🏴@longcovidkids
❤️🔥Parent/carer #LongCovidKids
🤘🏼Advocate #LongCovid
😻x5
🪐Space nerd
🌪️Chronically persistent force of nature
Jun 15 • 6 tweets • 3 min read
Father’s Day isn’t easy for everyone.
Some of us are grieving people who are still alive.
He watched us become sick, housebound, and Anna, bedbound.
He saw me drowning;
caring,
grieving,
surviving.
#FathersDay2025
#LongCovidKids
#LongCovid
When I was struggling to cope caring for my chronically ill, newly disabled child, I begged for help w/my overgrown garden: “It’s your garden, your responsibility.”
Months later, I learned he was regularly helping my sister with hers.
#FathersDay2025
#LongCovidKids
#LongCovid
Jan 18, 2024 • 10 tweets • 4 min read
Today, our family announce formal legal action after years of denied care for Anna's #LongCovid #LongCovidKids
We aim to hold @NHSGrampian accountable for consistent failures in their duty of care, secure the healthcare Anna needs, & drive positive change.
Our statement👇
The first case of legal action for #LongCovidKids in 🏴 It may be the first globally.
"Catherine McGarrell, of @TalkToThompsons said: "As a result of the multiple failings & repeated failures, Anna's condition is much worse than what it should be" bbc.co.uk/news/uk-scotla…
Not these🍳🍳
👉 Paediatric Acute-Onset Neuropsychiatric Syndrome.
In March '20 we had #COVID19 for the 1st time. #SARSCoV2 triggered #LongCovidKids & #PANS. We've since had 2 further infections. Each one has made her worse.
🧵
1
I can't describe #PANS because words don't capture the horror of your sweet, shy, polite little girl turning into what can only be described as a cross between Samara from The Ring and a full on banshee vampire intent on vengeance and destruction.