Catching up on #MaeveInquest today and I have a few thoughts.
Begin rant
If I had a patient with an illness I knew little about, you’d bet I’d be digging into the literature, looking to experts and finding the best clinical advice I could.
Instead we’re seeing the consequences of hubris, overwork, and stigma.
#MECFS #MaeveInquest
Hubris is two fold.
There’s the systemic hubris: medicine knows everything there is to know about the human body. Therefore anything outside that knowledge “isn’t possible.”
Plus the individual hubris: If I don’t know the answer, no one does.
As many of you know I tipped over into severe this past year (not good).
I'm now housebound.
Depressingly l also lost the ability to listen to music. I had limited how much I listened before but now even 1-2 songs was too much for my brain and could trigger PEM.
#MECFS
I should add I was really surprised by this drop because previously I was always able to handle auditory stimulation better than visual stimulation.
#MECFS
But recently I’ve discovered ways I can sort of listen again in short bursts.
Discovery #1 - Music I’m familiar with is less likely to crash me. My brain knows what is coming and when.