Dr Rasmussen Profile picture
Jan 25 12 tweets 10 min read
One thing that sucks funding your child’s #autism therapy privately in this weird “not post Covid but we’re pretending” world is having to make the call of him staying home. Does he stay home with a runny nose? #COVID19 #onpoli
The for profit company who provides his therapy charges us $600 for an afternoon of the therapy time regardless so we start to do the “how sick is too sick game”. He’s negative for Covid, no fever, he’s no longer coughing but How sick is too sick? #autism #onpoli #covid
And despite all the promises the boy is still privately funded, 6 years after his diagnosis. We’re not at the $86,000 a year in therapy costs we were but it’s still about $45,000. Privately. With no help. #autism #onpoli #covid
His therapist had a cold and still went to work, other kids are sick there and at school. He’s vaccinated but can’t wear a mask. If he stays home it’s $600 and one of our days at work. How sick is too sick? #autism #onpoli #covid
I don’t have an answer. But if I in my privilege am struggling with this answer, imagine others choices and struggles with less privilege. This is a cascade from Lisa MacLeod’s choices. #onpoli #covid #autism
Privatizing care, having parent’s mortgage their homes means parents will have to make health care a financial choice. “Can I afford my rent if I can’t go to work” turns into “can I afford to pay for therapy he can’t go to and not go to work”. #autism #onpoli #covid
I have friends who scape together money for one or two therapy hours a month. And now Lisa MacLeod’s choices mean they chose between losing that money and not working or sending their child to therapy sick. That’s not a fair choice. #autism #covid #onpoli
It’s a shame @TheAgenda and @spaikin decided to focus only on Lisa MacLeod’s personal narrative around mental health issues and not on the mental and physical health issues she has helped cause #onpoli #covid #autism
Hopefully @spaikin and @TheAgenda does better & reaches out to families Lisa et al have hurt. that doesn’t seem to be the goal of @TheAgenda now. So while Lisa continues her redemption tour I will try to make up hours I lost & the $600 we spent without therapy. #onpoli #Autism
And btw we do know these were her choices. She had other options. she choose to gut the program for #autism right @fordnation ? You were involved in that. That’s been leaked. I wish #onpoli journalists would actually follow up on the leaks they’ve been given.
And honestly if Lisa MacLeod wants a redemption arch. If she wants to be considered anything but a failed politician who enjoyed hurting children she needs to step back from things like @TheAgenda and take ownership of what she did to disabled children. #autism #onpoli
Lisa - start with seriously thinking about what you did & why. Why did you mock parents, why did you agree to gutting the OAC & then fight against the legit criticism? Before you are redeemed you need to apologize and before that you need to own what you did. You cant skip steps.

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Dr Rasmussen

Dr Rasmussen Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @StandingHannah

Dec 7, 2022
Today the boy met two non verbal autistic teen boys at therapy. The boy went in for a hug (which is now a thing I guess) and they were lovely about it. One of the teens used his aac to say “dude personal space” #autism
The east of the time the boy tried to engage and the teens tired to pretend he wasn’t there. Which was actually what I would expect for teens and 7 year olds meeting. #autism
I got to sit next to a lovely non verbal teen as I tried to work in the waiting room and she kept trying to get me to log into my work account so she could use it. . .
Read 4 tweets
Dec 5, 2022
Today the boy woke up with bed head so his grandma brushed his hair. (Which he did not enjoy). At therapy his SPL asked him “who cuts your hair?” And he said (on his AAC) “grandma”. Not quite right but such a big sign of his receptive language and use of his AAC. #autism
The best part is that his therapists (spl and ABA) now ask me about what he says because it’s no longer just stimming or babbling all the time. And they know that and are not dismissing what he says. #autism
Non verbal people (kids and adults) are at a much higher risk of abuse. So him knowing his voice is being taken seriously is empowering to him in a way most of us can’t imagine. #autism
Read 4 tweets
Mar 6, 2022
Something I’ve been thinking about a lot - #autism doesn’t have borders (no disability does). I’m imaging the boy and the girl in #Ukraine️ and how I would get them out and then what getting them out would mean to them.
When the boy was a newborn I remember looking at his nursery thinking “if the Russians were bombing what would I grab”. I didn’t think I would wonder the same a week before his 7th birthday.
And he’s autistic. His sister is terrified about a school shooting because she knows he wouldn’t survive. Imagine parents of autistic children in #Ukraine️
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(