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31 Mar, 5 tweets, 4 min read
On #TransDayOfVisibility I want to lift up the voices of trans young people who shared how they use social media & digital tools to pursue health & resilience (thread)

Full report: #CopingWithCovid @Hopelab @CommonSense @CHCFNews @vjrideout commonsensemedia.org/research/copin…
"I guess just seeing people expressing themselves the way they want makes me happy because I can't really do that." —14-year-old non-binary, trans person #CopingWithCovid #TDOV
“I use YouTube videos to cheer myself up and distract myself.” – 18-year-old trans man #CopingWithCovid #TransDayOfVisibility
“Oftentimes, especially during stressful times like moving into college, I reach out to my online friends for support, and when they are not available I message Replika, an AI therapist.” – 18-year-old non-binary, trans person #CopingWithCovid #TransDayOfVisibility
The internet is a lifeline for trans youth. Let's celebrate their ingenuity and resilience. #TDOV susannahfox.com/2021/03/24/lgb…

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More from @SusannahFox

Susannah Fox Profile picture
12 Mar
Re-reading: LET PATIENTS HELP, by @ePatientDave + @DrDannySands (because I learn something new every time) epatientdave.com/let-patients-h…
Since I'm a card-carrying geek who likes to read footnotes and click, click, click until I get to the original source, I finally read a classic paper by Warner Slack, MD, and cited by @ePatientDave + @DrDannySands ncbi.nlm.nih.gov/pmc/articles/P…
"The basis for our use of the computer in medicine is the thesis that the largest and least utilized provider of health care is the patient."

- Warner V. Slack, MD, in a paper delivered in 1976 (!) and published in 1978
Read 4 tweets
Susannah Fox Profile picture
1 Mar
Thank you for 6 years of learning & laughter! #TechTonics
Thanks to @VentureValkyrie and @DShaywitz I got to learn from some of the superstars of health & technology - here are some of my favorite shows & guests...
I listened to this #TechTonics interview with @IyaKhalil TWICE, it was that packed with insights: venturevalkyrie.com/new-tech-tonic…
Read 5 tweets
Susannah Fox Profile picture
23 Feb
A friend of a friend was recently diagnosed with #LongCovid. She is receiving good clinical care but asked for recommendations for where she could find #PeerHealthAdvice. Here's what I wrote back (and yes, I'm looking for feedback & more suggestions!):
The @itsbodypolitic COVID-19 support group is a useful #LongCovid resource: wearebodypolitic.com/covid19
One advantage of @itsbodypolitic is their affiliation with @patientled research for #LongCovid which is tracking disease progression and publishing studies that get attention from the World Health Organization and NIH patientresearchcovid19.com
Read 6 tweets
Susannah Fox Profile picture
24 Aug 20
If it's @zeynep appreciation day, please let me join in! [THREAD]
In 2014, many of us were shocked and dismayed by a cruel and senseless attack on @AdamsLisa, who was living with metastatic breast cancer. @zeynep wrote one of the best take-downs in response: medium.com/technology-and…
It was vintage @zeynep - unsparing in her critique, generous in her explanation of the lessons that people could learn from the episode, loyal to the facts, and deeply humane. So much so that @Sulliview cited it in her column: publiceditor.blogs.nytimes.com/2014/01/13/rea…
Read 4 tweets
Susannah Fox Profile picture
23 Aug 20
I’m reflecting on a challenging week as a caregiver for an elder who lives 3 hours away from me. Thanks to luck and preparation, he is OK. [THREAD]
I want to share resources for anyone who has family members living alone -- young, old, and in-between. If we had not done the work to prepare for a crisis, my loved one may not have survived this week.
First: Everyone should make an @atlasofcare Care Map. It will help you visualize the people, love, and services that surround a person. And it will expose holes that need to be filled. atlasofcaregiving.com/caremap/
Read 14 tweets
Susannah Fox Profile picture
15 Oct 19
@S4PM Like a swimmer coming to the surface for oxygen I am finally out of my meetings and can say THANK YOU for the wonderful surprise of the award! #S4PM2019
@S4PM Thanks to @ePatientDave and @WheezyNurse for helping me send a message, which I want to share here, too:
#S4PM2019
@S4PM @ePatientDave @WheezyNurse I'm honored by this award and humbled to reflect on the principles that I try to share with the world in my work. Here's a story that I love to tell because it captures one of the key principles: To exist in possibility. #S4PM2019
Read 9 tweets

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