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Long COVID Physio Profile picture
@LongCOVIDPhysio
Nov 1, 2022 • 19 tweets • 32 min read • Read on X
Long COVID Physio International Forum #LCPForum recordings from Day 1 are now available 💙 🧵 Image
#LCPForum Day 1 open and welcome with @darrenabrown @PTPintcast @ThePhysiFro & Dr Richard Nielsen @RMUoHP
#LCPForum Day 1 Keynote with @ekstokes @WorldPhysio1951
#LCPForum Day 1 Science - Health Systems and Rehabilitation Care with @SimonDecary @LisaAMcCorkell @NHSLeader Ann Li @LongCOVIDEurope @nickayes4

#LCPForum Day 1 Discussion - What is safe #LongCOVID rehabilitation

@BreathewellPT @JonesFio @OnTapPhysio @SueYFC @DP_Gross @IppokratisAnge1 @MVGutierrezMD @racheltarrant5

#LCPForum Day 1 Science - Post Exertional Symptom Exacerbation #PESE #PEM #PENE with @sunsopeningband @herlifeinpixels @Know_HG @MelindaWMaxwell @AlyssaaErinn & Lauren Singh

#LCPForum Day 1 Workshop - #Pacing with @sunsopeningband @MichelleBull4 @julialmv @CenterRes

#LCPForum Day 1 Discussion - #LongCOVID #Disability and Bias with @youseelogic @chiluvs1 @AshantiRN @ninachigbo @DrMarciaPT @stillillcorona1 @haziethompson

#LCPForum Day 1 - Highlights with @darrenabrown @PTPintcast @elisaperego78 @netiamccray @TedDeChaneDPT @respphysio @LongDeutschland @PedagogiaEli @AcpeCovid @ssaraviaandre @longcovidchile

Long COVID Physio International Forum #LCPForum recordings from Day 2 are now available 💙

🧵continues👇 #LongCOVID #FBLC #GlobalPT Image
Day 2 Open & Welcome with @darrenabrown @PTPintcast @NgehEtienne & Dr Malissa Martin @RMUoHP

#LCPForum Day 2 Keynote with @PutrinoLab #LongCOVID

#LCPForum Day 2 Science - Current landscape of #LongCOVID research with @maxwele2 @Dr2NisreenAlwan @jpbettger @latvala_tuuli Dr Karen Matthews & @darrenabrown

#LCPForum Day 2 Discussion - #LongCOVID in Children and Young People #LongCOVIDKids with Dr Jennifer Audette @LongCovidKids @Occ4LifeLtd @BinitaKane @alitwy @GardenNaomis @EleniIasonidou @GreeceLck @CaraKaup

#LCPForum Day 2 Workshop - Epistemic Injustice and Empowering Conversations in Healthcare #Gaslighting with @DianeOLeary @ThisIsAnaLeite @alisonflyn #LongCOVID

#LCPForum Day 2 Science - #EpisodicDisability #LongCOVID with @KellyOBrien25 @longcovidirl @cathythomsonPT @sivanmanoj @RogersNat70

#LCPForum Day 2 Workshop - Daily Activities and Work with @fisiocamera @OT_Skiff @NathanHutting @lesleymacniven @DrLongCovid #LongCOVID

#LCPForum Day 2 Discussion - Orthostatic Intolerance, Dysautonomia and #POTS with @DocStrain @doctorasadkhan @Dysautonomia @ARC_Mount_Sinai @EmilyRichOT @LindsaySkipper @Dranjaliphysio2 #LongCOVID

#LCPForum Day 2 Highlights & Forum Close with @darrenabrown @PTPintcast @kirrabrean @bcdelaney1 @DrMark_Faghy @carolinthappel @Food_reward @apresj20 @CesarMetlab #LongCOVID

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More from @LongCOVIDPhysio

Long COVID Physio Profile picture
Aug 11, 2023
New Episode of our #LongCOVID Video Series released today 💙

⚖️ #Pacing ⚖️

Click on link 👇 to watch video, listen to audio only, or read transcript (audio as text).

