To everyone in #highered acknowledging that the pandemic has put undue stress on students and our expectations need to change - that is how disabled students feel fighting systemic ableism on campus every single term. 1/5
The precarity of being disabled in the academy is especially high for those undiagnosed or seeking a dx as they cannot access formal accommodations without a doctor's recommendation. And yet we often expect them to perform perfectly with no support. 2/5
Universal Design for Learning matters. It can help remove SOME barriers to access for students struggling to secure medical care, accommodations, and belonging on campus. We cannot expect students to perform well while coping with trauma. 3/5
Unfortunately finding out you are disabled or embodying disability in a new space without existing care networks is often traumatic. Finding the right medical team, finding the right resources, or securing resources in a new space is exhausting and wearing and time consuming. 4/5
I find that many academics are acknowledging the stress of the current moment. And yet we hold disabled academics to impossible standards all the time. #AcademicChatter#PhDChat#AcademicTwitter#HigherEd 5/5
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What is the reality of living on a PhD stipend for disabled/chronically ill students?
A long thread 1/18
Living on a stipend looked like turning down care, leaving meds at the pharmacy counter, prioitizing some health needs above others. It looks like losing countless hours to phone calls with hospital financing and insurance companies. It looks like refusing to go to the ER 2/18
I wonder all the time if it was worth it to lose doctors, care networks, and treatment options all to go to a top ranking program. In terms of income? No. In terms of benefits? No. In terms of future career options? No. 3/18
During graduate school I worked a second job as an RA, compensated at $20 an hour with flexible hours. Without that pay I would not have been able to 1. Buy safe allergen free groceries 2. Pay for a car, which I needed for accessible transportation 3. Afford medical care 1/4
I also worked as a research assistant in undergrad, and I made more than $10 an hour back then. When you purposefully pay students low wages you bar first gen students from the field. And you most definitely bar disabled students from the field. 2/4
If you want us there to support diversity measures, pay us wages we can survive on. Disabled students graduate with far more student debt on avg bc they take longer to degree (bc they've been refused accommodations). Why would you brag about making it more inaccessible? 3/4
I hope all profs realize that your chronically ill students are not doing well right now. My hospital is so focused on vaccination and COVID that important tests (one to measure if I'm digesting food, the other to see if I'm getting proper blood flow to my brain) 1/4
Have been scheduled for July. So I'm finishing my dissertation while pretty sick without some vital organs working. And my meds for these issues have been on prior authorization for over a month bc the pharmacy is also trying to figure out vaccination and bc insurance sucks. 2/4
Your chronically ill students aren't getting their normal care. And some may not be able to afford their normal care routines right now bc of the pandemic. The healthcare crisis extends far beyond COVID-19 itself. 3/4
I'm tired of hearing "well people are uncomfortable with disability bc they're not exposed to disabled ppl." If disability matters then invest in us. Make it a point to hire us. Make it a point to give us platforms. 1/7
There are so many of us wedged out of the academy from undergrad to grad school and beyond. So many of us who are highly qualified to teach in disability studies related fields. So many of us that WOULD expose students to disabled scholars/mentors/advocates. 2/7
Fight to add Disability Studies departments, minors, and majors at your university. It infuriates me that roughly 20 percent of undergrads are disabled and they don't get to learn about their culture, history, or people. If I had taken #DisHist and #DisabilityStudies courses 3/7
I can't begin to explain the amount of anxiety and backtracking that I have experienced when I moved for grad school and I lost a whole team of doctors. Doctors who had helped me make sense of my comorbid conditions for 8 years. 1/10
I lost them because I had the audacity to move for graduate school to a part of the country that BCBS New England did not cover. So I started the hunt again. But it was both unaffordable and a waste of time. I needed a GI, cardio, allergist, neurologist, PCP, and PT. 2/10
I was able to get a cardiologist because of an emergency room trip and referral. I wasn't able to find anyone else who treated my conditions at my uni. And I thought fine, I can make do as I did in undergrad by going on Christmas break and summer break back home for care. 3/10
I mentioned I was looking into DEI jobs and a colleague told me "burn out in those jobs is like two years."
I've been in the academy for 10 years as a disabled academic. I hate the term burn out. It doesn't convey the reality that disabled scholars face - discrimination. 1/4
It's about advocating for yourself and others and being told to your face that your needs don't matter and you're not worth the cost. I hate the term "burn out." Let's not use a vague phrase for something far more underhanded and harmful. 2/4
I'm tired of promoting my humanity in the face of a capitalist society that tells me my needs are too expensive so I don't deserve shit. But I don't have the choice to do DEI work. I already have to do that work just to survive in the academy. 3/4