Dystonia from #psychiatric drugs since 2014: "I have worked so hard over the years to increase my physical activity after WD, so I am extremely proud of the 2 or 3 times a week that I manage to shuffle up & down the block, and manage to lift tiny weights." survivingantidepressants.org/topic/7485-wig…
"If I "walk" (a.k.a. limp/amble/shuffle) too far or for too long, the D (dystonia) will flare. If I do too many reps with my small weights, the D will flare. If I have a cold or flu, the D will flare....I try maintain a balance of being lightly active so I can feel happy."
From her history: "-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014
-All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors"
"-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine
-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)
-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)"
"-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week
-Lorazepam again in Oct. 2014 to help get off of desipramine"
"First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened
-Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body"
"ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks...."
"jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER."
@awaisaftab Hello, Awais. I will attempt to answer your excellent questions. @HengartnerMP may wish to add his perspective as well. /1
@awaisaftab@HengartnerMP Re your #2: This was a retrospective study. Duration & symptom criteria from Chouinard & Chouinard, 2015 were used in selecting subject population. Other of C&C's criteria (C) were addressed in analysis & discussion. The paper only weakly corroborates C&C's criteria (C). /2
@awaisaftab@HengartnerMP "Greater severity of illness": We relied upon subjects reporting symptoms were qualitatively different than prior to treatment. It is impossible to quantify "greater severity", the symptoms being so various & most unlike original condition. They certainly were distressing. /3
Let's unpack why @psychunseen publishes posts such as this one, seeking to delegitimize patient movements he's observed on Twitter. He's been doing this for more than a year. /1
First, everyone should be aware @psychunseen is a #psychiatrist who treats inpatients for the Veterans Administration in Los Angeles.
The target of the tweet is the "drop the disorder" people, but, ill-advisedly, he swipes at chronic Lyme & CFS patients as well. /2
@psychunseen has been working on this thesis for a long time: That patient campaigns on social media are driven by pathological psychiatric conditions, not the desire of patients for better care from doctors. /3
@DepressionLab@tkaiser_science@Martin_Ploederl@HengartnerMP@CVolkmannMD@f_hieronymus So search for the reason "antidepressants" are "antidepressant" is doomed. Ultimately, you'd find any psychotropic causes neurobiological adaptation, that's the definition of a psychotropic, & some humans will subjectively interpret the effect as antidepressant. Others won't.
Lack of physician confidence in tapering plays a large role. Their patients don't trust their knowledge, either, & rightly so. This is a subject nobody wants to unpack.
@DrFulli@lapsyrevoltee I do agree, Dr. Fulli. Response to the drug most certainly is not a diagnosis, & those physicians who conclude an adverse reaction to an #antidepressant is diagnostic of bipolar disorder not only have poor pharmacology knowledge but poor logical skills as well. /1
Conversely, any psychotropic might relieve "depression" in someone, eg. amphetamines or opiates. This is another law of psychotropics. /2
@DrFulli@lapsyrevoltee For what it's worth, I have a collection of case studies where people had immediate severe adverse reactions to #antidepressants & even though they quit within a handful of doses, suffered symptoms identical to post-acute withdrawal syndrome #PAWS for months or years. /3