A 🧵 This #DIDAwarnessDay MeWe have some news to share. Since last October a small volunteer group, including ourselves, have been working hard to prepare for starting a charity for and by people with dissociative disorders, their supporters and professionals working in the field
* Improve access to appropriate and effective support and care
* Build a welcoming and thriving community
* Improve the recognition and understanding of dissociative disorders amongst health and social care professionals and the general public
* Build alliances with national and international practitioners and organisations so we can all work together towards shared positive outcomes for people with dissociative disorders
We are currently in the process of preparing for our application to The Charity Commission so that’s going to keep us busy for a while!
Once established, we plan to start small and grow as resources and opportunities become available.
If you think you might be able to help or want to get involved with our emerging charity, for now simply Tweet us @theDDAglobal so that we can bookmark you for further down the line.
In the meantime, please share this thread and the news with anyone who you think might be interested that The DDA is on its way! Also give @TheDDAGlobal a follow so we can build follower numbers for when we have The Dissociative Disorders Alliance up and running #didawarenessday.
People with lived experience of #dissociativedisorders, supporters and professionals working in the field will run @TheDDAGlobal and we are truly grateful to everyone who has played a part to getting us this far.
At some future point we plan to send out a questionnaire to the community to help shape our thinking and ideas. We will need all the help and support we can get, including raising funds to establish @TheDDAGlobal before we begin our activities, so please bear with us.
We are really excited about all the possibilities in front of us that will enable us, alongside you all, our allies, to make meaningful and lasting positive change for people with dissociative disorders.
Thanks for reading and sharing. Whilst after today all may appear quiet for a while from @TheDDAGlobal, rest assured alongside our extensive daily challenges of living with #dissociativeidentitydisorder we and others will be doing the important preparation work. #didawarenessday
Hey #Dissociatwt We had one of the most terrifying somatoform symptoms last night, possibly after a trauma dream but it’s all foggy. We could feel our legs but could not feel the outsides of our skin on our top half but we were able to move our limbs. At the same time the inside
of our body was hurting so much, it felt like we were drugged. The pain was such that we felt we needed a huge amount of pressure to relieve it BUT we couldn’t feel our skin on any of our top half of our body. We tried rocking to feel the bed underneath us, we tried slapping
we still couldn’t feel and we felt trapped as we couldn’t get enough momentum to get out of bed as our top half wasn’t able to feel the edges of body. I then thought maybe if I doubled over our weighted blanket that would help but it didn’t. I then tried punching and that helped
When she was someone’s wife, someone’s employee, someone’s boss, someone’s social planner, someone’s rock, someone’s bank, someone’s house mover someone’s font of know how, someone’s home & meal provider, someone’s champion then she was in demand, popular some might say.
Now she is not able to do those things for people in the same way. She is now we and we feel invisible. The body of course is visible but the role we played in peoples lives for most of our life is no more. No doubt they resent it.
I resent it, did not ask for this, yes it’s an amazing survival skill, yes we think others like us are some of the most insightful, imaginative, soulful, intelligent & wonderful people, but let’s face it, it’s shit. Where do people find hope in this existence?
Anyone know of any credible articles or research on lack of mind/body connection affecting proprioception & movement? IE we’ve spent so long being detached from our bodies that new neural pathways need to be formed when doing physical exercise? #Dissociatwt#therapistconnect
Let me explain..if we’re learning a new move in the gym we often know we’ve sent a message to that body part to move but it doesn’t. We’ve found ways of helping pathway establish like slapping that area, looking at it, talking out loud, doing the movement at same time as others
When we are running, if there is anything that signals ‘danger’ eg we can’t see where our feet land, uneven ground, shade or low light and especially down hill sections we FREEZE. It could be that this is a separate ‘trigger’ but I think the two are connected.
Hey peops with #DID#OSDD we reached out in a #DID forum to ask if anyone was prepared to help us a logo for our system name which is ETERNITY. As we’ve a background in marketing we gave some thought to our collective ‘brand identity’, a logo being an outward expression of that.
We wanted an alternative to ‘my’ face because of course not all of our internal family see themselves this way. So we very much hope this will help with the dysphoria system members feel when they see my image on social media in profiles etc.
We explained how our system name came about in the first live webinar we did which hopefully many of you have seen/listened to. We also took inspiration from the web about symbols that represent ETERNITY / eternal / infinity.
Hello, it's me
I was wondering if after all these years you'd like to meet, to go over Wembley
They say that time's supposed to heal ya
But I ain't done much healing
Hello, can you hear me?
I'm in Cirencester dreaming about the day we were due to see you
When we were younger and free
I've forgotten how it felt
Before you fell poorly at our feet
So what shall we post & do on this #WorldMentalHealthDay
One ‘alter’ despairs over the rejection & disappointment we feel when we don’t get engagement in our efforts to generate awareness & improve the base of knowledge with people outside of our own #mentalhealth community.
But then the same alter & ‘I’ have this inner drive and passion to see change and also to support others who aren’t able to speak out. So on one hand we are like why do we bother, what’s the point, nothing changes. People have their own lives, they don’t want to hear heavy stuff
They’d rather spend time watching movies & TV or just getting on with what’s in front of them, their responsibilities and we don’t ‘blame’ them, we understand. But you see we don’t have a choice, like anyone dealing with serious ‘illness’ and/
or dealing with stigma of any kind