conditions and are classed as hereditary connective tissue disorders (HCTD).”
ABA

Applied behavioral analysis is the most widely used therapy for autism in children, but Autistic self advocates describe it as torture. It comes directly out of conversion therapy and tries to make Autistics less Autistic, which of course is impossible and hurtful.
Read 10 tweets
Much like when a Queer or trans person stays in the closet because they don’t feel safe, NeuroDivergent masking, or camouflaging, is defined as when a NeuroDivergent Person consciously, or subconsciously, masks or hides, their Divergent traits, in order to blend in.
We do it to keep ourselves safe. We do it because the world around us can be very hostile, and blending in is self-defense.
However… blending in can also feel like a slow death, putting yourself aside to pacify the expectations of other people, making yourself small, ignoring us our own wants and needs.
Read 5 tweets
#askingAutistics how do you handle it when someone tells you explicitly that while they understand autistic masking and that things like tone and facial expressions and even word choice can be challenging, they still feel offense or hurt when exposed to unmasked communication?
I'm looking for practical answers for use in meaningful relationships in life, not pat solutions like "fuck 'em" or "just mask more".

I don't have the spoons to mask enough, but I don't want to cause distress, which is valid on their part if they perceive me as scary.
Is there a model other than "masking" that applies here? I'm specifically worried about the way someone with e.g. trauma responses to curt tones or ambiguous phrasing can't just tune those signals out. It's a complex problem.

How do you address it?
Read 6 tweets
Let's make a list:
How can NTs be a better friend to autistics?

My students asked me this yesterday, and we had a great discussion. I'd love to gather more ideas.

#askingautistics #ActuallyAutistic
One of our suggestions: use more tone tags. And in person, tell me when you are being sarcastic/joking if it looks like I don't get it.
Also, understand that I may say the wrong thing, but I'm usually not trying to be rude, so if something comes out wrong, please remember I'm not trying to be offensive.
Read 6 tweets
[THREAD]

#AskingAutistics, but others are also welcome to respond.

I have a weird question.

There's a school for autistic children who wants to name a classroom after me because according to the principal they've learned more from me over the years than from anyone else.
They want to use some of my artwork prints to decorate the classroom.

Other classrooms will also be themed and named after people.
I guess that this is like houses which we had at my own school, which were named after old men who played some forgotten role in the school history. Except this school is small, so it's classrooms, not houses.
Read 9 tweets
Sorry Allistics (non Autistic people) - my timeline is not where you come to get intellectual labour about Autism. I perform enough for my marginalized intersections. Go to #AskingAutistics #ActuallyAutistic or do a Twitter search of the thing. Follow Autistics too.
I will tweet about my experience being Autistic. Will talk about how dehumanizing it is to be called "person with Autism". But it's not my job to tell you why. Enough information is on Twitter about it. There's a whole community of us here who talk about this.
@commaficionado Have anything at hand?
Read 12 tweets
#AskingAutistics

"Can you recommend any books by autistics for someone starting to identify as autistic?"

Hi @drdevonprice, @EricMGarcia, @biancatoeps, and @stevesilberman would you mind telling the Autistic community about your books?

Any other Autsitic authors welcome too!
Full disclosure, Since learning that I am Autistic I have not had a chance to read any of the books out there by Autistic Authors about the Autistic experience. We where DMed this question and thought other people would be much more qualified to answer it. 💚
Hi, some Autistic people are looking for books by Autistic Authors. Would you care to talk about your book or link an article?
@DrTempleGrandin, @TheRichardPanek
Read 4 tweets
#AskingAutistics

Curious if an Hair salon / Barber that catered to Autistic needs would be a viable buisiness model.

* Multi-question thread.*

How far would you travel for a hair salon / barber shop that catered specifically to Autistic needs?
How much would you pay for a hair salon / barber shop that catered specifically to Autistic needs?
Would you be willing to have someone specialized in cutting the hair of the Autistic come to your house / appartment / etc to cut your Hair? If so, what would you pay them:
Read 4 tweets
One thing I’m learning right now is that people who’ve never heard of ABA at all, when they are introduced to it from the perspective of an autistic ABA survivor, they’re first reaction is “that sounds terrible! I can’t believe they still do that.”
Granted I’ve only been able to talk to like two people like that from my perspective as a survivor. But. Even one person I absolutely expected to not understand, was horrified that this is still in practice.
Anyway, if your a parent in the fence or considering ABA, listen to ABA survivors. That’s the most important set of voices in this conversation.
Read 17 tweets
It is used by Autistic people to openly designate they are Autistic.

