Discover and read the best of Twitter Threads about #askingautistics

Most recents (24)

I've known I have #ADHD for 4 years. I've known I'm #dyslexic & Autistic for 2 months. This semester, I've spent enormous time/energy understanding what this means for me. I am relieved & unbelievably excited; I've found an incredible #ActuallyAutistic community through Twitter;
& for the FIRST time in my life (let that sink in) I'm seeing other people talk about experiences that mirror my own. I understand myself in a way that I have tried to find words for my entire life. (TY @SNeurotypicals @steve_asbell @autistictic @A_Silent_Child) #ActuallyAutistic
I'm also navigating grief. I now see the ways I'm called to & do invalidate, erase, & hurt myself in the "necessary" betrayal of my needs to exist in a neurotypical, "appropriate" way. Camouflaging causes negative health outcomes & creates #healthdisparities #NMHM2020 #Autistic
Read 9 tweets
I see in parenting groups parents not wanting to seek diagnosis for their children to not "label" them ASD or ADHD. Here are some labels I recieved not having a diagnosis. Lazy. Weird. A Failure. Daydreamer. Manipulative. Attention seeker. Odd. Self-centred. #ActuallyAutistic
These labels given to me due to an expectation I behave neurotypical was damaging to me. Far more so then the "label" ASD or ADHD. I believed I was a useless person before my diagnosis. #adultadhd
Learning about my neurodiversity helped me understand myself and give me self the compassion I deserved. I am not lazy. I just struggle to focus due to a neurological condition. I am not manipulative. I get huge sensory overhwelm which causes meltdowns. #ActuallyAutistic
Read 6 tweets
.@Ed_quanto Would it be possible to know how you ended up asking J. Schovanec to write the foreword of the upcoming French version of @stevesilberman 's Neurotribes. The last itw he gave says the opposite of what is in the book : informations.handicap.fr/a-schovanec-au…
I know he is one of the main references in the French speaking autistic community, but since the last few months, the more he speaks in public, the more damage he causes to the community. Having his name associated with Neurotribes is actually harmful to us #ActuallyAutistic .
#AskingAutistics and whoever feels like it for #Help and #RT
Read 3 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
Thread: #autism #employment statistics are unreliable but 44 years of working has taught me this: #autistic people struggle to reach their full potential unless organisational culture and environmental issues are addressed.
#neurodiversity
#employability
#inclusion
#careers
1/
I once did some work on job design and evaluation for the NHS. In attempting to improve #employment outcomes for #autistic people we often start in the wrong place. It’s no good trying to fit people into roles that are unsuitable, and this applies to working environments too.
2/
A degree of mutual adaptation is possible, but true workplace inclusion begins with design.
We have plenty of information about common challenges experienced by autistic people - our #sensory and #communication differences are well-defined.
So what seems to be the problem?
3/
Read 19 tweets
#AskingAutistics:

I’m planning to draw some Stimmy Kitty comics about autistic shutdowns.

So...

What should allistic (non-autistic) people know about shutdowns?
Here’s how to ‘help’ me when I’m in an autistic shutdown.

- keep the lights and noise off,
- keep people away from me,
- keep close enough to hear me-
- but not TOO close.
Stray observation:

When I have a migraine, even the slightest amount of sensory/cognitive demands will lead to a shutdown.

Fortunately I’m more likely to be left alone when I’m already doubled over in pain.
Read 3 tweets
Cn childhood trauma, ablism

#ActuallyAutistic #AskingAutistics
I have a theory I'd like input on: that alexthemia is so common in autistics largely bc it's a c/PTSD response that happens to be an incredibly common result of the way our emotional responses are /1
Cn abuse, ablism, panic attacks

Gaslit and punished starting from childhood

Basically i recently had a thing were i was experiencing a lot of stress but repressed it wo realizing i was doing so until it induced a panic attack /2
Cn ablism, abuse, panic attacks

And even after identifying the things that had been stressing me out, a part of me kept trying to say those things weren't enough to warrant having a panic attack over. There must be a better justification /3
Read 25 tweets
#AskingAutistics: is the 'uncanny valley' a useful metaphor for how autistic / neurodivergent people interact with social norms?

/thread
Context:

1. I'm not formally diagnosed, but score high on ASD tests. (I'm new to autism, not an expert.)

2. My livelihood is derived from my expertise in understanding how groups work.
3. My natural way of being tends to 'rub people the wrong way': they find me disagreeable, grumpy, difficult, demanding, frustrating, triggering, etc.

Most of the people who know me think I am agreeable, kind, relaxed, flexible, compassionate, etc because...
Read 9 tweets
Autistic burnout is terrifying.

