Amanda Ball Profile picture
Dec 23 9 tweets 3 min read
Hey #Dissociatwt We had one of the most terrifying somatoform symptoms last night, possibly after a trauma dream but it’s all foggy. We could feel our legs but could not feel the outsides of our skin on our top half but we were able to move our limbs. At the same time the inside
of our body was hurting so much, it felt like we were drugged. The pain was such that we felt we needed a huge amount of pressure to relieve it BUT we couldn’t feel our skin on any of our top half of our body. We tried rocking to feel the bed underneath us, we tried slapping
we still couldn’t feel and we felt trapped as we couldn’t get enough momentum to get out of bed as our top half wasn’t able to feel the edges of body. I then thought maybe if I doubled over our weighted blanket that would help but it didn’t. I then tried punching and that helped
a little. Then I thought if I could get the bath brush that may help if we firmly brush out skin but couldn’t get out of bed. All this time we were rapid switching & crying. In end the only thing that worked was scratching our arms vigorously and eventually our feeling came back
Anyone any ideas what this may have been? We were petrified of taking a Nytol as we don’t like taking anything that may mean we are not fully ‘conscious’ (irony with dissociation I know) so maybe the fear of feeling drugged triggered something?
Does this sound like a body memory or dissociative seizure? We’ve had it before where we loose all control of our body and can only move our head which is also v scary but this was different as we NEEDED pressure but at the same time couldn’t feel our skin? Can anyone help?
We are frightened to go to sleep tonight. We will do our usual bed time routine etc but trying to work this out so we can rationalise it a little.
😩😭
Oddly to try and ground now we are going to the supermarket and are hoping we come back to some ideas from the community. Although lots of systems in other parts of the world may not be around to help contribute. Our T thinks it may be a body memory but not sure.

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More from @AWonderBall

Dec 21
When she was someone’s wife, someone’s employee, someone’s boss, someone’s social planner, someone’s rock, someone’s bank, someone’s house mover someone’s font of know how, someone’s home & meal provider, someone’s champion then she was in demand, popular some might say.
Now she is not able to do those things for people in the same way. She is now we and we feel invisible. The body of course is visible but the role we played in peoples lives for most of our life is no more. No doubt they resent it.
I resent it, did not ask for this, yes it’s an amazing survival skill, yes we think others like us are some of the most insightful, imaginative, soulful, intelligent & wonderful people, but let’s face it, it’s shit. Where do people find hope in this existence?
Read 4 tweets
Jun 26
Anyone know of any credible articles or research on lack of mind/body connection affecting proprioception & movement? IE we’ve spent so long being detached from our bodies that new neural pathways need to be formed when doing physical exercise? #Dissociatwt #therapistconnect
Let me explain..if we’re learning a new move in the gym we often know we’ve sent a message to that body part to move but it doesn’t. We’ve found ways of helping pathway establish like slapping that area, looking at it, talking out loud, doing the movement at same time as others
When we are running, if there is anything that signals ‘danger’ eg we can’t see where our feet land, uneven ground, shade or low light and especially down hill sections we FREEZE. It could be that this is a separate ‘trigger’ but I think the two are connected.
Read 5 tweets
Oct 16, 2021
Hey peops with #DID #OSDD we reached out in a #DID forum to ask if anyone was prepared to help us a logo for our system name which is ETERNITY. As we’ve a background in marketing we gave some thought to our collective ‘brand identity’, a logo being an outward expression of that.
We wanted an alternative to ‘my’ face because of course not all of our internal family see themselves this way. So we very much hope this will help with the dysphoria system members feel when they see my image on social media in profiles etc.
We explained how our system name came about in the first live webinar we did which hopefully many of you have seen/listened to. We also took inspiration from the web about symbols that represent ETERNITY / eternal / infinity.
Read 10 tweets
Oct 14, 2021
A thread with a plea from your fans who missed seeing you in 2017 as you were poorly…..
@ZoeTheBall for the morning
Hello, it's me
I was wondering if after all these years you'd like to meet, to go over Wembley
They say that time's supposed to heal ya
But I ain't done much healing
Hello, can you hear me?
I'm in Cirencester dreaming about the day we were due to see you
When we were younger and free
I've forgotten how it felt
Before you fell poorly at our feet
Read 6 tweets
Oct 10, 2021
So what shall we post & do on this #WorldMentalHealthDay
One ‘alter’ despairs over the rejection & disappointment we feel when we don’t get engagement in our efforts to generate awareness & improve the base of knowledge with people outside of our own #mentalhealth community.
But then the same alter & ‘I’ have this inner drive and passion to see change and also to support others who aren’t able to speak out. So on one hand we are like why do we bother, what’s the point, nothing changes. People have their own lives, they don’t want to hear heavy stuff
They’d rather spend time watching movies & TV or just getting on with what’s in front of them, their responsibilities and we don’t ‘blame’ them, we understand. But you see we don’t have a choice, like anyone dealing with serious ‘illness’ and/
or dealing with stigma of any kind
Read 11 tweets
Oct 9, 2021
Hi @SwinGlosMind Thank you for the work you do. I am really disappointed at the moment with MIND. Whilst I understand that charitable status comes with limitations on what you are able to for individuals, I feel fobbed off about several broader societal issues I’ve raised with HQ
The two major issues I have raised are; * The lack of commissioned #NHS support for those with #DissocativeDisorders
* The ambiguous wording in exclusion clauses in income protection policies.
Both of these I have offered my painful accounts of lived experience for campaigning.
Each time I get signposted to fact sheets etc which doesn’t actually take the issues forward as an individual I don’t carry ‘clout’ & I’m tired of having to self advocate.
I know there are so many things you could tackle, but the issues I’m raising are potentially costing lives.
Read 4 tweets

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