Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC Profile picture
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots PLEASE READ PINNED TWEET
Bendy~hEDS🐴🦓👩🏻‍🦼🥄😷#F4VL#SafeEdForAll 🕊🇺🇦 Profile picture 1 added to My Authors
Nov 28, 2022 5 tweets 2 min read
Treating hospital discharges for 14 days with half a dose of one anticoagulant does NOT mean that ‘anticoagulants are ineffective in #LongCovid’ (HEAL-COVID study) 1/n -this is a different population to the vast majority of #LongCovid
-the role of the hyperactivated platelet has been totally disregarded
-treatment dose apixaban is 5mg bd, not 2.5mg
-even if the correct population & drugs were used, #LongCovid does not get better in 14 days 2/n
Oct 14, 2022 8 tweets 5 min read
Latest #TeamClots preprint on clotting abnormalities in #LongCovid. We demonstrated that the average levels of 6 inflammatory procoagulatory molecules were significantly higher in the soluble fraction of blood in #LongCovid when compared to controls medrxiv.org/content/10.110… 1/n These werealpha-2-antiplasmin (A2AP), serum amyloid A (SAA), platelet factor 4 (PF4), E-selectin, von Willebrand Factor (VWF) & platelet endothelial cell adhesion molecule-1 (PECAM-1). The mean A2AP level exceeded the upper limit of the lab reference range in #LongCovid 2/n
Sep 23, 2022 4 tweets 3 min read
Now with English subtitles- #LongCovid documentary featuring myself, @BrockAnnaDr, @BeateJaegerMD, @C_Scheibenbogen amongst others. rumble.com/v1kzjhz-h.e.l.… Also dives into #MECFS interviewing @pausedME
Aug 7, 2022 18 tweets 6 min read
A thread on my experience with @Vedicinals_9 for my #LongCovid. Please note that this is information & not advice. Also, I have paid for @Vedicinals_9 & have not been asked to promote the product by the vendor #LongCovid #MECFS #PoTS #MCAS 1/n Background- I experienced significant benefit from HELP apheresis & anticoagulation between Sep & Dec 2021, to the point of being able to self-care & take short walks. Unfortunately omicron x 3 more or less undid those gains & I was barely managing bed to bathroom by May 2022 2/n
Jun 24, 2022 4 tweets 5 min read
@drclairetaylor @DrRichardPile @DrGoblin3 @dr_irfan_malik With pleasure. Dear Drs- don't even attempt to diagnose FND without an extensive workup. Personally I would never diagnose it because 'tests are normal' does not automatically mean 'functional'. We may not have done the right tests, and we can't test for everything organic. @drclairetaylor @DrRichardPile @DrGoblin3 @dr_irfan_malik Here are some cases where an incorrect diagnosis of FND was made- resulting in distress for all, and in some cases physical deterioration. Ultimately they achieved a correct diagnosis- too late for some
Jun 23, 2022 6 tweets 8 min read
This is the kind of paternalistic, unscientific nonsense that #MECFS #Lyme #Fibromyalgia #HSD #POTS #MCAS #Pandas #Pans #EDS #VaccineInjured #FQtoxicity patients have endured for decades. Now it’s the turn of #LongCovid I’m going to make an offer to our colleague. Hopefully @DrKGregorovic can convey this message as I am blocked. Happy to have a Zoom coffee with both of you. We can examine
-the paper @awgaffney has tweeted & discuss the flaws
-the evidence for biomedical causation in #MECFS & LC
May 23, 2022 4 tweets 3 min read
UK patient travels to Germany, starts treatment for #LongCovid. Attends local LC clinic- they note pt is improving on the treatment but refuse to prescribe it because ‘we don’t agree’. No reason given. Arrogance, hubris & medical orthodoxy at its best #TreatLongCovid #TeamClots #MedTwitter #MedEd #TeamGP @AppgCoronavirus
May 17, 2022 18 tweets 8 min read