Both the sharp moments of what feels like brain lock, & the prolonged dullness of "regression".

It hurts & it can change your expression of identity, but people who haven't experienced it don't know why.

Anyone willing to share? #AskingAutistics
I've been pondering over the physical & emotional trauma that happens.
Also differentiating autistic burnouts from autistic shut downs.

Shutdowns can lead to burnouts, but burnouts are prolonged

Read 4 tweets
#AskingAutistics #ActuallyAutistic #AllAutistics

Forms of affection other than 'standard' physical contact (e.g. hugs, hand-holding), eye contact, and saying 'I love you'.
Please reply with any you can think of.
Saying 'I like you'. For some reason, 'I love you' is considered this massive thing, yet 'I like you' is barely thought of. I find something very profound in it and think liking someone can be just as important as loving them.
Giving them a nice rock.

Rocks are good.

Though I would probably feel bad about moving the rock from it's "natural habitat".
Read 22 tweets
I finally took an improv class at @SecondCityTO. It was super fun b/c the instructor let me observe rather than interact so I was able to learn a bunch of really useful info. Then came the angry abusive desk clerk who unloaded on me saying I'd been "aggressive this whole time"...
@SecondCityTO When I gave my credit card to pay, he refused to give it back because "collateral" then threatened to call the police. I have no idea what he was on but it was terrible. I told him he could us inclusivity training because he was treading in lawsuit territory. His response was...
@SecondCityTO ...to ask me what my disability was. I told him he couldn't ask that. He then asked the instructor if I'd been giving him trouble then proceeded to comment derisively on my stimming (I was trying to keep calm).

It was awful, y'all.

This is why we are at risk in the world.
Read 8 tweets
It’s not just the general public that misinterprets #Autistic “severity” & hidden meanings from observable behaviours (see analysis in ‘A Tale of Two Ableisms’ by @TheAspergianCom RT @RussellRElliot) re. GretaThunberg & Kodi Lee.

Even professionals can get it wrong.
A so-called body language expert’s interpretation of Greta Thunberg’s #Autistic facial expressions is a case in point. For some time now Greta Thunberg has been a convenient target for unsolicited thoughts from all sorts of people in this world, good and bad.
Yet since most of us have never met Greta or her parents, nearly all of these must be projections from the inner recesses of people’s psyches, good and bad.
Read 12 tweets
#AskingAutistics desperately seeking your advice. An autistic student draws the whole day at school and if redirected to engage in academics, gets violent and aggressive. Has difficulties with speech. Tried draw and wrote sort of exercises, he only draws. Hates interuption.
I feel like he's like water. Will flow out if we try to contain him. But by channeling his talents, can be great. Ecellent at visual perception. Builds complicated structures with any block like items. Draws superbly. Fine tunes his art on a daily basis. Is just 7.
Read 3 tweets
Pro-tip: A note on self-harm and self-help: self-harm happens in multiple diagnoses. It can be acute (cutting, head-banging, biting, etc.) or chronic (skin-picking, eating disorders, teeth grinding, etc.) Both types are neurologically driven and provide a way to meet a need.
Chronic self-harm is a way of attending to generalized discomfort of unknown origin. This is common with sensory processing disorder and alexithymia. It is a quite-literal manifestation of being uncomfortable in one’s own skin.
Stopping chronic forms of self-harm often lead to different forms of self-harm because the underlying needs driving compulsive behaviors are not met. You might be hungry or dehydrated, constipated, overly-full, stressed, bored, over or under-stimulated.
Read 22 tweets
Thread about living with alexithymia #ActuallyAutistic #Neurodiversity #autism

I experience alexithymia. It's one of those anecdotal conditions that autists know we experience, but it's not formally dxed or researched.

It's like colour blindness for feelings. /1
I can tell light from dark, or in this case, positive from negative. I know I'm feeling good or bad feelings.

But it's hard to give them a name. I feel good, but do I feel happy? Proud? Serene? I feel bad, but am I feeling shame? stress? sadness? /2
My psychologist asked me how it made me feel to reflect on the experiences I'd had as an undxed girl.

