THREAD: I’m going to let you in on a little secret. In March 2020 millions of people across the globe- including a disproportionate number of healthcare workers like me- got in touch with each other and signed a pact. We all decided to fake a new illness.
We started exhibiting a bewildering array of seemingly disconnected symptoms reproducible between individuals. Chest pain, fatigue, breathlessness, brain fog. Blood tests, x-rays & ECGs were usually normal. #MedTwitter take note. This means it’s in the head.
Some of us were able to make our pulse rate, blood pressure and oxygen saturations fluctuate wildly, foxing doctors. In fact, some got so good at this game that we could fake damage to heart muscle on MRI & produce weird rashes & antibodies on demand.
We also decided to stop going to work or playing any useful role within our families. It was much more fun to lie in bed looking & feeling miserable. We were gutted when many doctors saw through this scam & diagnosed us as anxious and depressed.
This, dear world, is the scam of #LongCovid. I’m sure you will agree that millions of us have done a remarkable job of faking it, and continue to do so. Unfortunately my conscience compels me to come clean tonight.
(In case you hadn’t figured it out so far, this is sarcasm. Long Covid is a serious multisystem disorder causing much suffering, disability & even death. There is no known cure. Attempts to label it as psychological continue. Meanwhile we suffer, desperate to get our lives back.)
This is our story now. This was once the story of #multiplesclerosis- before the MRI scan. This is also the story of millions suffering with #MECFS, #LymeDisease, #Fibromyalgia & other illnesses the medical profession can’t fit in a neat little box. So they blame us for being ill

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More from @doctorasadkhan

4 Jun
@gezmedinger and I just had a phenomenal discussion with @dysclinic about #POTS in #LongCovid. Key message- symptoms are real & disabling; physical illnesses can’t be treated with psychological therapies; any doctor can do simple objective tests & start treatment.
Thank you Dr Svetlana Blitshteyn @dysclinic was a privilege to learn from you. Your patients are lucky to have you.
Read 5 tweets
27 May
The #LongCovid community can learn a lot from those suffering with #MECFS. We should welcome their attempts to reach out- it’s in our interest to collaborate. And if #MECFS patients end up getting the recognition & care they deserve due to #LongCovid research- good I say!
I’m not saying the two conditions are identical. LC is heterogenous- however there is a subgroup of LC sufferers with fatigue who exhibit PEM, the cardinal feature of ME. Both conditions can be associated with #MCAS #POTS sensory overload, stimulus hypersensitivity & severe pain
ME suffers have been stigmatised, ignored & abused by the medical profession, media & wider public. The poorly conducted, discredited #PACE trial recommended Graded Exercise Therapy (GET) & CBT- this has harmed and disabled countless sufferers by its inclusion in ME guidelines.
Read 10 tweets
14 Apr
Recommendations for the Management of Long Covid; ⁦@bmj_latest⁩ rejected (apparently we did not consult the correct experts- there are none, doctor-patients are the closest) & ⁦@TheLancet⁩ has declined as well. Preprint here- please publicise…
29/33 contributors have #LongCovid; 5 are involved in developing services. You will not get more expertise than this. Are the journals worried that unlike @NICEComms & @yourcovidrecov1 we focus on presentations other than anxiety & fatigue? @GeorgeMonbiot @BinitaKane @AHPLeader
Read 6 tweets

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