I understand that it was made necessary because the Autism community kept co-opting the Autistic community tags.

It was coined by @RealKaristina
The “Autism Community” is arguably anyone who has a connection to Autism.

The “Autistic Community” is anyone who is Autistic.

The distinction is very important when speaking on matters of Autism, especially the experience of being Autistic.
It is considered a breach of social norm for anyone but an openly Autistic Person to use it because of the importance that hashtags have in finding tweets.

There was at least one particularly offensive event where people used the tag to troll Autistic people.
Read 7 tweets
In Saratoga County, NY, the police were called by a @Target employee on Black teens, siblings. Police harassed & became forceful & violent with a 14 year old autistic boy who was holding candy. He kept saying over & over, “I have money.”#AskingAutistics #AutismAcceptanceMonth Image
Officers tackle the child. His 17-year-old sister is screaming, "he's autistic!" over and over. She is manhandled and aggressed against and ARRESTED. Police put felony assault & a resisting arrest charges on her. The autistic boy was not arrested because he committed no crimes.
His sister didn’t either. Gratuitous and unprovoked violence against a family member, a disabled child, is legal cause for defense. Looks like a pair of hate crimes.
Read 20 tweets
Autism and Body Tension - 🧵

If you’re autistic and regularly tense:

- your eyes until you get a migraine;
- your forehead and cheeks until you get a sinus headache;
- your shoulders until you can’t move them;
- your calves until they cramp every time you try to move them;
- your stomach until your GI issues multiply tenfold; and
- any other part of your body in a way that causes you pain

then this thread is for you!

I do all of these things - and to my detriment.
I often feel at least some sort of distracting or overwhelming ache, pain or discomfort. I’m actively trying to stop, but I generally do these things subconsciously and don’t realise I am doing them until it’s too late.
Read 20 tweets
I contacted @SPARKforAutism and the PI @WendyKChung with questions about equity, inclusion, ethical engagement, consent, and the use of autism GWAS and PRSs in polygenic embryo selection. Unsurprisingly, they refused to answer most of my questions. docdro.id/CfOUuix 1/n
@WendyKChung directed me to the SPARK YouTube channel to showcase their "community engagement". Nearly every video is for neurotypicals, by neurotypicals, focusing on interventions, "teaching social skills", etc. 2/n Image
I didn't get any response to, e.g., why SPARK partners with @autismspeaks and not with any autistic-led organizations, or whether any of the PIs have connections to the ABA industry. 3/n
Read 8 tweets
The founder of ABA said the following about Autistic kids:

“You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense – they have hair, a nose and a mouth – but they are not people in the psychological sense...."
"One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.”
Lovaas strongly believed in intense behavioral modification interventions, that included harsh aversive techniques such as withholding touch and attention, isolation, and even giving electric shock "therapy"...
Read 7 tweets
(Waves in greeting.)
I see tons of #ActuallyAutistic folx chiming in on #Sia today, & I hope that you all will devote the same fervor to going to this link: iacc.hhs.gov/meetings/publi… to quickly make Public Comments for the upcoming US federal autism IACC meeting in April 2022. /1
I realize making Public Comment about #autism research & policy is not trendy nor exciting like celebrity news, BUT it’s a platform: iacc.hhs.gov/meetings/publi… to potentially help influence important issues impacting the lives of millions of autistic ppl & their families. /2
Currently, the “loudest” & most consistent/persistent voices who are “representing” autism are privileged non-autistic literal curebie martyr moms who openly tout institutionalization & sub-minimum wage employment as solutions for autistic people w/the highest support needs. /3
Read 18 tweets
Has anybody had any experiences with a brand called public gift publicgift.com I feel like I'm being stalked by their brand ambassadors on Instagram to also become an ambassador & I feel quite convinced my complaint about it just got handled by a bot. #askingAutistics
They also did not answer any of my questions about how much of their revenue is being donated to the causes they support. Would appreciate info from any one with more information or personal experience with this org
Read 4 tweets
The first thing I would love for people to understand about sensory processing and sensory overload is that a NeuroDivergent Person, with sensory processing difference’s ability to tolerate certain stimuli can vary, from week to week, month to month, even day to day.
The ability to tolerate sensations can very, depending on a variety of factors.