🧵 on repeat infections, negative lateral flow & #PCR tests, and the use of #COVID19 antibody tests. An n=1 experience #OmicronVariant #LongCovid #MedTwitter #TeamGP #psychtwitter #LongCovidKids #COVIDisAirborne #CovidIsNotOver 1/n I had acute #COViD19 in Nov 2020, PCR +ve. Developed #LongCovid a month after. Had one dose #Pfizer Feb ‘21 which gave me new symptoms. Out of interest I had my anti-spike antibodies done May ‘21- they were above the upper limit the assay could measure 2/n
May 17, 2022 5 tweets 4 min read
#chronicillness Twitter to doctor advocates
-you’re only speaking out because you’re sick yourself
-now you know what it’s like (implication- all of us neglected & psychologised patients before. NOT true- some of us just did our best within a system stacked against us)
1/n
-you need to mention ‘x’ disease as well. (We’re learning as fast as we can. Remember we are sick too. Some of us are bed-bound lying in darkened rooms. You know how much energy it takes to speak up)
2/n
May 16, 2022 7 tweets 5 min read
🧵 If the use of airborne #PPE & improving air quality in healthcare settings are to be ‘optional’ & ‘a matter of personal choice’, then we should give strong consideration to applying the same rule to the following #MedTwitter #MedEd #TeamGP 1/n 1. Handwashing before, between & after patients (& audits of it)
2. Plastic gloves & aprons
3. ‘Bare below the elbows’
4. Jewellery
5. Hair above the collar
6. Mandatory training
2/n
May 16, 2022 6 tweets 4 min read
Pleased to share ⁦@FarazFallahi⁩’s #MECFS video this time with English captions featuring some of my favourite German & Austrian names #LongCovid #MyalgicEncephalomyelitis #pwME #MedTwitter #MedEd #TeamGP #psychtwitter. A sobering watch. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe neuroimmunological disease that mainly occurs after infections (including COVID-19).

Please watch, like and share the video - help us to finally get attention!
May 13, 2022 7 tweets 7 min read
What I have learned since being unwell myself has destroyed any faith I had in my profession’s leaders. I used to think that deep down most senior clinicians acted because they had the best interests of the patient, their colleagues & society at heart. That illusion is gone. 1/n Be it the treatment of those with #MECFS #LongCovid #Fibromyalgia #POTS #MCAS #EDS #HSD #PansPandas #Lyme #FQtoxicity #vaccineinjuries & other so-called invisible illnesses; 2/n
May 7, 2022 17 tweets 13 min read
It has been an honour to walk alongside my friend & colleague of 21 years @BinitaKane & her daughter Jasmin on their courageous & inspiring journey. #LongCovid in adults children is real & serious. There are treatments available- sadly only for a fortunate few #TeamClots 1/n (Everything I say is with the express permission of @BinitaKane). Jasmin is not the only child with #LongCovid who has been shown to have microclots & hyperactivated platelets. They are a consistent finding in kids & adults who have travelled for treatment to Germany & SA 2/n
Apr 20, 2022 8 tweets 2 min read
A number of you have asked me how I did with #Paxlovid which I took for recent re-infection. Prior to re-infection, I was doing well on triple anticoags along with platelet/endothelial stabilisers (sertraline, rupatadine, rosuvastatin & a course of colchicine). 1/n I was noticing an improvement in mobility, orthostatic symptoms & recovery time after #PESE. My re-infection was a clinical diagnosis based on symptoms & microscopy which showed multiple new microclots; I was negative on PCR & LFT, as many seem to be with the new strains 2/n
Apr 11, 2022 11 tweets 6 min read
I’ve just been made aware of a #POTS management clinic run out of @uclh autonomic service. Brace yourself. I’ve had feedback from an attendee and it isn’t good. @UKPoTS you may be aware of this @YorkCardiology @dysclinic it’s awful 1/n Run by 2 specialist nurses. Some jewels:
