Helen Goss Profile picture
🏴󠁧󠁢󠁳󠁣󠁴󠁿 @longcovidkids ❤️‍🔥 Parent/carer #LongCovidKids 🤘🏼 Advocate #LongCovid 🐾 Cat spam 🪐 Space nerd 🌪️ Chronically persistent force of nature
Jan 18 10 tweets 4 min read
Today, our family announce formal legal action after years of denied care for Anna's #LongCovid #LongCovidKids

We aim to hold @NHSGrampian accountable for consistent failures in their duty of care, secure the healthcare Anna needs, & drive positive change.

Our statement👇 Image The first case of legal action for #LongCovidKids in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 It may be the first globally.

"Catherine McGarrell, of @TalkToThompsons said: "As a result of the multiple failings & repeated failures, Anna's condition is much worse than what it should be"
bbc.co.uk/news/uk-scotla…
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Mar 28, 2023 8 tweets 12 min read
Day 1 of @itvmeridian #LongCovidKids series by @StaceyPooleITV

Hannah, 14: "It's like your whole world comes crashing down... I've just been thrown into this & I don't know what to do."

🧵1

#LongCovidKids #LongCovid #COVID19 #MedTwitter #EduTwitter @DrGregorSmith @jasonleitch Hannah: "It almost doesn't feel like my body anymore.. It's just, not me."

Emily: "It just felt uncontrollable. I've never felt that sort of pain before."

Ems Dad: "It's been a living nightmare"

#LongCovidKids #LongCovid #COVID19 @LindaBauld @haughey_clare @JimFairlieLogie
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Mar 3, 2023 12 tweets 10 min read
What's it like to have a kid with #PANS?

Not these🍳🍳
👉 Paediatric Acute-Onset Neuropsychiatric Syndrome.

In March '20 we had #COVID19 for the 1st time. #SARSCoV2 triggered #LongCovidKids & #PANS. We've since had 2 further infections. Each one has made her worse.

🧵

1 I can't describe #PANS because words don't capture the horror of your sweet, shy, polite little girl turning into what can only be described as a cross between Samara from The Ring and a full on banshee vampire intent on vengeance and destruction.

TW: Video IS distressing.

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