📺🧵Key takeaways from @IndependentSage
@DrGrahamLJ on the long term risks of #SARSCoV2:
🔹Covid is a blood vessel disease
🔹1/2 billion virus in 1tsp of saliva
🔹Importance of mouth hygiene
🔹Viral load in mouth predictor of acute illness
Clear explanation by @Sunny_Rae1 of #SARSCoV2 as:
🔹a blood vessel disease
🔹 pathophysiology of microclots & endothelial damage
🔹present in #LongCovid & a lesser degree in 'recovered' patients
Summary by @Sunny_Rae1
@COVID19_LHW on persistent excess death risk from the blood vessel damage described by @DrGrahamLJ @Sunny_Rae1
@DrGrahamLJ do you think this is another reason why people with #EDS #hEDS (Hypermobility) are more susceptible to Covid/LongCovid? Bleeding gums is common in these patients and it's another line of immune defence gone?

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More from @LongCovidAdvoc

Aug 28
UPDATE: Complaint about CISCO21 Long Covid Exercise Study
🚩Serious risk of patient harm
RESPONSE: PEM is primarily assoc. with other forms of exercise
Resistance bands do not rely on mitochondria
🤦‍♀️PEM can occur after any exertion
Axcella used resistance bands=mito dysfunction
🚩No screening for PEM
🚩 Inadequate consultation of scientific literature in #ME #PEM
RESPONSE: we've done PPI & PROMS 😬 (this literally doesn't make sense)
🚩Lack of consideration to personal testimony that exercise does not help conditions with PEM
RESPONSE: we've done PROMS, open hypothesis - we're open to it not being helpful, there's no evidence that exercise can cause permanent damage to C19 patients
Read 11 tweets
Aug 27
The psychologisation of a disease occurs when it is believed that psychological states cause or drive or sustain symptoms of that disease.
🚪Front door psychologisation: it's in your head, causes the disease
🚪Back door psychologisation: influences, sustains, drives the disease
Gez & Danny's book looks fantastic and a real resource for those with & without #LongCovid.
Sincerely hoping that this view that: "there is a huge degree that our emotional state can drive symptoms by sending us into a state of sympathetic overdrive"
is not referenced...
Gez is more than welcome to have this as a personal view. Yet it is the reasoning that those who psychologise the disease can take
It is why we have 'integrated' care & research that focus on CBT as stress and anxiety are seen are sustainers of the illness.
There is no evidence
Read 11 tweets
Aug 22
📻 🧵 on #LongCovid on @BBCScotland
🎙️Super interview with @K8Stott @DeansKevin & @drclairetaylor
Points on #microclots, lack of Long Covid Clinics in Scotland, Katie's trip to Germany, need for Rapid Treatment Trials for #LongCovid
1/6
With @DeansKevin
Reassuring to hear interest in #microclot research in the UK 💙
/2
@drclairetaylor talking about her #LongCovidClinic in Scotland 🙏
Dr Taylor is an incredible #LongCovid ally (esp through her Twitter account too)
/3
Read 8 tweets
Apr 21
🧵Serious Red Flags for the #CISCO21 #LongCovid Study
Researchers please listen to patients concerns & expand your knowledge to the history of #MECFS
You have a chance to stop patient harm
1. No mention of #PEM #PESE in the literature
After repeatedly asking if they screen for #PEM or take this into account - they have not responded in the affirmative.
This is the nub of the issue
75% of #Longhaulers have #PEM
46% are eligible for an #MECFS diagnosis
This means that our bodies cannot process exercise - think sugar diabetes
There is no magic where by giving us exercise because we can't do it means we will magically be able too
Read 16 tweets
Oct 22, 2021
Super @BBCNews coverage of possible breakthrough treatment that dissolves the microclots, HELP Apheresis. Superb interview by @doctorasadkhan who tells it like it is!!! ✊ Let's hope this works, fast track funding is given & it's rolled out to all 🤞🙏
Vid 1: 🧵
Vid 2: Dr Beate Jaegar
Vid 3: (Go Asad,debunking the quacks)
Read 4 tweets

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