@TheRealMcCoy aka Meghan Profile picture
Jan 27, 2023 5 tweets 3 min read Read on X
Covid Concerned: 3,000 people are dying each week from #Covid.

It increases your risk for blood clots, strokes, and heart attacks.

#LongCovid is disabling millions. Look at how extensive the symptoms and damage are <shares studies>

Media: WhY aRe YoU fEaR mOnGeRiNG?
CC: But isn’t it right to be slightly scared of this virus? Especially if you expect us to get infected 3-4 times/year.

Media: yOu’Re Too AnGrY

CC: You’re not upset that we’re disabling millions? Or that #HighRiskCovid19 can’t go anywhere safely?

Media: wE hAVe To MoVe oN
CC: Move on? Can’t we do something? How about improving ventilation/filtration? Or wearing masks indoors?

Media: yOu’Re tOo aNxiOus. yOu’re tHe LaSt hOuldOuts

CC: We’re just trying to get the word out and help.

Media: cLoUt ChAsErs. in It fOr theE mOnEy
CC: What money? I think you have us confused with L*ana W*n or D*vid L*onhardt

Media: yOu’re jUst aN AnGry tWiTTeR mOb!

——-

And so on ad infintum.
Public health officials aren’t pointing out, let alone putting out the flames.

Media: This is fine

CC: Umm, could we maybe get some fire extinguishers in here? The flames and smoke don’t look too good.

Media: Fear mongering!

#Covid19 #CovidIsntOver #COVIDIsAirborne

• • •

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More from @RipperMD41

Nov 19
Let’s examine his statement.

He claims his editorial “was never written in a way to diminish or belittle the suffering we have all undergone in our lives.”

#Mecfs Screenshot of Autumn 2024 Editorial: Statement from Neil Riley, MEA Chairman November 19,2024  Highlighted text reads: First and foremost, I apologise wholeheartedly for any undue upset that the article caused. The piece was an opinion piece and was never written in a way to diminish or belittle the suffering we have all undergone in our lives.
Let’s contrast that with what he actually said in his editorial.

First he titles the piece “Animals need to move.” 😬

Not a stellar start.

#MECFS Screenshot of Autumn 2024 Editorial by Neil Riley, Chairman of ME Association.  Highlighted text reads: Animals need to move. This Editorial contains words which some might find disturbing. Those of a sensitive nature should look away now. Movement is good for you! There, I've said it. My dear friends on social media will be reaching for their keyboards as I write, pronouncing me a bio-social psychic proclaimer, a danger to the ME community and, oh horror, a follower of Wesely, White, et al.
He knows what he’s about to write will make ME patients upset. Does he care? Let’s look at his tone:

This Editorial contains words which some might find disturbing. Those of a sensitive nature should look away now.

#MECFS Screenshot of Autumn 2024 Editorial by Neil Riley, Chairman of ME Association.  Highlighted text reads: Animals need to move. This Editorial contains words which some might find disturbing. Those of a sensitive nature should look away now. Movement is good for you! There, I've said it. My dear friends on social media will be reaching for their keyboards as I write, pronouncing me a bio-social psychic proclaimer, a danger to the ME community and, oh horror, a follower of Wesely, White, et al.
Read 20 tweets
Jul 31
CW: medical abuse/neglect, death

Catching up on #MaeveInquest today and I have a few thoughts.

Begin rant
If I had a patient with an illness I knew little about, you’d bet I’d be digging into the literature, looking to experts and finding the best clinical advice I could.

Instead we’re seeing the consequences of hubris, overwork, and stigma.

#MECFS #MaeveInquest
Hubris is two fold.

There’s the systemic hubris: medicine knows everything there is to know about the human body. Therefore anything outside that knowledge “isn’t possible.”

Plus the individual hubris: If I don’t know the answer, no one does.

#MECFD #MaeveInquest
Read 15 tweets
Feb 2
As many of you know I tipped over into severe this past year (not good).

I'm now housebound.

Depressingly l also lost the ability to listen to music. I had limited how much I listened before but now even 1-2 songs was too much for my brain and could trigger PEM.

#MECFS
I should add I was really surprised by this drop because previously I was always able to handle auditory stimulation better than visual stimulation.

#MECFS
But recently I’ve discovered ways I can sort of listen again in short bursts.

Discovery #1 - Music I’m familiar with is less likely to crash me. My brain knows what is coming and when.

#MECFS
Read 9 tweets
Jan 27
CW:

This 🧵 mentions suicide, euthanasia, medical neglect.

And anger. Lots and lots of anger.

#MECFS
Yet another person with Myalgic Encephalomyelitis (ME) left this earth.

I’ve lost track of how many that is now. The posts appear every week or two. This person died by suicide. That person is setting a date for euthanasia.

#MECFS
It’s depressing, but expected and well, somewhat accepted.

Underneath you rarely read the trite phrases you see amongst the abled: if they only knew how much they were loved, what a waste, check on your loved ones, etc.

#MECFS
Read 15 tweets
Dec 31, 2023
I thought this might give you some perspective @JonFavs

From the earliest days of the Covid pandemic, people with #MECFS sent out warnings that there would be a large wave of a post-Covid condition like #MECFS
But no one listened.

#PodSaveJon
That same month first person accounts of what patients would call #LongCovid began appearing on Twitter.

#PodSaveJon

By June, @edyong209 started reporting on covid long-haulers.

Many had a mild illness in the acute phase that turned into a severe, debilitating chronic illness.

#PodSaveJon

theatlantic.com/health/archive…
Read 10 tweets
Dec 29, 2023
It seems many don’t understand why this bland cookie cutter statement is upsetting to some of us.

Let’s break it down.

🧵
First to get it out of the way:
He’s isolating —> good
In accordance with CDC guidance —> 🫤

CDC guidance is inaccurate and does not follow the science. Many are still contagious past day 5 of illness.

(Side note: the 5 day rule was created to appease businesses)
But what people are more upset about:

- “continue to work from home”
- only mitigation he mentions is the vaccine
- doesn’t mention the current Covid wave
Read 23 tweets

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