The impact on the entire family can be devastating. "A horror story."
Emily was a healthy, happy, active child & now is registered disabled with significant mobility problems. Not seeing her friends has made her depressed, anxious & angry😔
"You don't cope with it, as a parent. You put on a brave face and you try to say the encouraging things to keep the spirit in your home uplifted. You tell people that he's doing alright because you don't want to burden people by telling the truth."
Father’s Day isn’t easy for everyone.
Some of us are grieving people who are still alive.
He watched us become sick, housebound, and Anna, bedbound.
He saw me drowning;
caring,
grieving,
surviving.
#FathersDay2025
#LongCovidKids
#LongCovid
When I was struggling to cope caring for my chronically ill, newly disabled child, I begged for help w/my overgrown garden: “It’s your garden, your responsibility.”
Months later, I learned he was regularly helping my sister with hers.
#FathersDay2025
#LongCovidKids
#LongCovid
On a call in Dec '22, I asked if (just for 1 week b4 Xmas) he would wear a mask to the supermarket, so Anna & I could safely spend Xmas Day with family.
His response: “It’s your choice to live this way, not mine.”
We spent Xmas alone.
#FathersDay2025
#LongCovidKids
#LongCovid
Today, our family announce formal legal action after years of denied care for Anna's #LongCovid #LongCovidKids
We aim to hold @NHSGrampian accountable for consistent failures in their duty of care, secure the healthcare Anna needs, & drive positive change.
Our statement👇
The first case of legal action for #LongCovidKids in 🏴 It may be the first globally.
"Catherine McGarrell, of @TalkToThompsons said: "As a result of the multiple failings & repeated failures, Anna's condition is much worse than what it should be" bbc.co.uk/news/uk-scotla…
The mother of a schoolgirl whose life has been "devastated" by long Covid is suing @NHSGrampian for medical negligence in a landmark legal action.
Seeking damages for causing "harm & trauma" to her 11yo daughter, Anna, as a result of "repeated" failures.
Not these🍳🍳
👉 Paediatric Acute-Onset Neuropsychiatric Syndrome.
In March '20 we had #COVID19 for the 1st time. #SARSCoV2 triggered #LongCovidKids & #PANS. We've since had 2 further infections. Each one has made her worse.
🧵
1
I can't describe #PANS because words don't capture the horror of your sweet, shy, polite little girl turning into what can only be described as a cross between Samara from The Ring and a full on banshee vampire intent on vengeance and destruction.
TW: Video IS distressing.
2
This is not bad behaviour. This is caused by a misdirected immune response to infection = widespread inflammation, including in her brain. Her brain is on fire.
She has absolutely no control. She screams until she wretches (and on occasion, vomits) It's scary for her. #PANS