Re @bmj_latest article last week ‘moving beyond controversy’ #LongCovid & #MECFS
Article that imho largely added to & repeated controversy & ignored much recent research
For which I was interviewed & quoted

There r things I REALLY need to make clear
1/6
bmj.com/content/373/bm…
2/6
I didnt see or review article prior to publication, I solely approved my quote.
During the lengthy interview, on ‘the debate over exercise & what should be happening’ I shared up to date referenced evidence of science behind PEM, potential harms of GET, debunking of PACE
3/6
Rather than respond myself, I highly recommend reading responses to the article, inc @DianeOLeary @DecodeMEstudy @MEResearchUK Dr Shepherd @MEAssociation

Though I was glad of opportunity to warn of dangers of PEM, for full thoughts pls see this video
4/6
For proper, informed, balanced scientific rv & advice re #rehab #physiotwitter approach to #LongCovid learns from #ME & Post viral syndrome management, see this multi disciplinary international guidance:
@LongCOVIDPhysio @PhysiosForME @darrenabrown
5/6
For a detailed look at how biomedical research into help for #LongCovid can build on what is already known & identified in other #PostViral syndromes inc #ME #MECFS
By biomedical experts in the field please see this recent paper by Komaroff & Lipkin

cell.com/trends/molecul…
6/6
The irony of the main article linking to a @bmj_latest opinion stating:
‘But power imbalances remain, esp. in creation of health knowledge, where prominent names in medicine seem to get easy access to the media’
blogs.bmj.com/bmj/2021/06/23…
By @CizCG; @DocAmali; @FrancesorFran

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Dr Ben Marsh

Dr Ben Marsh Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @bendymarsh

13 Feb
ADVICE FOR #LongCovid
There IS good advice available to help with #LongCovid
#postviral #ME fatigue symptoms
There r also Snake oil salesman & opportunists looking to make money from your ill health
I was asked to collate some resources & help
PLEASE SHARE & ADD TO THREAD👇 1/6
@MEAssociation

Meassociation.org.uk/2020/11/me-ass…
Free leaflets, including comprehensive summary of latest advice & guidance re rest/pace (see photo)
Also see their advice leaflet re activity management & pacing (£1)
@theRCOT

Rcot.co.uk/conserving-ene…
(Royal college of Occupational therapists)
Info & details re The 3 Ps principle (Pace, Plan and Prioritise)
Learning to pace, plan and prioritise your daily activities will help you to save energy.
Read 9 tweets
20 May 20
Dear @PaulGarnerWoof as a doctor myself, who’s been on same journey, it’s been interesting to read the evolution of your thoughts on experiencing #Covid_19 viral/postviral fatigue & then on Sx experienced by those who develop #ME/CFS . People who are so often wrongly disbelieved.
@PaulGarnerWoof to read u say,
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community. I am taken aback that doctors have been so dismissive of what these patients have been saying for so long” & to hear youve spoken to Charles Shepherd too is great
@PaulGarnerWoof so much work is being done by charities & individuals to advocate for patients but also to teach, educate & convince many doctors that these symptoms are REAL, debilitating & MUST be believed & correctly advised & managed.
@MEAssociation @MEActNet @actionforme
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!

:(