Helen Goss Profile picture
🏴󠁧󠁢󠁳󠁣󠁴󠁿 @longcovidkids ❤️‍🔥 Parent/carer #LongCovidKids 🤘🏼 Advocate #LongCovid 🐾 Cat spam 🪐 Space nerd 🌪️ Chronically persistent force of nature

Mar 28, 2023, 8 tweets

Day 1 of @itvmeridian #LongCovidKids series by @StaceyPooleITV

Hannah, 14: "It's like your whole world comes crashing down... I've just been thrown into this & I don't know what to do."

🧵1

#LongCovidKids #LongCovid #COVID19 #MedTwitter #EduTwitter @DrGregorSmith @jasonleitch

Hannah: "It almost doesn't feel like my body anymore.. It's just, not me."

Emily: "It just felt uncontrollable. I've never felt that sort of pain before."

Ems Dad: "It's been a living nightmare"

#LongCovidKids #LongCovid #COVID19 @LindaBauld @haughey_clare @JimFairlieLogie
2/

The impact on the entire family can be devastating. "A horror story."

Emily was a healthy, happy, active child & now is registered disabled with significant mobility problems. Not seeing her friends has made her depressed, anxious & angry😔

#LongCovidKids #LongCovid #COVID19
3/

"I can't think of things straight & it all comes in a weird muddle, in a mess"

"It's life-changing. I thought I was fine, I just had a sniff & a cold but then actually I've become like this. So just, be careful."

#LongCovidKids #LongCovid #COVID19 @JohnHardenED @mairi_stark
4/

Day 2 of @itvmeridian #LongCovidKids series by @StaceyPooleITV

Logan, 12: "Dad, what's going on? Why is this happening to me?"

"I'm always tired. I've got a lot of pain in my head & my joints."

#LongCovidKids #LongCovid #COVID19 @1goodtern @DrRanj @DrAnnaNZ @JTSglobalhealth
5/

"You don't cope with it, as a parent. You put on a brave face and you try to say the encouraging things to keep the spirit in your home uplifted. You tell people that he's doing alright because you don't want to burden people by telling the truth."

#LongCovidKids #LongCovid
6/

Hayden, 14, has been bedbound for over 2 years: "I might literally move from my bed to my chair, all in one room, and that will be my whole day"

Kath: "He couldn't understand a simple conversation. It would be like my Dad who had vascular dementia."

#LongCovidKids #LongCovid
7/

Hayden: "I have to be cautious about hope" [for recovery]

🏴󠁧󠁢󠁥󠁮󠁧󠁿 has Long Covid clinics which have varying reports from families.

In 🏴󠁧󠁢󠁳󠁣󠁴󠁿 we have no clinics. A postcode lottery on Paed pathways. Majority of 🏴󠁧󠁢󠁳󠁣󠁴󠁿 families have no choice but to go private.

#LongCovidKids #LongCovid
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