One of those factors being how well rested, or how well off that individual NeuroDivergent Person is doing, on that particular day.
It can be the perfect storm if that person is feeling low energy that day, or they’ve already got a lot on their plate.

Maybe they’re already really stressed out about some personal thing or some change that’s happening in their life, or they’ve not slept well all week.
Read 5 tweets
Growing up, I struggled in my relationships with other kids my age.
When I did hang out with other kids, they were often older or younger than me, additionally, my relationships were often very superficial, because, even when I wanted to, I didn’t understand how to get close to others or let people in.
For many years, as a preteen and a teenager, my best friends were our family cat and my dog, Ripley.
When I struggled to bond with others around me (even my family and caregivers) animals always were as kind to me as I was to them - like a mirror reflection back on me.
Read 8 tweets
It had been a long and tiring weekend. We’d had fun, but I was running on minimal sleep and hadn’t had enough to eat, so my blood sugar was a bit low.
As we neared the end of the day, I thought I knew what was coming next, but suddenly and without warning or my input, the plans changed – leaving me feeling shaken and unstable.
CW: desecration of past meltdown

Suddenly, I found myself past the point of no return. Tears started to well up in my eyes as I quickly hung up the phone.
Read 12 tweets
[THREAD] #AskingAutistics and allies, especially people in Africa or of African descent throughout the world: We need your help. A bad thing has happened for #DisabilityRights in Africa: ABAI has sponsored an American, Ashley Knochel, to promote ABA in Africa by formalising it.
There has been a neocolonialist trend with aggressive ABA infiltrations from America into Ghana, Kenya and other countries for some time now, including a CARD-associated organisation in South Africa; but this latest move is worse.
This American person has established a Pan-African Association of Behaviour Association along with Kenyans, and they are launching this Saturday.

facebook.com/panafricaaba/
Read 39 tweets
If the "professionals" and the big autism charities could PLEASE stop convincing parents that an autism diagnosis is the end of the world for their child/ family, it would be awesome. The tragedy narrative has to stop. 1/
It is heartbreaking and infuriating how many parents I see who are heartbroken and terrified their kid is or might be Autistic. Shedding literal tears over some concept of "lost normality" and desperate for any hope their child can be saved/fixed/cured of their neurotype. 2/
You know who deserves to shed a tear? A) The Autistic individuals who see/hear/read this crap from their caregivers. B) The Autistic children being raised in households that call them "damaged" to their face and throw them into so many therapy hours they don't get a childhood. 3/
Read 9 tweets
#Thread
To someone realising they may be autistic as an adult, and feeling overwhelmed by it.
Please don’t be alarmed. In spite of nearly everything you read about autism being negative there are many positive aspects.
And, most importantly, it’s part of what makes you ‘you’.
1/
It’s nearly three years since my own very late diagnosis.
I remember vividly the moment when I fist realised.
I was reading an email from a former colleague who’d just found out she was autistic.
It really felt like my heart stopped for a moment.
This was something momentous.
2/
I knew that discovering I was autistic meant my world would change forever in ways I could not anticipate.
And it was hard to begin with.
Revisiting past events made me burn with shame, embarrassment, anger and indignation.
It all made sense, why hadn’t it been obvious before?
3/
Read 22 tweets
#AskingAutistics

For autistic People of Color as well as Indigenous and Biracial people -

If you ever sought an official diagnosis for autism -

1. Were you diagnosed with anything?
2. What were you diagnosed with, if you were?
3. Did you think it was an accurate diagnosis?
For autistic People of Color as well as Indigenous and Biracial people -

4. If you haven't sought an official diagnosis but have wanted to, have there been any specific barriers you faced to getting assessed for autism?
Anonymous autistic person answered through DM:
"1. Yes
2. CPTSD, ADD, GAD, Bipolar
3. I do not think I’m bipolar
4. My psychiatrist laughed at me and said “YOU ARE NOT AUTISTIC”. I tried to explain myself and he just kept laughing."
Read 5 tweets

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