Exactly this. Disgusted by @Spectrum’s irresponsible tabloid-style journalism. Intentionally misrepresenting #neurodiversity to fuel this toxic manufactured autism “war” that helps NO ONE, especially those who would be considered to have #profoundautism. /1
Is the #autism “community” in a delusional time warp? Because the value of non-stigmatizing language & participatory #research is well documented in many fields. It’s not some new phenomenon conjured up by random #ActuallyAutistic ppl. Seriously? /2
Mar 2, 2022 • 25 tweets • 7 min read
Jacob David, Jaycee Eubanks, Isiah Desmond Kirk, Mercedes Losoya, Deonn Carter, Jzya Thompson, RonNiveya O'neal, Stavian Driver, Marchs McGhee, Aaron Carter, Gavin Douyon, Nicole Amari Hall, Elijah McCain, Stephon Wotts, Melissa Stoddard. Kendrick Lee, Izzy Techenor.
Kobe Heisler, Avonte Oquendo, Reece Watts, Jeremiah Degrate Rios, Omarion Humphrey, Maleah Davis, Keydall Jones, Rashaad Germany Jr, Duke Flores, Chris Castillo, unnamed 7 year old girl (hit and run), unnamed 10 year old boy (murdered), Jayliel Vega Bautista, Gabriel King.
Jan 20, 2022 • 18 tweets • 8 min read
(Waves in greeting.)
I see tons of #ActuallyAutistic folx chiming in on #Sia today, & I hope that you all will devote the same fervor to going to this link: iacc.hhs.gov/meetings/publi… to quickly make Public Comments for the upcoming US federal autism IACC meeting in April 2022. /1
I realize making Public Comment about #autism research & policy is not trendy nor exciting like celebrity news, BUT it’s a platform: iacc.hhs.gov/meetings/publi… to potentially help influence important issues impacting the lives of millions of autistic ppl & their families. /2
Oct 18, 2021 • 23 tweets • 14 min read
It has never been my desire to be someone who constantly has to call people/orgs out. Because believe me, I am far, far from perfect. But sometimes you try to work from within & folx tell you to STFU…leaving you no choice. A thread, & I’ma need serious signal boosting, please./1
Again, I TRIED to resolve this w/the individuals & the orgs most centrally involved. But that just resulted in me being gaslighted by @FamilyVoices & accused of “vilifying” others when all I wanted was equity for #ActuallyAutistic#Black parents/self-advocates./2
Oct 16, 2021 • 13 tweets • 5 min read
. @JillEscher, I see you’ve-not-so-subtly written about me on the @NCSAutismOrg blog in which, among other things, you make a number of inaccurate, sweeping generalizations that erase me & my family’s reality.
You clearly want to talk ABOUT me. How about you actually talk TO me?
According to you, my family & I NEVER have to contend w/anything like “severe social-communication impairments, cognitive deficits, significant challenges in basic living skills, sensory dysregulation & maladaptive behaviors”, so presumably I can easily make time for you, right?
Jun 19, 2021 • 12 tweets • 3 min read
I respect Finn’s clarification & concur. Not all signatories experienced the specific conflicts noted in the memo- though several, named & unnamed, did. (I didn’t have personal conflicts either.) All authors share a desire for more inclusive, transparent practices @ ASAN, though.
I will try to make edits to the letter, but I have been having difficulty accessing the site it’s posted on, so I don’t know how quickly the changes can be made.
I do want to emphasize that as I have stated repeatedly, I harbor no ill will toward @autselfadvocacy. (thread)