Thank you to all involved 🙏🏻💙
@fisiocamera

longcovid.physio/long-covid-vid…
@LindsaySkipper @sunsopeningband @julialmv @CenterRes @LisaAMcCorkell @OT_Skiff @kirrabrean @MichelleBull4 @SammieFMc

@4Workwell @scrippsresearch @DePaulU @patientled @PhysiosForME @LongCovidKids @visible_health

@fisiocamera
You can also access the entire #LongCOVID Video Series including translations 👇
longcovid.physio/long-covid-vid…
Read 9 tweets
Long COVID Physio Profile picture
May 9, 2023
🚨New Release Today🚨

Safe #LongCOVID Rehabilitation

Created by @LongCOVIDPhysio in partnership with @fisiocamera

Clink on link below 🔗👇 to access video with closed captions (which can be translated), audio only, and written transcript.

longcovid.physio/long-covid-vid…
This video received consultation from @LindsaySkipper @sunsopeningband @4Workwell @LauraTabacof @MountSinaiNYC @KellyOBrien25 @UofTCOVIDRehab @SimonDecary @USherbrooke @DrMark_Faghy @DerbyUni

And peer reviewed by @LongCOVIDPhysio executive board
This video is part of the #LongCOVID Video Series

Check out more in thread below 🧵👇

longcovid.physio/long-covid-vid…
Read 9 tweets
Long COVID Physio Profile picture
Dec 28, 2022
New Video Released Today🎉

“Impact of #LongCOVID on Day-to-Day Life”

This 5th instalment of the Long COVID Video Series, in partnership with @fisiocamera, has been co-produced with people living with Long COVID, sharing their stories

longcovid.physio/long-covid-vid…
Thank you to the participants of Somerset #LongCOVID peer support group, who shared their stories of how Long COVID impacts their day-to-day lives, and Physiotherapist Liz Truman @NHSSomerset who supports the group.
This video received consultation by @LindsaySkipper @Occ4LifeLtd @MotherMRuss @PutrinoLab and peer review by @LongCOVIDPhysio executive board. Thank you to all who support these videos behind the scenes.
Read 14 tweets
Long COVID Physio Profile picture
Sep 9, 2022
What role does your identity have in your care?
@DrMarciaPT - if I wasn’t a PT in the system, I wouldn’t have understood how I was being seen and treated in the medical community.
@chiluvs1 I had to speak up for all those out there who didn’t have the ability to do so. What would happen if I stay quiet? Something I’m saying will create change for somebody.
@AshantiRN I thought I was immune to medical gaslighting as a nurse. My color and my sex trumped that. “Don’t gaslight yourself…don’t second guess your experience because a doctor told you so.”
Read 4 tweets
Long COVID Physio Profile picture
Sep 9, 2022
What does disability mean to you? @haziethompson - 1) The physical things that affect your ability and autonomy. 2) There’s the bigger scope used to exclude people from public life, a diminished capacity makes you unable to participate in society.
@chiluvs1 Disability means restricted access. Becoming a teacher gave access to healthcare, government, politics. I was accepted as a Black Woman. Then I learned as a disabled woman I had restricted access. Doctors restricted my care as a Black and disabled woman.
@ninachigbo in the African world, you are not allowed to say you can’t do something. As a Black Woman, mother, etc. you are expected care for other people. There is no acceptance for invisible illness. You must deal with it.
Read 6 tweets
Long COVID Physio Profile picture
Sep 9, 2022
According to @CenterRes, pacing is doing as much activity as possible without causing an increase in symptom.
Per @sunsopeningband it involves staying within an envelope of one’s ability. It’s a balance of resting with managing day-to-day activities. Much of society isn’t setup for pacing, however.
Per @julialmv , using a wearable was the most beneficial thing to me! I thought I was resting and pacing, but the data showed otherwise and I needed to scale back.
Read 5 tweets

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