THREAD: I’m going to let you in on a little secret. In March 2020 millions of people across the globe- including a disproportionate number of healthcare workers like me- got in touch with each other and signed a pact. We all decided to fake a new illness.
We started exhibiting a bewildering array of seemingly disconnected symptoms reproducible between individuals. Chest pain, fatigue, breathlessness, brain fog. Blood tests, x-rays & ECGs were usually normal. #MedTwitter take note. This means it’s in the head.
Some of us were able to make our pulse rate, blood pressure and oxygen saturations fluctuate wildly, foxing doctors. In fact, some got so good at this game that we could fake damage to heart muscle on MRI & produce weird rashes & antibodies on demand.
We also decided to stop going to work or playing any useful role within our families. It was much more fun to lie in bed looking & feeling miserable. We were gutted when many doctors saw through this scam & diagnosed us as anxious and depressed.
This, dear world, is the scam of #LongCovid. I’m sure you will agree that millions of us have done a remarkable job of faking it, and continue to do so. Unfortunately my conscience compels me to come clean tonight.
(In case you hadn’t figured it out so far, this is sarcasm. Long Covid is a serious multisystem disorder causing much suffering, disability & even death. There is no known cure. Attempts to label it as psychological continue. Meanwhile we suffer, desperate to get our lives back.)
This is our story now. This was once the story of #multiplesclerosis- before the MRI scan. This is also the story of millions suffering with #MECFS, #LymeDisease, #Fibromyalgia & other illnesses the medical profession can’t fit in a neat little box. So they blame us for being ill
@LongCovidItalia @LongCovidSOS @LongCovidOT @long_covid @LongCOVIDPhysio @LongCovidCanada @LongCovidNZ @Covid19Valencia @CPersistente @apresj20 @MECFSNews @PhysiosForME @MEActNet @MEActNetUK @LongCovidNL @longcovidspain @LongCovidKids @patientled @HaulerLong @Long_COVID_All
@Covid19Long @SportieDoc @gezmedinger @keithgeraghty @davidtuller1 @mancunianmedic @AHPLeader @bendymarsh @Caitrionakelly4 @ashcgp @CizCG @ClareRayner6 @_2000shazza @trishgreenhalgh @Dr2NisreenAlwan @DrEReinhold @DrAnnaNZ @davidnabarro @drpaulwhitaker @elisaperego78 @DocAmali
@docade @WokeDoctors @progressiveMDs @Doctor_IMF @Laconic_doc @GeriDoc5 @doctormkumar @BinitaKane @DrRajaMurugesan @dr_hoyle @DecodeMEstudy @ChrisWimpress @denis_campbell @shaun_qureshi @amyismall @mick_tucker @MancRespDoc @paulkenyonTV @doctors_kitchen @WikiDocJames @doctorsaz
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