I get people saying, "OMG, who are you to judge! That isn't the only article."
Nah, it just happens to be one that respects etymology; and Judy Singer coined the word 'neurodiversity' so she gets a say too.
But, hey, accurate speeching not essence cos I understood aftrall. 🙄
Example of correct usage (am I allowed to use the word 'correct', or is that politically incorrect now?): twitter.com/FDMorg
And on the subject of diversity, Spanish has a concept of 'functional diversity' which English doesn't have as standard, and I wish it did, because currently the word 'disability' is often used for this concept in addition to being used to mean disability, and it's confusing.
According to the social model of disability, disability relies on the idea that society systemically disables people who have impairments or perceived impairments.
So when people say they're 'proudly disabled', I hear, "I'm proud that society marginalises people like me," which I am pretty sure isn't their intent!
'Functional diversity' is a term that works for me in the same way that 'neurodiversity' works: it just means there are all sorts of bodies and minds that work differently from one another.
The irony of all this is that the term 'neurodiversity' has been so wholly abused that I am loath to even use it nowadays, because of all the dirt it has picked up.
On the one extreme I have had people kick me out of a sensory overload support group because I actually treat myself for this medical problem, and they think I should just accept it, like it's my holy 'true natural self'.
Yeah, my true self has a medical problem. Like, what happens if your true natural self has a congenital kidney problem, are you gonna go for dialysis or just explode because you 'accept' yourself? 🤦♀️
On the other extreme, there are the people who (bizarrely) say that the idea of neurodiversity doesn't respect people with profound disabilities (especially 'severe autism'), and therefore we should prevent them from being born RATHER THAN giving them access to communication.
In fact, they will go to great lengths to vandalise, discredit, destroy and remove access to communication for nonspeaking autistic people, working hard to ensure that nonspeakers will never communicate effectively.
And so, with 'neurodiversity' now being such a widely misused term, I prefer to just call myself a 'disability activist'. Regardless of what model of disability people are using, it gives them a better idea of what I do.
Some of my focus areas for advocacy (video series):
[THREAD] I wanna show you an example of what presuming competence with nonspeaking autistic children means.
This is a lesson on fractals, prepared by Vicky Oettle, a teacher at a school for nonspeaking autistic children in Johannesburg. It's for use in a one-to-one lesson where the client develops motor skills by pointing to letters on a letterboard.
These children would normally have been in SEN schools where their movement issues were misinterpreted as deliberate misbehaviour, or a sign of intellectual impairment.
You know how the ABAmongering 'experts' are happy to share a stage with Temple Grandin, Stephen Shore and John Elder Robison, because they know those guys won't bite their heads off --
So, question: Who are their favourite famous AAC users?
I ask this, because it seems to me that they are anti-AAC because of the things that AAC users say.
Seems like, "We like working with people who are intelligent yet know their place; but we can't find any AAC users who know their place now that Carly Fleischmann is gone."
And I don't even mean that Carly was tame; it's just that she had the kind of personal goals that wouldn't necessarily bring her headlong into confrontation with 'autism experts' very often.
Yep. And like other communities, we fight, disagree, and have divergent opinions, besides our divergent experiences. And that also means that you have to stop trying to find that one person or united voice to represent us, but listen to MANY of us, many orgs, and see the trends.
Thanks to lobbying by nonspeaking autistic people and their allies, professionals who work with autistic people in South Africa are becoming increasingly aware of apraxia as a major factor in the struggles of autistic people with high support needs.
Apraxia is a problem with purposeful movement. In nonspeaking autistic people, this typically affects the whole body. Many nonspeakers call it the body-mind disconnect or the brain-body disconnect.
A variety of methods help nonspeaking autistic people learn better control of their movements. Some of these methods, such as Spelling to Communicate, involve prompting, i.e. guiding an apraxic person through simple instructions to help them learn control.