I was stumped. I tried, but couldn't pinpoint a feeling. I said, "I wish I hadn't spent so much time being so hard on myself." The feeling I couldn't name then was REGRET. /3
Read 15 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
How to ruin people's faith in themselves and in you as an advocate:

1. Don't forgive missteps
2. Put mistakes on display for others to ridicule
3. Be the harshest comment
4. Be passive aggressive
5. Don't show good faith
6. Don't consider what brought a person to their beliefs
7. Make their needs about your feelings
8. Don't care about their struggles if they're not related to yours
9. Dismiss their struggles as not real or valid if they're different from yours
10. Leave no room for new ideas
11. Punish differences of opinion
12. Establish yourself as the authority so that no other voices or ideas can be expressed or heard
13. Show blind loyalty to/take sides with people who are demonstrating toxic or abusive behaviors
14. Isolate, bully, or criticize people as being "all bad" who disagree in one area
Read 18 tweets
1/ #AskingAutistics Hi. Am new to this community. No idea if anyone will see this but would be so grateful for any responses. I have a few specific questions #naturally. Does anyone who is #ActuallyAutistic consider themselves to have a 'super' ability to read non verbal cues?
2/ Facial expressions? Body language? Tone? Like, going into a meeting with 8 people in and taking in an enormous amount of information about how they were each presenting, what they said, the impact it appeared to have on others. #AskingAutistics #ActuallyAutistic
3/ #AskingAutistics Would that be an example of masking? Learnt behaviour? Because I find it enormously draining but also it doesn't feel like a conscious effort.I just...take it in. And remember it. And people often comment on my memory, and perception,or that #actuallyautistic
Read 8 tweets
#AskingAutistics Post a pic of something you have recently aligned, lined up or stacked.

Tag it your tweet with #LetsLineThingsUp.

Retweet this tweet so that others can join the celebration.
PS: If you're NOT autistic and you like lining things up, feel free to post your pics too, and tag them with #LetsLineThingsUp.
Some of you may remember @thingsorganized from a few years ago. So much aaaaah. 😊
Read 4 tweets
Childhood isn't only about preparing for adulthood, you officious ableist fools. And if the child is disabled, even preparing for adulthood should mean preparing to live effectively as a disabled adult, not learning to fake being non-disabled.
If you feel inspired to make a career in the autism industry, why aren't you #AskingAutistics about the many unmet needs? Why enter the fray of abusive therapists all vying to fan and cash in on parents' ableist fears?
Imagine you ran a therapy centre for women, and all your glowing testimonials and endorsements were from husbands, brothers, fathers and sons.

No actual women.

But your therapy is advertised as being 'evidence-based'.

What's wrong with this picture?
Read 11 tweets
Autistic people "go hard" when they do something. Finding the autistic community and making the cognitive and emotional paradigm shift from "I am always wrong and need to show deference" (how we grow up) to "I am valuable and have been abused by systems and industries" (cont)
is a brutal rearranging of our whole psyche and sense of self. We make the decisive covenant with ourselves that we aren't going to be abused anymore and we will do anything possible to keep others from having the same experiences. It is a radical shift and a brave one (cont)
Sometimes, we over-correct. The lines are so obscure and hard to read between what is toxic abuse and what is ableism. We oscillate between realities: the reality that our voices are needed to help future autistic generations not suffer the way we did, but also (cont)
Read 19 tweets
I don’t have many friends. The few I do have are long distance friendships or I see them only once or twice a year. I struggle to maintain friendships because others often expect more out of me than I have to give. But I’m happy. Anyone relate?#ActuallyAutistic #AskingAutistics
Growing up I would have “one friend at a time” because I could keep track of one friend (often fawning over them inappropriately). It was never good to “put all my eggs in one basket” because if my friend moved I would suddenly find myself alone & in need of a new friend.
Making new friends is always difficult, because I struggle to read new people. I can “memorize” the mannerisms and preferences of a person to learn to work around them but a new person is an unpleasantly fresh slate. #ActuallyAutistic
Read 6 tweets
A few gentle reminders (thread):

1. Neurodiversity is not ‘extremist’, it simply means humans have a variety of brains

2. Autistic people who celebrate autism and don’t want to be cured can (and do) consider autism a disability. They are not mutually exclusive views.
3. The #ActuallyAutistic hashtag means the person tweeting is autistic. That is all. This is also not ‘extremist’. (NTs please don’t misuse it - if you want our attention use #AskingAutistics 🙂)
4. If an individual, or even a few individuals, tweet abuse and they are part of the neurodiversity/ actually autistic community... they are just individuals tweeting abuse. They do not represent me or the group at large. You cannot extrapolate and conclude we are all abusive.
Read 7 tweets
Hey, how's this for autism 'awareness' month: some percentage of you who are reading this tweet are #actuallyAutistic and aren't aware of it.

I'm going to post a bunch of questions I wish I had been asked in this context, years ago. This is not diagnosis! But it's instructive.
Do you need a lot of time alone? Even in a relationship or family, even when you really love the other people in your life, even (especially?) when there isn't anything particularly pressing for you to do?
Do loud noises cause you distress? Or background sounds that won't quiet stop? Do you prefer to keep the lights off? Are there foods you can't eat or fabrics you can't wear because the textures just "feel bad" in a way you can't explain?
Read 100 tweets

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