“We learn to think in particular ways
These ways may not always be helpful when you have ongoing health issues. Unhelpful thinking can increase symptoms. 2/n
Mar 14, 2022 7 tweets 25 min read
@PutrinoLab @C19LH_Advocacy @fi_lowenstein @microbeminded2 @VirusesImmunity @MEActNet @patientled @MarkedByCovid @itsbodypolitic @TheCrankyQueer @ErinSandersNP @WesElyMD @DataDrivenMD @EbonyJHilton_MD @resiapretorius @DrAnnaNZ So far what we know for sure is that in all patients with a physician-made diagnosis of #LongCovid, there is microthrombosis & platelet hyperactivation if looked for. Lending further support to the argument that endothelitis is at the centre of this illness @PutrinoLab @C19LH_Advocacy @fi_lowenstein @microbeminded2 @VirusesImmunity @MEActNet @patientled @MarkedByCovid @itsbodypolitic @TheCrankyQueer @ErinSandersNP @WesElyMD @DataDrivenMD @EbonyJHilton_MD @resiapretorius @DrAnnaNZ Now for many people (particularly those who get treated early) triple anticoagulation will be enough. It may not be for everyone- e.g. in my case clopidogrel resistance & ongoing endothelitis has necessitated additional drugs which do seem to be helping.
Mar 9, 2022 9 tweets 11 min read
A few mths before getting #LongCovid in Nov 20 I was a frontline NHS respiratory consultant; 6am gym goer; couldn’t sit still, always travelling the world with my wife & 2 gorgeous children. Sep 21- bedbound, gastroparesis, complete sound & light intolerance, bladder incontinence ImageImage post-viral urticaria that made me suicidal, pericarditis, angina, cognitive impairment, crippling #POTS resistant to all medication, renal impairment, impaired glucose tolerance, intolerant of most foods. Was waiting for life to end. Got v little help from @NHSEngland 2/n
Mar 8, 2022 4 tweets 4 min read
This harmful advice is doing the rounds. The obsession to get back to activity is dangerous. In #Covid19 rest & pacing are key for recovery & to avoid #LongCovid. There is zero scientific basis for the recommendations here @gezmedinger @LongCovidKids @long_covid @LongCovidSOS I don’t know who the bodies are at the bottom but could #Twitterati please tweet/email them about how wrong this is and demand to know what science this is based on?
Mar 7, 2022 6 tweets 3 min read
Both acute & #LongCovid are a thrombotic vasculopathy that can affect any part of the body. #COVID19 is NOT a ‘viral pneumonia’. Dr Jaco Laubscher told us this 2 years ago. Had the world listened, hundreds of thousands of lives could have been saved. 1/n Had we treated acute COVID properly with bedside TEG & appropriate anticoagulation, so much #LongCovid could have been avoided. I remember being ridiculed by colleagues for sending people with high d-diners home on anticoagulation in the presence of normal CTPA 2/n
Jan 5, 2022 4 tweets 4 min read
‘Just because we have not yet identified a biomarker…. does not mean biomarkers do not exist. We just need to look harder.’ Brilliant article by @resiapretorius on her landmark discovery #LongCovid #MECFS #TeamClots #MedEd #MedTwitter #pwME #COVID19 1/n Really proud to be collaborating with Resia; we will be publishing the work we did with Dr Beate Jaeger & @KraterMartin before too long. Meanwhile #LongCovid clinics need to stop telling patients ‘we don’t know anything about #LongCovid’. We do. The slides don’t lie 2/n
Dec 29, 2021 4 tweets 2 min read
Preprint of results of triple therapy in 24 South African #LongCovid patients researchsquare.com/article/rs-120… This is to be followed up very soon by papers related to work in Germany that Dr Jaeger, myself & others collaborated with the SA group on. The aim of these studies is to influence policymakers/researchers/clinicians. The more evidence the stronger the case for treatment