A funny thing is happening as I regain parts of my life as a result of receiving #HBOT after a 14 month battle with #LongCovid. While I'm incredibly grateful to be one of the lucky ones who found a treatment they respond to I'm also trying to come to terms with the possibility
That some of the damage maybe permanent. For example the other day I was taking the boat out after a spin up the river, there is a winch on the stern that keeps the boat on the trailer. I couldn't figure out how it works. I've been using those winches for years. Literally like
Second nature to me. It operates in such a way as you have to have several things lined up so it will tighten properly. Not matter what I did I could not put the pieces together. #Brainfog means I am unable to do tasks which require multiple areas of focus.
Its very difficult to explain the impact this has on you as a person.
To explain how it feels to draw a total blank. The information, neural capacity isn't there. It's terrifying, things you used to do are beyond you. You worry it will be progressive.
The latest science suggests this damage maybe permanent. No where in the public health messaging did it warn us that exposure to this virus could cause permanent brain damage. It's like a flu they said. We need to keep the economy moving they said.
Well it came at a price. I'm meant to think for a living. I'm an academic researcher. Figuring out complex multi faceted problems is my livihood. But I can't tighten a winch on the back of my boat. But it's grand ill make do with my 220 euro a week. #accountability#publichealth
The state should be thinking about how they are going to support those with #LongCovid. Instead they are trying to withdraw support to our nurses and front line staff on the 30th of June. It really is time for a change in this country. #housing#health#welfare all a shambles.
A few people have asked for a single thread on my journey through #HBOT (Hyper baric oxygen therapy) for #LongCovid So here goes. Before I started I was in bad shape. Mostly bed bound. Profound tinnitus, PEM - 300 m was the absolute limit. A trip to the shops was tough going.
I had coat hanger pain all the time. Neck and shoulders. Tremor in my hands, legs and jaw. Profound brainfog I couldn't read, had memory problems and couldn't complete any complex tasks. My mood was incredibly low. Hopelessness , despair and anger. I had sleeplessness
And nightmares every night. I woke feeling exhausted never felt refreshed or comfortable in the bed. Crushing fatigue everyday I never felt energised and had basically become a recluse. What energy I had I used to sift through twitter and medical journals to find anything that
I'm somewhere mid twenties in my #HBOT sessions. There was a four day gap between sessions this week. By last night I was starting to feel pretty wiped. The 3 hour drive is tough on my best days. After my session today I'm totally wiped. Grumpy and sleepy all day. #LongCovid
What usually happens is by tmrw today's session will have taken effect and ill be feeling much better. Lots of people have asked questions about not feeling good or not feeling any relief after sessions. It takes time. I was on session 22 (ill have to look it up-brain fog) before
I felt significantly better. I met a girl today who I met last week and she was worried cause she was wiped after sessions. This week on session 9 she is still wiped but starting to feel rested when she wakes in the morning. Progress.