1/6 The 11th-hour halt to publication of the #ME/CFS guideline has been so very difficult for the patient community. It's particularly hard that there's been so little clarity about why this has happened and what it will take to move forward. Imho...
nice.org.uk/news/article/n…
nice.org.uk/news/article/n…
2/6 it might be useful for patients & professionals to consider how immense the ramifications of this guideline are. NHS management of medically unexplained symptoms is based on the CFS example & consensus that psych care works via CBT & GET. That consensus is now shattered...
3/6 NHS #LongCovid care is largely based on the CFS example, and many US "experts" rely on the CFS model to gaslight long covid patients in the media. US med textbooks also base their MUS training on the psych model of CFS from the UK. Do you see how huge this is?...
4/6 This guideline repudiates psychiatric management of diagnostic uncertainty. Its publication will reverberate across the globe, impacting millions. Professional reputations will be gained & lost, new organizational structures created, new forms of research, and...
5/6 new hope for women, whose routine trouble accessing equal healthcare has been sanctioned by the example of psych care for CFS. Change this massive is hard! If NICE seeks a meeting to facilitate the change, so be it. The table is now "round" & former leaders are struggling...
6/6 I like to think @NICEComms trusts their own work, so that change to the new guideline is impossible. Till there's evidence to the contrary, I support the process. I've been so impressed by this Committee's determination to stand by science as the only basis for patient care.
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