she/her. MLIS, PhD Information Systems, Post doctorates: health innovation, UWO; Library Science, HBS; mum of two autistic kids, self proclaimed bitch.
Jun 19 • 5 tweets • 2 min read
Not going to lie - I find it really hard some days seeing families with NT kids close to the boy’s age when we’re out and about. Like I worry I’m becoming anti-social hard. #autism
Today as we walked about I hard to keep reminding myself that the families biking together with kids the boy’s age probably weren’t as perfect as they looked. #autism
Jun 17 • 7 tweets • 7 min read
Five years ago today, 9 months after I flagged his loss of speech to our family doctor, the boy was officially diagnosed with level 2 (moderate) autism. He’s still waiting for proper support for medically necessary therapy. #autism#onpoli
Because of the delay in accessing therapy because we thought the wait list at @CHEO was moving (it wasn’t because it was frozen by @fordnation) the boy’s diagnosis was changed to level 3 severe #autism#onpoli
May 20 • 5 tweets • 2 min read
Best part is she doesn’t know this is OT. #autism
people don’t always understand and bounce into my DMs saying “games are therapy” but they are animals play games to learn how to survive. It’s literally what we do. Same as playing house, or chase or hide and go seek.
May 14 • 4 tweets • 3 min read
The girl asked me tonight about “co-morbidities” and #autism. We talked about the boy’s pica, and his Intellectual disability/delay. We also talked about stims and depression. I can’t imagine what’s going on in her head knowing she’s also autistic but her autism is so different.
She’s snuggled in with my old stuffy and all of her cats and I want to cry and open a bottle of wine. But I’m going to go for a run instead. #autism
Mar 6 • 5 tweets • 2 min read
Something I’ve been thinking about a lot - #autism doesn’t have borders (no disability does). I’m imaging the boy and the girl in #Ukraine️ and how I would get them out and then what getting them out would mean to them.
When the boy was a newborn I remember looking at his nursery thinking “if the Russians were bombing what would I grab”. I didn’t think I would wonder the same a week before his 7th birthday.