Helen Goss Profile picture
🏴󠁧󠁢󠁳󠁣󠁴󠁿@longcovidkids ❤️‍🔥Parent/carer #LongCovidKids 🤘🏼Advocate #LongCovid 😻x5 🪐Space nerd 🌪️Chronically persistent force of nature
Jun 15 6 tweets 3 min read
Father’s Day isn’t easy for everyone.
Some of us are grieving people who are still alive.

He watched us become sick, housebound, and Anna, bedbound.

He saw me drowning;
caring,
grieving,
surviving.

#FathersDay2025
#LongCovidKids
#LongCovid Image When I was struggling to cope caring for my chronically ill, newly disabled child, I begged for help w/my overgrown garden: “It’s your garden, your responsibility.”

Months later, I learned he was regularly helping my sister with hers.

#FathersDay2025
#LongCovidKids
#LongCovid Image
Jan 18, 2024 10 tweets 4 min read
Today, our family announce formal legal action after years of denied care for Anna's #LongCovid #LongCovidKids

We aim to hold @NHSGrampian accountable for consistent failures in their duty of care, secure the healthcare Anna needs, & drive positive change.

Our statement👇 Image The first case of legal action for #LongCovidKids in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 It may be the first globally.

"Catherine McGarrell, of @TalkToThompsons said: "As a result of the multiple failings & repeated failures, Anna's condition is much worse than what it should be"
bbc.co.uk/news/uk-scotla…
Image
Mar 28, 2023 8 tweets 12 min read
Day 1 of @itvmeridian #LongCovidKids series by @StaceyPooleITV

Hannah, 14: "It's like your whole world comes crashing down... I've just been thrown into this & I don't know what to do."

🧵1

#LongCovidKids #LongCovid #COVID19 #MedTwitter #EduTwitter @DrGregorSmith @jasonleitch Hannah: "It almost doesn't feel like my body anymore.. It's just, not me."

Emily: "It just felt uncontrollable. I've never felt that sort of pain before."

Ems Dad: "It's been a living nightmare"

#LongCovidKids #LongCovid #COVID19 @LindaBauld @haughey_clare @JimFairlieLogie
2/
Mar 3, 2023 12 tweets 10 min read
What's it like to have a kid with #PANS?

Not these🍳🍳
👉 Paediatric Acute-Onset Neuropsychiatric Syndrome.

In March '20 we had #COVID19 for the 1st time. #SARSCoV2 triggered #LongCovidKids & #PANS. We've since had 2 further infections. Each one has made her worse.

🧵

1 I can't describe #PANS because words don't capture the horror of your sweet, shy, polite little girl turning into what can only be described as a cross between Samara from The Ring and a full on banshee vampire intent on vengeance and destruction.

TW: Video IS distressing.

2