🏴&COO @longcovidkids
❤️🔥Parent/carer #LongCovidKids
🤘🏼Advocate #LongCovid
😻x5
🪐Space nerd
🌪️Chronically persistent force of nature
Jan 18, 2024 • 10 tweets • 4 min read
Today, our family announce formal legal action after years of denied care for Anna's #LongCovid #LongCovidKids
We aim to hold @NHSGrampian accountable for consistent failures in their duty of care, secure the healthcare Anna needs, & drive positive change.
Our statement👇
The first case of legal action for #LongCovidKids in 🏴 It may be the first globally.
"Catherine McGarrell, of @TalkToThompsons said: "As a result of the multiple failings & repeated failures, Anna's condition is much worse than what it should be" bbc.co.uk/news/uk-scotla…
Not these🍳🍳
👉 Paediatric Acute-Onset Neuropsychiatric Syndrome.
In March '20 we had #COVID19 for the 1st time. #SARSCoV2 triggered #LongCovidKids & #PANS. We've since had 2 further infections. Each one has made her worse.
🧵
1
I can't describe #PANS because words don't capture the horror of your sweet, shy, polite little girl turning into what can only be described as a cross between Samara from The Ring and a full on banshee vampire intent on vengeance and destruction.