"As the meaning of the term has expanded, some #ePatients have developed a high level of expertise & in turn have taken a leadership role within the ePatient movement. @StanfordMedX has coined the term ePatient scholar to describe these leaders...." /1

ojin.nursingworld.org/mainmenucatego…
Nelson, R., (September 13, 2016) "Informatics: Empowering ePatients to Drive Health Care Reform - Part I" OJIN: The Online Journal of Issues in Nursing Vol. 21, No. 3.

ojin.nursingworld.org/mainmenucatego… /2
"The leaders introduced below demonstrate what equipped, enabled, empowered, & engaged patients can and will do to gain a proactive role in managing their healthcare. They demand ‘Give me my own damn data’ & even point out that the data are often dirty." /3
"Such #ePatient leaders do not seek to replace us as healthcare providers or our key role in meeting their healthcare needs, but rather they seek to be our colleagues; clearly at this point we need their help."

ojin.nursingworld.org/mainmenucatego… /4
"The World Bank (2011) has defined empowerment as “the process of increasing the capacity of individuals or groups to make choices and to transform those choices into desired actions and outcomes.” The definition clearly fits with the concept of an #ePatient." /5

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More from @Altostrata

8 Oct
@DrFulli @lapsyrevoltee I do agree, Dr. Fulli. Response to the drug most certainly is not a diagnosis, & those physicians who conclude an adverse reaction to an #antidepressant is diagnostic of bipolar disorder not only have poor pharmacology knowledge but poor logical skills as well. /1
@DrFulli @lapsyrevoltee Even people with no pre-existing #psychiatric symptoms may have a severe adverse reaction to an #antidepressant or any other psychotropic.

Conversely, any psychotropic might relieve "depression" in someone, eg. amphetamines or opiates. This is another law of psychotropics. /2
@DrFulli @lapsyrevoltee For what it's worth, I have a collection of case studies where people had immediate severe adverse reactions to #antidepressants & even though they quit within a handful of doses, suffered symptoms identical to post-acute withdrawal syndrome #PAWS for months or years. /3
Read 12 tweets
6 Oct
"Professionalism in any field requires keeping pace with change, & nowhere is it more true than medicine....valid knowledge may come from the patient as well as from clinician resources: a sociological change driven by technological change." #psychiatry /1 journals.sagepub.com/doi/10.1177/00…
"Case after case is presented showing that patients today have generated undeniable value, violating the expectations and assumed best practices of the old model." doi.org/10.1177/009121… /2
"standards of professionalism & appropriate care must be updated, lest we fail to achieve best possible care....new standard must be to teach clinicians to recognize, welcome, & work with empowered #epatients in the new model of participatory medicine." doi.org/10.1177/009121…
Read 4 tweets
3 Oct
UK woman tapering paroxetine: "After 18 years of stupor—of emotionless head fog, of sleeping 14 hours a day, of apathy—I’m succeeding in getting off the #antidepressant Seroxat." /1

linkedin.com/pulse/learning…
After reducing to 7mg paroxetine: "I spent the first half of 2019 in continual, breathless, agitated terror.
....
I couldn’t sit still, and my constant squirming made my partner cry. I suspect I had something I’ve since found out is called #akathisia." linkedin.com/pulse/learning…
"Within days of that first panic attack in January [2109], I decided to stop tapering the Seroxat and stay on the same 7mg dose. I got in touch with my GP to tell her what had happened.

I was referred to the local mental health crisis team." /3 linkedin.com/pulse/learning…
Read 14 tweets
3 Oct
@psychunseen: "...if the goal of anti-psychiatry is to get #psychiatrists to listen...this is better done within a therapeutic relationship, not in a picket line at the American Psychiatric Association annual meeting or on social media" apparently refers to me personally. /1
I thought it stood out as particularly illogical in his most recent screed psychologytoday.com/us/blog/psych-…

Who pickets the APA other than Scientology?
Then I recalled I had attended an APA meeting where there were pickets. I did not do any picketing myself, but I was invited to speak outside:

/3
Read 16 tweets
21 Sep
"They considered their findings generalisable across healthcare....” bmj.com/content/370/bm… /1
"Perhaps most striking was the testimony from 100s of patients reporting lack of informed consent for...initial treatment, followed by years of dismissal by clinicians & regulators who did not want to associate life altering symptoms or injured children with their [products]" /2
"The review panel found that healthcare providers’ dismissive attitude toward patients was underpinned by a reluctance in all parts of the system to collect evidence on potential harms...." /3
Read 8 tweets
11 Sep
Please explain to me what "relationship" means in:

"Unfortunately, some patients who identify with being harmed by psychiatry have given up on finding that kind of relationship and instead attempt to find meaning in identity as an injured party." /1

medpagetoday.com/psychiatry/gen…
I think "give up on finding that kind of relationship" may mean: "stopped deferring to the expertise of #psychiatrists in defining their reality". A crime, apparently. Also disregards that if a patient is injured, it's not an identity, it's a fact, not to be "negotiated" away. /2
This further suggests authors of this article believe injured patients are willingly injured -- perhaps somaticizing? -- rather than being the unwilling victims of an accident of fate brought on by #psychiatric treatment, which is known even by #psychiatrists to have pitfalls. /3
Read 6 tweets

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